Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Talk:Myalgic encephalomyelitis
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit source
New topic
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
=== CDC Intervention === In 1987, researchers from the US [[Centers for Disease Control]] & Prevention ([[CDC]]) decided to treat the Lake Tahoe outbreak of M.E. as well as other M.E. outbreaks from the mid-1980s as an entirely new illness, yet another decision based on a complete lack of patient examination.<ref>[https://www.cdc.gov/mmwr/preview/mmwrhtml/00000740.htm Chronic Fatigue Possibly Related to Epstein-Barr Virus -- Nevada - MMWR - CDC]</ref> It was only after the doctors managing the epidemics used over $200,000 of their own money to fund MRIs, that they found their patients had brain lesions indistinguishable from those found in people with AIDS. Nonetheless, these findings were dismissed because they were not present in all patients and in 1988 the CDC christened the illness [[chronic fatigue syndrome]] (CFS) instead of ME, effectively because three ME experts left the committee meeting early due to (1) a lack of patient information and (2) the remaining members’ preoccupation with Epstein-Barr virus, which was biologically incapable of causing the outbreaks due to the virus’s extensive latency period. CFS is a highly contentious concept to patients and specialists. Because of the similarity in terminology, CFS is often confused with “chronic fatigue”; many believe this to have been intentional for the benefit of disability insurance companies. ([[Osler's Web]], [[Hillary Johnson]], pp 217 – 219). In 1993 the term chronic fatigue syndrome was added to the alphabetic list of the WHO ICD classification under R53.82 “Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified.” Although neither CFS nor its criteria were developed to replace ME, many, particularly in the psychiatry field, falsely promoted the notion that ME was synonymous with CFS. The first CFS criteria ([[Holmes criteria]]) published in 1988 by Holmes (5) were in fact created “to provide a rational basis for evaluating patients who have chronic fatigue of undetermined cause.”--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 12:22, 15 December 2016 (PST) - Moving from page here. Although more than 50 years of research and clinical observation informs knowledge of ME pathology, its exact cause remains unknown and more research is required, particularly for treatment. - Moved from front page. Current theory suggests ME results from a persistent viral infection and/or attacks by an individual’s immune system on the nervous system, musculoskeletal system, and blood vessels.--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 13:52, 15 December 2016 (PST) - Moving to Discussion Pg as these are symptoms that are valid but citations are needed and would fit better under symptom information. Perhaps finding a paper or research information that lists these as symptoms can be found. NORD has a good symptom list but the paragraphs would need to be reworded to fit their information. ME can cause a wide variety of symptoms, including changes in sensory tolerance, visual problems, exertional muscle weakness, difficulties with coordination and speech, severe fatiguability, [[cognitive impairment]], problems with balance, subnormal or poor body temperature control, and pain. ME will cause a degree of impaired mobility and disability in all cases. The degree of impairment and complexity depends on the degree of diffuse brain injury and end organ involvement. Myalgic Encephalomyelitis affects the [[brain]] and [[spinal cord]] which control the body and allow thought and sensory processing, causing [[dysautonomia]], impaired thinking, and loss of internal homeostasis, the process whereby the body maintains a consistent internal environment in response to external stressors. Cellular metabolism and communication is disrupted, causing inefficiency in all biological processes. This includes the cellular [[Mitochondrion|mitochondria]] which process fuel to make energy, resulting in a deficiency of [[adenosine triphosphate]] ([[ATP]]) with a chronic, severe, measurable loss of sustainable strength on exertion. - This is the link that seems to have the information that has been posted here. https://arainbowatnight.com/whatisme/ - Probably correct, but no research or clinical documentation online. I have also found these exact words used for MS and some other toxic disease so I fear someone may have found it to be a good neurological phrase that very well may fit our disease but you can't say for certain without a researcher or clinician stating so, otherwise we look like we are just plucked a nice sentence from two other diseases and put it in a blog. If Ramsay himself said it then we would need to state that and have direct citation. ''Between relapses, symptoms may resolve completely with sufficient rest, but permanent neurological problems often persist, especially as the disease advances.'' - Cut from ''Epidemiology'' Heading ''Currently ME is less epidemic and more endemic than in previous decades. ME outbreaks still occur even though the epidemics are no longer recorded or studied. Dr. [[Byron Hyde]] mentioned receiving “reports of over sixty” ME outbreaks from 1988 to 2003, which were “no longer figured in the literature” and “were not given any mention in the [[International Consensus Criteria]].”'' It is in this document: http://www.hfme.org/methemedicalfacts.htm - because a google search of this information brings it up but I cannot find it buried in here and when citation created by whomever can find this information should note the heading and perhaps paragraph that states this.--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 09:57, 16 December 2016 (PST) - I get the feeling at least part of this information was taken from Hillary Johnson's book but only one citation exists. Until this is clarified (I think there need to be quotes and excerpts of parts from her book) I moved all of History here. And perhaps some was taken from Thirty Years of Disdain which would also need to be noted. I think someone could come up with a better history than this all together but I will just leave this here for someone else like Ollie or Jen to make a decision. It isn't a great read the way it is.
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs