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ReMEmberCFS
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{{stub}} {{NeedsImage}} '''ReMEmber, The Chronic Fatigue Society''' aim to help people with [[ME/CFS]] live healthy and happy lives by giving information & advice, campaigning for better biomedical services & supporting biomedical research. ReMEmberCFS is a [[UK]] charity based in Sussex ==Aims== reMEmber is a registered charity dedicated to securing good services (particularly biomedical services) for people who have CFS/ME. To Improve understanding of the condition by organising professional presentations for patients and carers. Giving ongoing support and information to patients, carers and professionals. They belong to Forward ME, a coalition of ME charities. ==Services== They give help and advice to patients, families and carers via meetings, a website, telephone and e-mail. They also hold Information and social events and provide a 24 page printed newsletter (which is posted/shipped to you) issued three times a year They were awarded the Queen’s Award for Voluntary Service for our works in the community to help people who suffer from the chronic illness ME in Mid Sussex. This is the highest award a voluntary group can receive in the UK. ==Notable people== ===Staff=== Janice Kent - Director William Kent - Secretary Derek Hiscoke - Treasurer Professor Roger Homan - Ethical Adviser ===Patrons=== The Countess of Mar Anthony Pinching Baron Dholakia OBE DL Lord Flight Judy Parfitt Gwyneth Powell ===Medical advisors=== Dr Amolak Bansal Professor Kevin Davies Professor Basant Puri Dr Karen Walker-Bone Dr. Willy Weir ==Research/Notable studies== ==History== The Director was a member of the 2002 Chief Medical Officer’s Working Group on CFS/ME which produced best practice guidance for professionals, patients and carers. The Director is also a member of the Horsham and Mid Sussex Clinical Commissioning Group. Their campaigning and meeting at Hassocks in June 2003 '''“Meet the Decision Makers”'''with Howard Flight MP, Mid Sussex Primary Care Trust and the independent patient groups of Sussex, led to a CFS/ME service being commissioned for the whole of Sussex. ==Funding== ==Interviews and articles== ==Online presence== *[http://www.remembercfs.org.uk Website] *Twitter *Facebook (group/page) *YouTube channel *Instagram *LinkedIn ==See also== * [[Forward-ME]] ==Learn more== *Wikipedia ==References== {{Reflist}} [[Category:Patient groups]] [[Category:British patient groups]]
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