Science for ME: Difference between revisions
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
(Rearrange sub-headings, add new sub-heading, add several advocacy projects) |
(→Forum Member Advocacy Projects: Add reference to PACE briefing document) |
||
| Line 18: | Line 18: | ||
*Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire <ref>https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/</ref> | *Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire <ref>https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/</ref> | ||
*Open letter to [[NICE]] concerning the Guideline Committee for ME/CFS <ref>https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/</ref> | *Open letter to [[NICE]] concerning the Guideline Committee for ME/CFS <ref>https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/</ref> | ||
*Briefing document - The PACE Trial Controversy: A Summary <ref>https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/</ref> | |||
== Publicly Visible Forums == | == Publicly Visible Forums == | ||
Revision as of 18:16, March 25, 2018
Science for ME is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]
It was announced that the forum had reached 400 members on 18th November 2017,[2] and 500 members on December 17th 2017.[3]
Notable Members[edit | edit source]
Researcher Interaction[edit | edit source]
- Q&A with team members of the UK ME/CFS biobank, December 14th 2017.[4]
- Science for ME video Q&A with Dr Jose Montoya, January 2018 [5]
Forum Member Advocacy Projects[edit | edit source]
- Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [6]
- Open letter to NICE concerning the Guideline Committee for ME/CFS [7]
- Briefing document - The PACE Trial Controversy: A Summary [8]
Publicly Visible Forums[edit | edit source]
- Home
- ME/CFS News and Research
- Other News and Research
- Advocacy
- Symptoms
- Treatments
- Doctors and Diagnostics
- Missed, Alternative or Co-existing Diagnoses
- Living with ME/CFS
Online presence[edit | edit source]
References[edit | edit source]
- ↑ https://www.facebook.com/pg/sci4me/about/
- ↑ https://www.facebook.com/sci4me/posts/488450984874649
- ↑ https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245
- ↑ https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/
- ↑ https://youtu.be/FarVtTHmKLc
- ↑ https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/
- ↑ https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/
- ↑ https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/
