Science for ME

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Revision as of 18:16, March 25, 2018 by AndyPR (talk | contribs) (→‎Forum Member Advocacy Projects: Add reference to PACE briefing document)
Facebook-profile-picture-v1.1.png

Science for ME is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

It was announced that the forum had reached 400 members on 18th November 2017,[2] and 500 members on December 17th 2017.[3]


Notable Members[edit | edit source]

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [6]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [7]
  • Briefing document - The PACE Trial Controversy: A Summary [8]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]