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Severe ME Awareness Day
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[[File:Severe ME Awareness Day.png|right|thumb|alt=multicolored handwritten ME with Severe ME Day underneath, on a green and blue background]] '''Severe ME Awareness Day''' takes place every year on '''August 8th'''. It is considered a day for remembrance of those who suffer from and have died from [[severe and very severe ME|severe myalgic encephalomyelitis]], as well a chance to educate the public about severe ME and advocate for better treatment and research.<ref>{{Cite web|url=https://www.meassociation.org.uk/2014/08/a-memory-quilt-for-severe-me-day-8-august-2014/ | title = A 'Memory Quilt' for Severe ME Day {{!}} 8 August 2014 | last = ME Association | first = | authorlink = ME Association | date = 2014-08-07 | website = ME Association|language=en-GB|archive-url=|archive-date=|access-date=2020-05-18}}</ref> ==Purpose== Twenty-five percent of people with [[myalgic encephalomyelitis]] have severe or very severe ME, meaning they are almost completely housebound, permanently housebound or bedbound. People with severe ME are frequently hidden away from the outside world, ignored and dismissed.<ref name="Understanding"/> Some patients with severe ME are unable to see doctors because they are refused home visits and are physically unable to leave their home or room.<ref name="Understanding"/> ==History== Severe ME Awareness Day was started by the [[25 Percent ME Group]] in 2013. The day August 8th was chosen to honor [[Sophia Mirza]], a severe ME patient who died of the disease.<ref>{{Cite web|url=http://www.25megroup.org/campaigning_Severe_ME_Day.html | title = Severe ME Day | last = 25% ME Group | first = | authorlink = 25 Percent ME Group| date = |website=25% M.E. Group|language=en-US|archive-url=|archive-date=|url-status=dead|access-date=}}</ref><ref name="Understanding">{{Cite web | last = 25% ME Group | first = | authorlink = 25 Percent ME Group| date = |website=25% M.E. Group|language=en-US|archive-url=|archive-date=|url-status=dead|access-date= | title = Severe M.E. Understanding and Remembrance Day|url=https://25megroup.org/wp-content/uploads/2019/05/Severe-M.E.-Understanding-and-Remembrance-Day.pdf}}</ref > In 2019, the [[ME Association]] marked Severe ME Awareness Day for the first time. {{See also|Ethical issues}} ==Learn more == * [http://www.25megroup.org/severe-me-day-2020 Severe ME Day] - 25% ME Group *[https://25megroup.org/wp-content/uploads/2019/05/Web-A5-REMEMBRANCE-DAY-Leaflet.doc Severe ME Remembrances leaflet] - 25% ME Group ==See also == * [[25 Percent ME Group|25% ME Group]] * [[Severe and very severe ME]] * [[International ME Awareness Day]] * [[ME Awareness Month]] * [[:Category:ME and CFS awareness images|ME and CFS awareness images (category)]] ==References== {{Reflist}} [[Category:Advocacy and fundraising initiatives]]
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