Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
SMILE trial
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
==Results== The results of the SMILE trial were not published until 2017, despite the trial being completed in 2013, with the print version published in 2018.<ref name=":1">{{Cite journal | last = Brown | first = Nick | authorlink = Nick Brown | author-link2 = | date = Jul 2019 | title = Editor's Note on Correction to Crawley et al 2018|url=https://adc.bmj.com/content/early/2019/07/11/archdischild-2017-313375ednote.full|journal=Archives of Disease in Childhood|volume=|issue=|pages=|quote=|via=}}</ref> Complaints to the publishing journal, [[Archives of Disease in Childhood]], were extensively investigated in 2018 and 2019, resulting in a significant editorial correction in July 2019.<ref name=":0">{{Cite journal | last = Crawley | first = Esther M | authorlink = Esther Crawley | last2 = Gaunt | first2 = Daisy M | authorlink2 = Daisy Gaunt | last3 = Garfield | first3 = Kirsty | author-link3 = Kirsty Garfield | last4 = Hollingworth | first4 = William | author-link4 = William Hollingworth| last5 = Sterne | first5 = Jonathan A C | authorlink5 = Jonathan Sterne | last6 = Beasant | first6 = Lucy | authorlink6 = Lucy Beasant | last7 = Collin | first7 = Simon M | authorlink7 = Simon Collin | last8 = Mills | first8 = Nicola | authorlink8 = Nicola Mills | last9 = Montgomery | first9 = Alan A | authorlink9 = Alan Montgomery | date = Feb 2018 | title = Clinical and cost-effectiveness of the Lightning Process in addition to specialist medical care for paediatric chronic fatigue syndrome: randomised controlled trial|url=https://www.researchgate.net/publication/319961840_Clinical_and_cost-effectiveness_of_the_Lightning_Process_in_addition_to_specialist_medical_care_for_paediatric_chronic_fatigue_syndrome_Randomised_controlled_trial/link/59c3c21c458515af30661891/download|journal=Archives of Disease in Childhood|language=en|volume=103|issue=2|pages=155β164|doi=10.1136/archdischild-2017-313375|issn=0003-9888|pmc=5865512|pmid=28931531|quote=|via=}}</ref> There are some selective quotes in a 2015 paper<ref>[http://adc.bmj.com/content/100/12/1141.abstract What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM - Archives of Disease in Childhood, Crawley et al 2015]</ref> as well the final study protocol, which was published after the trial ended. [[James Coyne]] said of the quotes "(they) cannot be independently evaluated. Readers are not told how representative these quotes, the outcomes for the children being quoted or the overall outcomes of the trial."<ref>[http://blogs.plos.org/mindthebrain/2016/09/23/before-you-enroll-your-child-in-the-magenta-chronic-fatigue-syndrome-study-issues-to-be-considered/ Before you enroll your child in the MAGENTA chronic fatigue syndrome study: Issues to be considered - James Coyne (September 2015) Plos Blog]</ref> To document the results from these threads, see [http://forums.phoenixrising.me/index.php?threads/got-me-just-smile-media-coverage-of-the-smile-trialβ¦.54503/page-19#post-909875 here,] [http://forums.phoenixrising.me/index.php?threads/embargo-broken-bristol-university-professor-to-discuss-trial-of-quack-cfs-tx.54441/page-17#post-909853 here], and [http://forums.phoenixrising.me/index.php?threads/me-cfs-cfs-me-on-bbc-today-programme-now-can-anyone-tune-in.54509/page-7#post-909874 here].
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs