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Open letter to the Lancet
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On 13 November 2015, an '''open letter to the medical journal,''[[The Lancet]]'',''' was directed at its editor, Dr. [[Richard Horton]], by six experts in [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]], calling for the [[PACE trial]] data to be independently reanalysed.<ref name=":0">{{Cite web|url=http://www.virology.ws/2015/11/13/an-open-letter-to-dr-richard-horton-and-the-lancet/ | title = An open letter to Dr. Richard Horton and The Lancet | last = Tuller | first = David | date = Nov 13, 2015 | website = [[Virology blog]]|language=en-US|archive-url=|archive-date=|url-status=|access-date=2018-08-29}}</ref> ''The Lancet'' published an article in on the PACE trial in 2011, ''Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomized trial'', in which claims made by the trial authors have since been shown to be in error after being sued to release the study's raw data.<ref>{{Cite news | url=http://senseaboutscienceusa.org/pace-research-sparked-patient-rebellion-challenged-medicine/ | title = PACE: The research that sparked a patient rebellion and challenged medicine - Sense About Science USA | last = sasusa | first = | date = 2016-03-21|work=Sense About Science USA|access-date=2018-08-29|archive-url=|archive-date=|url-status=|language=en-US}}</ref><ref name="Wilshire,et al, 2017">{{Citation | last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire | last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon | last3 = Matthees | first3 = A | authorlink3 = Alem Matthees | last4 = McGrath | first4 = S | authorlink4 = Simon McGrath | title = Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial | journal = Fatigue: Biomedicine, Health & Behavior | volume = 5 | issue = 1 | page = 43-56 | date = 2017| doi = 10.1080/21641846.2017.1259724}}</ref> Following a lack of response, the open letter was submitted again three months later, this time with 42 signatories.<ref name=":1">{{Cite web|url=http://www.virology.ws/2016/02/10/open-letter-lancet-again/ | title = An open letter to The Lancet, again | last = Tuller | first = David | date = Feb 10, 2016 | website = [[Virology blog]]|language=en-US|archive-url=|archive-date=|url-status=|access-date=2018-08-29}}</ref> A third letter was sent 10 June 2018 and had 94 signatories.<ref name=":2">{{Cite web|url=http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/ | title = Trial By Error: An Open Letter to The Lancet, Two Years On | last = Tuller | first = David | date = Jun 19, 2018 | website = [[Virology blog]]|language=en-US|archive-url=|archive-date=|url-status=|access-date=2018-08-29}}</ref> The third letter was resent on July 9th, 2018 and had additional signatories which included Members of Parliament, the [[Countess of Mar]], and patient advocacy organizations.<ref name=":3">{{Cite web|url=http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/ | title = Trial By Error: Yet Another Appeal to The Lancet, With More On Board | last = Tuller | first = David | date = Jul 10, 2018 | website = [[Virology blog]]|language=en-US|archive-url=|archive-date=|url-status=|access-date=2018-08-29}}</ref> ==Letters== *Nov 13, 2015, [http://www.virology.ws/2015/11/13/an-open-letter-to-dr-richard-horton-and-the-lancet/ An open letter to Dr. Richard Horton and ''The Lancet'']<ref name=":0" /> *Feb 10, 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to ''The Lancet'', again - Virology blog]<ref name=":1" /> *Jun 19, 2018, [http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/ Trial By Error: An Open Letter to The Lancet, Two Years On - Virology blog]<ref name=":2" /> *Jul 9, 2018, [http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/ Trial By Error: Yet Another Appeal to The Lancet, With More On Board]<ref name=":3" /> ==Signatories== ===First letter=== The first letter had 6 signatures: <div style="column-count:3"> *[[Ronald Davis]] *[[Jonathan Edwards]] *[[Leonard Jason]] *[[Bruce Levin]] *[[Vincent