The MEAction Network: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
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Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.
Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.


MEpedia was launched by MEAction.


==History==
==History==
On July 24, 2016, #MEAction made a policy change where they would adopt [[ME]] for the name for future communications about the disease except where the name [[CFS]] needs to be mentioned.<ref>[http://www.meaction.net/2016/07/24/me-mecfs-cfs/ #MEAction Policy Change: ME, not ME/CFS]</ref>
On July 24, 2016, #MEAction made a policy change where they would adopt [[ME]] for the name for future communications about the disease except where the name [[CFS]] needs to be mentioned.<ref>[http://www.meaction.net/2016/07/24/me-mecfs-cfs/ #MEAction Policy Change: ME, not ME/CFS]</ref>
==Notable projects==
The [[Millions Missing protests]] were created by MEAction.
MEpedia was launched by MEAction.


==Actions==
==Actions==

Revision as of 08:54, August 8, 2016

#MEAction (The Myalgic Encephalomyelitis Action Network) is a worldwide ME/CFS patient advocacy group co-founded May 12, 2015 by Jennifer Brea and Beth Mazur.

Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.


History[edit | edit source]

On July 24, 2016, #MEAction made a policy change where they would adopt ME for the name for future communications about the disease except where the name CFS needs to be mentioned.[1]

Notable projects[edit | edit source]

The Millions Missing protests were created by MEAction.

MEpedia was launched by MEAction.

Actions[edit | edit source]

PACE trial[edit | edit source]

US Congressional Outreach[edit | edit source]

Tools[edit | edit source]

Petitions[edit | edit source]

Organization[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]