Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Talk:Myalgic encephalomyelitis
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit source
New topic
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
==== Progressive, persistent or improving evidence ==== According to [https://europepmc.org/articles/PMC5710812/ this study] 15.9% were found to have a progressive course, others were found to have some time without symptoms (relapsing and remitting), fluctuating, or be improving our staying the same. I would be very interested in any similar research, especially on improvements for those ill a number of years. I think if anything "persistent" would be a better word. Unsure of recovery rates. [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 13:53, 7 February 2019 (EST) ---- Removed "progressive" because ME doesn't consistently present as progressive. Indeed, many cases show improvements over the disease course. [[User:Kmdenmark|Kmdenmark]] ([[User talk:Kmdenmark|talk]]) 09:37, 7 February 2019 (EST) ---- Need to add section on disability / spectrum illness / % who can work --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 21:30, 7 July 2018 (PDT) ---- Am doing major clean-up trying to: – shorten introduction to the most basic information and move specifics to subsections later in the article – shorten subsections by linking to or creating subsidiary pages using "main article template" – removing most references to "So-and-so" says Will still need to correct some journal citations so they are in proper journal format, but this will be much easier/more efficient once the Citoid extension is installed, which I think should happen in the next few weeks. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 16:34, 7 July 2018 (PDT) ---- This article was copied and pasted from an old disapedia article. It will probably need to be edited for length, with the introductory section moved later so that the table of contents is closer to the top of the page. It also has no citations. Some citations can be found at the bottom of this page: http://arainbowatnight.com/whatisme/ Still other facts are probably not cited at all. Lastly, other paradigms of what ME is will need to be incorporated. Its relationship to CFS will need to be described. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 16:30, 30 November 2015 (PST) Useful? http://www.meaction.net/2015/12/10/norwegian-researchers-ask-what-exactly-is-m-e/ [[User:Olliec|Olliec]] ([[User talk:Olliec|talk]]) 03:31, 13 December 2015 (PST) :I think it's time to overhaul this page. I know if I do it I will wipe it and start very fresh and that probably won't be popular so I will leave it to others. But it's time.--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 14:53, 8 August 2016 (PDT) :: I don't think it's a horrible start. It could use some cleanup and citations, but I don't find it terrible as is. If we do make radical changes to it, I think we need to keep it free from CFS based research as much as possible. [[User:Analogue|Analogue]] ([[User talk:Analogue|talk]]) 18:49, 8 August 2016 (PDT) :::I can barely understand it and I have had the disease for decades. Plus when people are sick and first learning it isn't an easy read. Then there are journalists and caretakers who don't really want to sit there and read and read. There are no links for the citations because it was a cut and paste. I agree, it has to stay just ME without CFS because the CFS and ME/CFS pages take care of that. Just a notation of CFS and its relationship to ME being described as Jen stated above is fine and would take just a couple of sentences. They are both seriously marginalized diseases which usually come on with a viral/bacterial event or mono/mumps so that is one way it could be explained how they relate to one another as well as defining symptoms of PEM. Outside of that the reader can be given the list of criteria to see what the criteria are looking to diagnose. But I don't know if I am the one to take it on because I really pretty much would wipe it clean and start over and take a few days/weeks bringing it together. All the information we need is already on MEpedia under the Disease History and the Primers and so on it is a matter of bringing it together in an easily readable format.--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 19:56, 8 August 2016 (PDT) ---- Cut to find a better place to include this information. Because immune-related symptoms are common, the immune system was suspected of being dysfunctional or responding inappropriately to specific viruses, leading to the proposal of the alternative name, “[[Chronic Fatigue Immune Dysfunction Syndrome]]” ([[Chronic Fatigue Immune Dysfunction Syndrome|CFIDS]]).--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 10:51, 15 December 2016 (PST) - I have not found anything to support this statement even though a citation is indicated and if buried in a PDF document should really have Pg. number indicated: ''The initial acute phase illness most often occurs in summer with a 3-5 day incubation period and during this period is said to be highly infectious (3).''--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 11:27, 15 December 2016 (PST) - Sensory issues included this line: ''which has been termed “The Mall Effect” due to its particular provocation by the stimulus of a busy shopping mall.'' It's a nice line but I have not found any researchers describing sensory overload like this.--[[User:DxCFS|DxCFS]] ([[User talk:DxCFS|talk]]) 11:50, 15 December 2016 (PST) - I left this in tact but I think this was from [[Hillary Johnson]]'s book and if so should probably be cited better and perhaps with quotes or as an excerpt. The second paragraph seems to site her work but is it a sentence, a paragraph or everything under CDC Intervention.
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs