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[[File:NIH_logo.png|right]] The '''National Institutes of Health''' or '''NIH''' is the primary United States government body responsible for biomedical and health research, it is the medical research agency for the [[United States]], and is a department of [[U.S. Department of Health and Human Services|Health and Human Services]].<ref>{{Cite web|url=https://www.nih.gov/about-nih/who-we-are | title = Who We Are|website=National Institutes of Health (NIH)|language=EN|access-date=2021-02-04}}</ref> [[Francis Collins]], MD, PhD, currently serves as NIH director.<ref>{{Cite web|url=https://directorsblog.nih.gov/ | title = NIH Director's Blog|website=NIH Director's Blog|language=en-US|access-date=2019-01-07}}</ref> The NIH campus is in Bethesda, Maryland, US. The National Institutes of Health is made up of 27 different components called Institutes and Centers,<ref>{{Cite web|url=https://www.nih.gov/about-nih/who-we-are/organization | title = Organization | date = 2014-10-31 | website = National Institutes of Health (NIH)|language=EN|access-date=2019-01-07}}</ref> of which many are participating in the [[Trans-NIH ME/CFS Working Group]].<ref>{{Cite web|url=https://www.nih.gov/mecfs/trans-nih-mecfs-working-group-members | title = Trans-NIH ME/CFS Working Group Members | date = 2016-01-06 | website = National Institutes of Health (NIH)|language=EN|access-date=2019-01-07}}</ref> ==Notable staff== ===Officials=== *[[Francis Collins]] - Director of NIH since 2009 *[[Walter Koroshetz]] - Director of the [[National Institute of Neurological Disorders and Stroke]], Chair [[Trans-NIH ME/CFS Working Group]]) *[[Vicky Whittemore]] ([[ME/CFS Working Group]]) ===Other notable staff === *[[Avindra Nath]] *[[Brian Walitt]] ==Notable announcements related to ME/CFS research== *Oct 2015, the NIH announced its intention to bolster its [[National Institutes of Health funding|funding]] for the disease, following the [[Institute of Medicine report]].<ref>{{Cite web|url=https://www.nih.gov/news-events/news-releases/nih-takes-action-bolster-research-myalgic-encephalomyelitis/chronic-fatigue-syndrome | title = NIH takes action to bolster research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2015-10-29 | website = National Institutes of Health (NIH)|language=EN|access-date=2019-01-07}}</ref><ref>{{Cite web|url=http://www.occupycfs.com/2015/11/04/the-nih-plan/|website=Occupy M.E.|access-date=2019-01-07 | title = The NIH Plan | date = | last = Spotila | first = Jennie | authorlink=Jennie Spotila|archive-url=|archive-date=|url-status=}}</ref> On 3 Nov 2015 [[Francis Collins]] appeared on the Charlie Rose show in the United States and reiterated his commitment to [[ME/CFS]] disease research.<ref>[https://www.youtube.com/watch?v=nDjJLgA6Ex0 Francis Collins of NIH on Charlie Rose- Chronic Fatigue Syndrome ME/CFS Myalgic Encephalomyelitis]</ref> During the interview he stated "I have been puzzled and frustrated how little we understand this condition" and "you are disabled, you are utterly unable to carry out daily activities". The announcement included the formation of the [[Trans-NIH Working Group]]. *Mar 2016, the NIH confirmed its goal of wanting to issue an RFA (Request For Application) to fund extramural research, in addition to its own intramural (internal) research.<ref>{{Cite web|url=https://www.meaction.net/2016/03/10/nih-aiming-to-commit-rfa-funds-to-mecfs-research/ | title = NIH aiming to commit RFA funds to ME/CFS research | date = 2016-03-10 | website = #MEAction|language=en-US|access-date=2019-01-07}}</ref> *Apr 2016, the NIH announced it would provide funding for existing grant holders to expand their studies to include [[ME/CFS]] patients.<ref>{{Cite web|url=https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html | title = NOT-AI-16-046: Notice of Availability of Administrative Supplements on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)|website=grants.nih.gov|access-date=2019-01-07}}</ref> *May 2016, the [[Trans-NIH ME/CFS Working Group]] announced a Request for Information (RFI) to solicit input to develop new strategies to guide NIH's research efforts and priority setting for research on [[ME/CFS]].