Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Talk:Intimidation and bullying of PACE trial critics
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit source
New topic
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
To do: More specifically mention the article that the SMC handed to the reporter, and a couple of quotes from it. Mention Coyne losing his Plosone column for criticizing PACE. The Herald January 13, 1998? https://twitter.com/hewitt_eilidh/status/1098284788321009664 Illustrations of threats issued by Simon Wessely https://forums.phoenixrising.me/threads/illustrations-of-threats-issued-by-simon-wessely.11631/ == Category == I don't know which category to use for this page. Anyone?--[[Special:Contributions/77.111.245.57|77.111.245.57]] 15:25, 20 February 2019 (EST) I don't edit often, someone else might know better, just ideas: https://www.me-pedia.org/wiki/Category:Psychological_paradigm https://www.me-pedia.org/wiki/Category:Notable_studies https://www.me-pedia.org/wiki/Category:Psychiatrists https://www.me-pedia.org/index.php?title=Category:British_researchers&action=edit&redlink=1 :I think we need a new category, possibly Ethics? It would fit [[Ethical issues]] and [[Stigma]] pages. They are currently in [[:Category:Sociological terminology]] [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 13:15, 21 February 2019 (EST) Just brainstorm but anti-science, freedom of inquiry, etc. I was surprised to see Kenneth Friedman missing from this page. I think he has material about the actions against him for legitimate academic actions. Probably including a Youtube. New Jersey Medical School University of Medicine and Dentistry or so. ==Ad hominem attacks== Would it be helpful to add evidence of false accusations? Both the [[PACE trial]] "no direct threats" quote from the FOIA tribunal The Young ME Sufferers Trust No Reported Harassment at Bristol University (Information Obtained Under FOI) [https://www.tymestrust.org/pdfs/noharassmentbristol.pdf No harassment at Bristol] [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 13:15, 21 February 2019 (EST) ==Malcolm Macleod - and PLoSOne == Interesting declaration at the end of the Science Media Centre link already cited: "Declared interests Prof. Macleod: “Prof Sharpe used to have an office next to my wife’s; and I sit on the PLoS Data board that considered what to do about one of their other studies.” [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 17:49, 21 February 2019 (EST) ==John Peters to add== [[Michael Sharpe]] posted a threatening tweet to ME patient [[John Peters]] on Apr 8, 2018 in reply to [[John Peters]] accusing Sharpe of lying when he stated he had no Conflicts of Interest relevant to the PACE trial - Peters posted an image of Sharpe's letter declaring no conflicts of interest in the PACE trial https://twitter.com/profmsharpe/status/982887649043206144 Sharpe posted - Dear Mr Peters Please do state your allegation in precise detail so it can be tested for libel Thank you. https://twitter.com/profmsharpe/status/982887649043206144?s=20 Apr 8, 2018 Peters replied with evidence - In your ICMJE disclosure of 15/11/2010 (released by QMUL, their ref: 2017/F194, ICO decision 696884) you reveal financial benefit from work for an insurance co and for law firms. Several more tweets followed. [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 18:35, 28 February 2019 (EST) == Some of the comments are not attempts to silence or intimidate == For example the following: Scientists and clinicians who expressed concern about the safety of interventions used in the PACE-trial were demeaned as "whiners" who "have managed to ensure there is no treatment available for patients with ME."[24] Critics of the PACE trial have been accused of disliking the results[25] and attempting "to find faults with them which would not be raised if they liked the results."[26] I do think that these are useful for documenting the attitudes towards PACE/CBT/GET critics, but maybe we should move all the current material into a new article that isn't just about silencing and intimidation attempts? (I'm not suggesting to split this article) I see what you mean. I turned the section in question into a subsection of the 'Background' paragraph, which acts as a sort of introduction. The title no longer speaks of intimidation but is: "Negative portrayal of PACE critics". Does that work? Other suggestions are welcome. Cheers, - Sisyphus. :Hi [[User:Sisyphus]] and all - The page is now renamed to '''Intimidation and bullying of PACE trial critics''' and I think the terms like "whiners" and attempting to blame patients for the limited treatment options count as bullying - might also be worth making that point that patients have been advocating for pacing as a treatment/to manage the illness but have been consistently ignored and not had this funded - especially in the UK (given that it's someone British blaming then). This is already reference on the [[NICE guidelines]] pages. :Some content here would be useful on the [[Ethical issues]] and [[Stigma]] pages. Both [[Margaret Williams]] and Malcolm Hooper have previously written about the way certain BPS researchers denigrate and marginalise patients - see '''Denigration by Design''' and [[The Mental Health Movement]] - both from before the PACE trial publication. [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 18:29, 28 February 2019 (EST)
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs