Ryan Prior: Difference between revisions
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'''Ryan Prior''' is an advocate who wrote and co-directed the documentary, ''[[Forgotten Plague]]'', based on his experiences as well as others living with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS). The topics of science and politics of [[ME/CFS]] were also included. | '''Ryan Prior''' is an advocate who wrote and co-directed the documentary, ''[[Forgotten Plague]]'', based on his experiences as well as others living with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS). The topics of science and politics of [[ME/CFS]] were also included. | ||
== Illness | == Illness onset leads to advocacy == | ||
In 2006 Ryan Prior was a healthy, athletic high school student when he became ill with [[ME/CFS]]. After graduating college and becoming a journalist he wrote an article for [http://college.usatoday.com/2013/06/10/opinion-telling-the-hidden-story-of-chronic-fatigue-syndrome/ USA Today: College] [http://college.usatoday.com/2012/10/02/opinion-the-real-story-of-chronic-fatigue-syndrome/ ''Viewpoint: The real story of chronic fatigue syndrome''] and received so much feedback that he realized he needed to do more to report on the disease and produced a documentary: "A Film That Tells The Great Under-Reported Medical Story Of Our Time." His crowdfund raised $120,000 for ''[[Forgotten Plague]]''. Prior and his wife, [[Nicole Castillo]], co-directed.<ref>[http://mecfsdocumentary.com/fundraising/ Forgotten Plague Total Funds Raised:$120,000]</ref> | In 2006 Ryan Prior was a healthy, athletic high school student when he became ill with [[ME/CFS]]. After graduating college and becoming a journalist he wrote an article for [http://college.usatoday.com/2013/06/10/opinion-telling-the-hidden-story-of-chronic-fatigue-syndrome/ USA Today: College] [http://college.usatoday.com/2012/10/02/opinion-the-real-story-of-chronic-fatigue-syndrome/ ''Viewpoint: The real story of chronic fatigue syndrome''] and received so much feedback that he realized he needed to do more to report on the disease and produced a documentary: "A Film That Tells The Great Under-Reported Medical Story Of Our Time." His crowdfund raised $120,000 for ''[[Forgotten Plague]]''. Prior and his wife, [[Nicole Castillo]], co-directed.<ref>[http://mecfsdocumentary.com/fundraising/ Forgotten Plague Total Funds Raised:$120,000]</ref> | ||
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*[https://en.wikipedia.org/wiki/Eagle_Rare Eagle Rare] 2017 ''Rare Life Honor''<ref>[http://www.eaglerarelife.com/content/rare-life-honor Eagle Rare - Rare Life Honor]</ref> Award and Contest open for [http://www.eaglerarelife.com/content/ryan-prior international daily voting until January 2017]. *Won Leadership category and $5K Award* | *[https://en.wikipedia.org/wiki/Eagle_Rare Eagle Rare] 2017 ''Rare Life Honor''<ref>[http://www.eaglerarelife.com/content/rare-life-honor Eagle Rare - Rare Life Honor]</ref> Award and Contest open for [http://www.eaglerarelife.com/content/ryan-prior international daily voting until January 2017]. *Won Leadership category and $5K Award* | ||
== Talks and | == Talks and interviews == | ||
*2016, [http://www.insicknesspod.com/blog/10-21-ryanprior In Sickness + In Health - Podcast 36 - ME/CFS & POTS w Ryan Prior] (Begins at 11:45) | *2016, [http://www.insicknesspod.com/blog/10-21-ryanprior In Sickness + In Health - Podcast 36 - ME/CFS & POTS w Ryan Prior] (Begins at 11:45) | ||
*2016, [https://justtalkingpodcast.com/2016/10/11/with-ryan-prior/ Just Talking Podcast] | *2016, [https://justtalkingpodcast.com/2016/10/11/with-ryan-prior/ Just Talking Podcast] | ||
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*17 June 2013, [https://whchronicle.com/a-young-man-a-big-disease-and-a-big-idea/ ''A Young Man, a Big Disease and a Big Idea''] | *17 June 2013, [https://whchronicle.com/a-young-man-a-big-disease-and-a-big-idea/ ''A Young Man, a Big Disease and a Big Idea''] | ||
== Online | == Online presence == | ||
*[https://twitter.com/r_prior Twitter] | *[https://twitter.com/r_prior Twitter] | ||
Revision as of 16:38, August 14, 2017
Ryan Prior is an advocate who wrote and co-directed the documentary, Forgotten Plague, based on his experiences as well as others living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The topics of science and politics of ME/CFS were also included.
Illness onset leads to advocacy[edit | edit source]
In 2006 Ryan Prior was a healthy, athletic high school student when he became ill with ME/CFS. After graduating college and becoming a journalist he wrote an article for USA Today: College Viewpoint: The real story of chronic fatigue syndrome and received so much feedback that he realized he needed to do more to report on the disease and produced a documentary: "A Film That Tells The Great Under-Reported Medical Story Of Our Time." His crowdfund raised $120,000 for Forgotten Plague. Prior and his wife, Nicole Castillo, co-directed.[1]
Prior also founded The Blue Ribbon Fellowship to educate students in the disease ME/CFS. Currently only 5% of medical schools have proper curricular, research and clinical standards of care for the disease.[2]
Awards[edit | edit source]
- 2017 Eagle Rare Life Leadership Category Award $5K Prize
- Stanford MedX ePatient Scholar[3]
- ProHealth's 2014 Advocate of the Year[4]
Nominations[edit | edit source]
- Eagle Rare 2017 Rare Life Honor[5] Award and Contest open for international daily voting until January 2017. *Won Leadership category and $5K Award*
Talks and interviews[edit | edit source]
- 2016, In Sickness + In Health - Podcast 36 - ME/CFS & POTS w Ryan Prior (Begins at 11:45)
- 2016, Just Talking Podcast
- 2014, ME/CFS Alert Episode 58 - Ryan Prior and the Blue Ribbon Foundation
- 2014, ME/CFS Alert Episode 57 - Patient Perspectives - Ryan Prior and the Blue Ribbon Fellowship
- 23 Jan 2014, Dr. Andreas Kogelnik, Ryan Prior and Llewellyn King appeared on “The Jim Bohannon Show”
Media exposure[edit | edit source]
- 17 June 2013, A Young Man, a Big Disease and a Big Idea