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Revision as of 19:13, April 22, 2018
MEpedia portals: Myalgic Encephalomyelitis · Nervous system · Cardiovascular system · Digestive system · Energy metabolism · Endocrine system · Immune system · Pathogens · History & People · Treatments
History and People
Myalgic encephalomyelitis (ME), a disease that occurs both sporadically and as cluster outbreaks, was first documented in Los Angeles in 1934. Since, there have been dozens of outbreaks recorded in the medical literature, most notably the 1948-49 Akureyri, Iceland outbreak, 1955 Royal Free Hospital Outbreak in London and the 1984 outbreak in Incline Village, Nevada. The disease's existence almost certainly predates 1934, and may have been unrecognized for centuries or misdiagnosed as hysteria, neurasthenia, and later, conversion disorder.
Myalgic encephalomyelitis was first known as atypical polio and later called "Icelandic disease" until it was officially named myalgic encephalomyelitis following the 1955 London outbreak. ME was first recognized as a neurological disease by the World Health Organization in 1969. Following the 1984 outbreak in Nevada, it was renamed and recharacterized by the Centers for Disease Control as "Chronic Fatigue Syndrome."
In 2015, the US Institute of Medicine, based on a review of several decades of research, created a new definition of the disease and proposed a new name: Systemic exertion intolerance disease. Patient advocacy and a renewed interest in the disease among clinicians and scientists have led many new research groups to join the field in recent years, prompting several new discoveries and promising treatments to be tested via clinical trials. (more...)
Ryan Prior is an advocate who wrote and co-directed the documentary, Forgotten Plague, based on his personal experiences as well as others living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The topics of science and politics of ME/CFS were also included. He founded the Blue Ribbon Foundation. (more...)
Peter C. Rowe, MD, is the director of the John Hopkins Children's Center Chronic Fatigue Clinic in Baltimore, Maryland, USA, and a professor of Pediatrics at John Hopkins University School of Medicine, Baltimore, Maryland, USA. As a leader in the field of pediatric myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Dr Rowe is invited as a frequent guest at ME/CFS conferences and served as one of the experts on the "Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" that was convened for the 2015 Institute of Medicine report, and serves on the Solve ME/CFS Initiative Research Advisory Council. (more...)
In the news
- AXA1125 clinical trial begins for Long COVID - Nov 2021
- Graded exercise therapy advised against in new England and Wales guidelines - Nov 2021
- Public health expert David Tuller reaches crowdfunding goal for another year's work, including ME/CFS and Long COVID - Oct 2021
- Graham McPhee, pwME and critic of the PACE trial passes away - Oct 2021
- Medical neglect and abuse page now on MEpedia
- New group Doctors with M.E. (DwME) launches website.
Professor Mady Hornig is a physician-scientist and Director of Translational Research at the Center for Infection and Immunity at the Columbia University Mailman School of Public Health where she is also Associate Professor of Epidemiology. (more...)
Suggest • More Books & Film...
Did you know?
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