Science for ME: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
(→‎Forum Member Advocacy Projects: Add reference to PACE briefing document)
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*[[Carly Maryhew]]
*[[Carly Maryhew]]
*[[Simon McGrath]]
*[[Simon McGrath]]
*[[Carolyn Wilshire]]


== Researcher Interaction ==
== Researcher Interaction ==

Revision as of 23:06, March 31, 2018

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Science for ME is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

It was announced that the forum had reached 400 members on 18th November 2017,[2] and 500 members on December 17th 2017.[3]


Notable Members[edit | edit source]

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [6]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [7]
  • Briefing document - The PACE Trial Controversy: A Summary [8]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]