Susan Kreutzer: Difference between revisions
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'''Susan Kreutzer''', is a former attorney who has lived with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS) since coming down with the flu in 1991.<ref>http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php</ref> In 2013, she organized a petition drive with other [[ME/CFS]] activists to demand the [[U.S. Department of Health and Human Services]] (HHS) increase funding for research into [[ME/CFS]], to adopt the [[Canadian Consensus Criteria]] (CCC) to define the illness, to cancel the [[IOM]] ([[Institute of Medicine]]) contract to define ME/CFS, and to officially drop the misleading name “[[chronic fatigue syndrome]]” in favor of the term used by the World Health Organization, [[myalgic encephalomyelitis]] (ME).<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> | '''Susan Kreutzer''', is a former attorney who has lived with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS) since coming down with the [[Influenza|flu]] in 1991.<ref>http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php</ref> In 2013, she organized a petition drive with other [[ME/CFS]] activists to demand the [[U.S. Department of Health and Human Services]] (HHS) increase funding for research into [[ME/CFS]], to adopt the [[Canadian Consensus Criteria]] (CCC) to define the illness, to cancel the [[IOM]] ([[Institute of Medicine]]) contract to define ME/CFS, and to officially drop the misleading name “[[chronic fatigue syndrome]]” in favor of the term used by the [[World Health Organization]], [[myalgic encephalomyelitis]] (ME).<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> | ||
On Monday, December 9, 2013, Kreutzer and a small group of [[ME/CFS]] activists gathered in front of the San Francisco Federal Building to protest the [[IOM]] contract. Jeff Kreutzer, and [[Ed Burmeister]] displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by [[Mary Dimmock]] was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions – all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the [[HHS]] Secretary. She also delivered the the copies of the petitions to several Comgressman.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18541</ref> | On Monday, December 9, 2013, Kreutzer and a small group of [[ME/CFS]] activists gathered in front of the San Francisco Federal Building to protest the [[IOM]] contract. Jeff Kreutzer, and [[Ed Burmeister]] displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by [[Mary Dimmock]] was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions – all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the [[HHS]] Secretary. She also delivered the the copies of the petitions to several Comgressman.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18541</ref> | ||
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*June 2012, [http://www.hhs.gov/advcomcfs/meetings/presentations/kreutzer_061312.pdf Public Testimony at CFSAC meeting] | *June 2012, [http://www.hhs.gov/advcomcfs/meetings/presentations/kreutzer_061312.pdf Public Testimony at CFSAC meeting] | ||
==Online | ==Online presence== | ||
*2013, [https://www.youtube.com/watch?v=F65I1DSXcFY Video of Susan Kreutzer delivering petition with nearly 6,000 signatures to HHS] | *2013, [https://www.youtube.com/watch?v=F65I1DSXcFY Video of Susan Kreutzer delivering petition with nearly 6,000 signatures to HHS] | ||
*2013, [http://www.prohealth.com/library/showarticle.cfm?libid=18541 Article about Susan Kreutzer delivering her petition to HHS] | *2013, [http://www.prohealth.com/library/showarticle.cfm?libid=18541 Article about Susan Kreutzer delivering her petition to HHS] | ||
*2014, [http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php San Francisco Gate newspaper features Kreutzer - Findings of brain anomalies may shed light on chronic fatigue] | |||
==References== | == References == | ||
{{Reflist}} | |||
[[Category:People with ME, CFS, and/or FMS]][[Category:Advocates or allies]][[Category:Attorneys]] | [[Category:People with ME, CFS, and/or FMS]] | ||
[[Category:Advocates or allies]] | |||
[[Category:American advocates or allies]] | |||
[[Category:Attorneys]] | |||
Latest revision as of 01:30, April 14, 2022
Susan Kreutzer, is a former attorney who has lived with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since coming down with the flu in 1991.[1] In 2013, she organized a petition drive with other ME/CFS activists to demand the U.S. Department of Health and Human Services (HHS) increase funding for research into ME/CFS, to adopt the Canadian Consensus Criteria (CCC) to define the illness, to cancel the IOM (Institute of Medicine) contract to define ME/CFS, and to officially drop the misleading name “chronic fatigue syndrome” in favor of the term used by the World Health Organization, myalgic encephalomyelitis (ME).[2]
On Monday, December 9, 2013, Kreutzer and a small group of ME/CFS activists gathered in front of the San Francisco Federal Building to protest the IOM contract. Jeff Kreutzer, and Ed Burmeister displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by Mary Dimmock was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions – all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe.[3] The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the HHS Secretary. She also delivered the the copies of the petitions to several Comgressman.[4]
Quotes[edit | edit source]
“For people who are in bed, and who can’t get out here, we are going to find a way for you to have a voice.” “We will speak our truth.”[5]
CFSAC Testimony[edit | edit source]
- June 2012, Public Testimony at CFSAC meeting
Online presence[edit | edit source]
- 2013, Video of Susan Kreutzer delivering petition with nearly 6,000 signatures to HHS
- 2013, Article about Susan Kreutzer delivering her petition to HHS
- 2014, San Francisco Gate newspaper features Kreutzer - Findings of brain anomalies may shed light on chronic fatigue
References[edit | edit source]
- ↑ http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php
- ↑ http://www.prohealth.com/library/showarticle.cfm?libid=18533
- ↑ http://www.prohealth.com/library/showarticle.cfm?libid=18533
- ↑ http://www.prohealth.com/library/showarticle.cfm?libid=18541
- ↑ http://www.prohealth.com/library/showarticle.cfm?libid=18541