Racaniello]] *[[Arthur Reingold]] </div> ===Second letter=== The second letter had 42 signatures: <div style="column-count:4;-moz-column-count:4;-webkit-column-count:4"> *[[Ronald Davis]] *[[Jonathan Edwards]] *[[Leonard Jason]] *[[Bruce Levin]] *[[Vincent Racaniello]] *[[Arthur Reingold]] *[[Dharam Ablashi]] *[[James Baraniuk]] *[[Lisa Barcellos]] *[[Lucinda Bateman]] *[[David Bell]] *[[Alison Bested]] *[[Gordon Broderick]] *[[John Chia]] *[[Lily Chu]] *[[Derek Enlander]] *[[Mary Ann Fletcher]] *[[Kenneth Friedman]] *[[David Kaufman]] *[[Nancy Klimas]] *[[Charles Lapp]] *[[Susan Levine]] *[[Alan Light]] *[[Sonya Marshall-Gradisnik]] *[[Peter Medveczky]] *[[Zaher Nahle]] *[[James Oleske]] *[[Richard Podell]] *[[Charles Shepherd]] *[[Christopher Snell]] *[[Nigel Speight]] *[[Donald Staines]] *[[Philip Stark]] *[[Eleanor Stein]] *[[John Swartzberg]] *[[Ronald Tompkins]] *[[Rosemary Underhill]] *[[Rosamund Vallings]] *[[Michael VanElzakker]] *[[William Weir]] *[[Marcie Zinn]] *[[Mark Zinn]]</div> ===Third letter=== The third letter had over one hundred signatures:<ref>{{Cite web|url=http://www.virology.ws/2018/08/13/trial-by-error-open-letter-to-the-lancet-version-3-0/ | title = Trial By Error: Open Letter to The Lancet, version 3.0 | website = [[Virology blog]]|language=en-US|access-date=2019-01-03}}</ref> ==== Leading experts: ==== <div style="column-count:4;-moz-column-count:4;-webkit-column-count:4"> *[[Dharam Ablashi]] *Lisa Alioto *[[Michael Allen]] *[[Christopher Armstrong]] *[[James Baraniuk]] *[[Lisa Barcellos]] *[[Lucinda Bateman]] *[[Alison Bested|Alison C. Bested]] *[[Charlotte Blease]] *[[Molly Brown]] *[[Robin Callender Smith]] *[[John Chia]] *[[Lily Chu]] *Barbara Comerford *[[Joan Crawford]] *[[Janet Dafoe]] *[[Todd Davenport]] *[[Ronald Davis]] *[[Lucy Dechene]] *[[Simon Duffy]] *[[Jonathan Edwards]] *[[Valerie Eliot Smith]] *[[Derek Enlander]] *[[Meredyth Evans]] *W.A. Faas *Margaret C. Fernald *[[Mary Ann Fletcher]] *[[Kenneth Friedman]] *[[Robert Garry]] *[[Keith Geraghty]] *[[Simin Ghatineh]] *[[Ian Gibson]] *[[Claudia Gillberg]] *[[Mike Godwin]] *[[Rebecca Goldin]] *[[Alan Gurwitt]] *[[Geoffrey Hallmann]] *[[Maureen Hanson]] *[[Malcolm Hooper]] *[[Leonard Jason]] *Daniel Kahn *[[Michael Kahn]] *[[Keith Kahn-Harris]] *[[Jon Kaiser]] *[[David Kaufman]] *[[Betsy Keller]] *[[Nancy Klimas]] *[[Andreas Kogelnik]] *[[Anthony Komaroff|Anthony L. Komaroff]] *[[Richard Kwiatek]] *[[Eliana Lacerda]] *[[Charles Lapp]] *Keith R. Laws *[[Bruce Levin]] *[[Donald Lewis]] *[[Alan Light]] *[[Vincent Lombardi]] *Rogier Louwen *[[Alex Lubet]] *[[Steven Lubet]] *Kristin Luker *Darren Lynch *[[Margaret of Mar, 31st Countess of Mar|Countess of Mar]] *[[David Marks]] *[[Sonya Marshall-Gradisnik]] *[[Marlon Maus]] *[[Neil McGregor]] *[[Patrick McKnight]] *[[Marvin Medow]] *Peter G. Medveczky *[[Jose Montoya|Jose G. Montoya]] *[[Sarah Myhill]] *[[Luis Nacul]] *[[Zaher Nahle]] *[[Heidi Nicholl]] *[[James Oleske]] *[[Elisa Oltra]] *[[Nigel Paneth]] *[[Richard Podell]] *[[Nicole Porter]] *[[Vincent Racaniello]] *[[Arthur Reingold]] *[[Peter Rowe|Peter C. Rowe]] *[[Michael Scott]] *Sarah Selke *[[Charles Shepherd]] *[[Christopher Snell]] *[[Nigel Speight]] *[[Donald Staines]] *[[Philip Stark]] *[[Eleanor Stein]] *[[Staci Stevens]] *[[Julian Stewart]] *[[Leonie Sugarman]] *[[John Swartzberg]] *[[Ronald Tompkins]] *[[Barbara True]] *[[Samuel Tucker]] *[[David Tuller]] *[[Rosemary Underhill]] *[[Derya Unutmaz]] *[[Annemie Uyttersprot|AM Uyttersprot]] *[[Rosamund Vallings]] *[[Linda van Campen]] *[[Mark VanNess]] *[[Mark Vink]] *[[Frans Visser]] *[[Tony Ward]] *[[William Weir]] *[[John Whiting]] *[[Sadie Whittaker]] *[[Carolyn Wilshire]] *[[Marcie Zinn]]</div> ==== Members of Parliament ==== * Sir [[Edward Davey]] MP, Kingston and Surbiton, England, UK * [[David Drew]] MP, Stroud, England, UK * [[Patricia Gibson]] MP, North Ayrshire and Arran, Scotland, UK * [[Mary Glindon]] MP, North Tyneside, England, UK * [[Sandy Martin]] MP, Ipswich, England, UK * [[Carol Monaghan]] MP, Glasgow North