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Pervasive Refusal Syndrome
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== Evidence of mistreatment and medical neglect == A letter from a mother written in 2003 describes her [[Severe and very severe ME|severely ill]] son's experience as an in-patient in hospital, including needing a feeding tube regularly re-inserted, stomach surgery (as a result of him bleeding from the stomach), a plan for activity that would cause him considerable pain, possibly to the point of screaming, who later found her son's medical records stated he had "elective mutism" and "pervasive refusal syndrome" - information not shared with her at the time.<ref name="inquest">{{Cite web|url=http://angliameaction.org.uk/docs/Inquest-Implications.pdf | title = INQUEST IMPLICATIONS? | last = Marshall | first = Eileen | authorlink= | last2 = Williams | first2 = Margaret | authorlink2 = | date = Jun 16, 2006 | website = |archive-url=|archive-date=|url-status=|access-date=2019-02-15}}</ref> According to the letter, the clinicians involved in advising the hospital were psychiatrist [[Simon Wessely]] and psychologist [[Trudie Chalder]].<ref name="inquest" />
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