West, Scotland, UK * [[Nicky Morgan]] MP, Loughborough, England, UK * [[Alex Sobel]] MP, Leeds North West, England, UK * [[Graham Stringer]] MP, Blackley and Broughton, England, UK * [[Stephen Timms]] MP, East Ham, England, UK ==== Patient/Advocacy Organizations ==== * [[25 Percent ME Group|25% ME Group]], Support for severe ME sufferers, UK * [[Action CIND|Action CND]], Canada * [[Action for ME]], UK * [[American ME and CFS Society]], US * [[Associated New Zealand ME Society]], New Zealand * Bury and Bolton ME/CFS & Fibromyalgia Support Group, UK * Chester MESH (ME self-help) group, Chester, UK * Dr Sarah Myhill's MAIMES [[Medical Abuse In ME Sufferers (MAIMES)|Medical Abuse In ME Sufferers]] Campaign, UK * [[Emerge Australia]], Australia * [[European ME Alliance]]: Belgium ME/CFS Association, Belgium; Research ME-CFS.CZ, [[Czech Republic]]; [[ME Foreningen]], Denmark; [[Suomen CFS-Yhdistys]], Finland; [[Fatigatio e.V.]], Germany; [[Het Alternatief]], Netherlands; [[Hope 4 ME & Fibro NI|Hope 4 ME & Fibro Northern Ireland]], UK; Icelandic ME Association, Iceland; [[Irish ME Trust]], Ireland; [[Associazione CFS Onlus-Veneto]], Italy; [[Norges ME Forening|Norges ME-forening]], Norway; Liga SFC, Spain; [[Riksföreningen för ME-patienter]], Sweden; [[Verein ME/CFS Schweiz]], Switzerland, [[Invest in ME|Invest in ME Research]],UK * German Association for ME/CFS, [[Deutsche Gesellschaft für ME/CFS|Deutsche Gesellschaft für ME/CFS e.V.]], Germany * Group ME – The Hague/Dutch Citizens’ Initiative Recognize ME, The Netherlands * [[Irish ME/CFS Association]], Ireland * [[Leeds ME Network]], UK * [[Lost Voices Stiftung|Lost Voices Stiftung (Fondation)]], Hannover/ Germany * [[Massachusetts ME/CFS & FM Association|Massachusetts CFIDS/ME & FM Association]], US * [[The MEAction Network|#MEAction Network]]: #MEAction US, [[MEActionUK|#MEAction UK]], [[MEAction Scotland|#MEAction Scotland]], #MEAction Australia * ME Advocates Ireland, Ireland * [[ME Association]], UK * [[ME North East]], UK * [[ME Research UK]], UK * [[ME Victoria]], Canada * [[ME/CFS Australia Ltd|ME/CFS (Australia) Ltd]], Australia * ME/CFS and Lyme Association of WA, Inc., Australia * [[ME/CFS Australia (SA) Inc]], Australia * [[ME/CVS-Stichting Nederland|ME/CVS Stichting Nederland]], Netherlands * [[ME/CVS Vereniging]], Netherlands * ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of British Columbia, Canada * [[Millions Missing Canada]], Canada * [[Minnesota ME/CFS Alliance]], US * [[National CFIDS Foundation|National CFIDS Foundation, Inc.]], US * [[National ME/FM Action Network]], Canada * [[New Jersey ME/CFS Association|New Jersey ME/CFS Association, Inc.]], US * Norfolk & Suffolk ME Patient/Carer Group, UK * North London ME Network, UK * Nottingham ME Support Group, UK * [[OMEGA|Oxfordshire ME Group for Action]] (Oxfordshire ME Group for Action), UK * [[Open Medicine Foundation]], US * [[PANDORA|Pandora Org]], US * [[Phoenix Rising]], International membership representing many countries * [[Research ME-CFS.CZ]], Czech Republic * [[Science for ME|Science For ME]], International membership representing many countries * Sheffield ME and Fibromyalgia Group, UK * [[Simmaron Research|Simmaron Research Foundation]], US * [[Solve ME/CFS Initiative]], US * [[Steungroep ME en Arbeidsongeschiktheid]], The Netherlands * [[Suomen CFS-Yhdistys|Suomen lääketieteellinen ME/CFS-yhdistys ry]], Finland * [[Tymes Trust]] (The Young ME Sufferers Trust), UK * [[Wake-Up Call|Wake-Up Call Beweging vzw]] (movement), Belgium * [[Welsh Association of ME & CFS Support|WAMES]] (Welsh Association of ME & CFS Support), Wales, UK * [[Wisconsin ME/CFS Association|Wisconsin ME and CFS Association]], US * [[The York ME Community|York ME Community]], UK ==Response== There has not been a direct response to the letter from [[Richard Horton]] or [[The Lancet]]. ==See also== *[[PACE trial]] *[[Richard Horton]] *[[The Lancet]] *[[The Lancet Psychiatry]] ==References== {{Reflist}} [[Category:Open letters]]
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