<ref>{{Cite web|url=https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html | title = NOT-NS-16-024: Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)|website=grants.nih.gov|access-date=2019-01-07}}</ref> *Jan 2017, the NIH made an announcement that it intends to commit $6 million in Fiscal Year 2017 in order to fund two to three [[Myalgic Encephalomyelitis]] / [[Chronic Fatigue Syndrome]] ([[ME/CFS]]) Collaborative Research Centers (CRC) and a Data Management and Coordinating Center (DMCC), which will support the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Collaborative Research Centers (CRC).<ref>{{Cite web|url=https://grants.nih.gov/grants/guide/rfa-files/RFA-NS-17-022.html | title = RFA-NS-17-022: Data Management and Coordinating Center (DMCC) for the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Collaborative Research Centers (CRC) (U24)|website=grants.nih.gov|access-date=2019-01-07}}</ref> The goal of the CRC is to perform collaborative research on ME/CFS to inform the etiology, pathogenesis and/or treatment of ME/CFS.<ref>{{Cite web|url=https://grants.nih.gov/grants/guide/rfa-files/RFA-NS-17-021.html | title = RFA-NS-17-021: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Collaborative Research Centers (CRCs) (U54)|website=grants.nih.gov|access-date=2019-01-07}}</ref> *Jun 2018, The [[Bateman Horne Center]] will be an "[https://allofus.nih.gov All of Us]" recruitment center for people living with ME/CFS and [[Fibromyalgia]]. All of Us is a ten year [https://en.wikipedia.org/wiki/Precision_medicine#Precision_Medicine_Initiative Precision Medicine Initiative] project that has been funded $1.5 Billion to recruit one million patients for its bio-bank. The idea is to research all diseases, from the most common to the most rare while taking into account lifestyle, environment, and biology.<ref>[http://batemanhornecenter.org/nih-announces-precision-medicine-initiative/ Bateman Horne Center - Jun 20, 2018]</ref><ref>{{Cite web|url=https://allofus.nih.gov/ | title = National Institutes of Health (NIH) β All of Us|website=allofus.nih.gov|access-date=2019-01-07}}</ref> *In March 2019, NIH's [[National Institute of Neurological Disorders and Stroke|NINDS]] Council Working Group for ME/CFS opened a [https://www.ninds.nih.gov/RFI-NANDS-ME-CFS public comment period] to run from March 15, 2019 to May 1, 2019 seeking input on how best to advance ME/CFS research. All stakeholders--"researchers, health care providers, individuals with ME/CFS, patient advocates and health advocacy organizations, scientific or professional organizations, federal agencies, as well as other interested members of the public"--are invited to submit comments, which can be done anonymously if preferred. ==Clinical Center Chronic Fatigue Syndrome Study== In late 2015 the NIH announced its intention to begin an extensive intramural study of around 40 ME/CFS patients, the [[NIH Post-Infectious ME/CFS Study]]. ==ME/CFS research funding== Patient [[Jennie Spotila]] has summarized total ME/CFS NIH funding each year: *2012, [http://www.occupycfs.com/2012/07/16/2011-nih-spending-on-cfs-studies/ 2011 NIH Spending on CFS Studies] *2013, [http://www.occupycfs.com/2013/05/15/2012-nih-spending-on-cfs-studies/ 2012 NIH Spending on CFS Studies] *2014, [http://www.occupycfs.com/2014/03/31/2013-nih-spending-on-cfs-studies/ 2013 NIH Spending on CFS Studies] *2015, [http://www.occupycfs.com/2015/03/04/2014-nih-spending-on-mecfs-studies/ 2014 NIH Spending on ME/CFS Studies] *2016, [http://www.occupycfs.com/2016/01/28/nih-who-reviewed-grants-in-2015/ NIH: Who Reviewed Grants in 2015] *2016, [http://www.occupycfs.com/2016/02/17/2015-nih-spending-on-mecfs-studies/ 2015 NIH Spending on ME/CFS Studies] Jennie also tracks NIH RFAs (Requests for Applications) which are invitations from the NIH for researchers to submit applications for funding in specific areas.<ref>[http://www.occupycfs.com/tag/rfa-ticker/ RFA Ticker]</ref> To date there have been no RFAs for ME/CFS. The NIH itself also published actual and estimated figures for annual spending for the various diseases.<ref>[https://report.nih.gov/categorical_spending.aspx Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC)]</ref> == ME/CFS awareness == *2017, [https://www.nih.gov/research-training/medical-research-initiatives/mecfs/me-cfs-fibromyalgia-international-awareness-day?utm_content=bufferd6105 May 12 is ME/CFS and Fibromyalgia International Awareness Day] ==Online presence == *[https://www.facebook.com/nih.gov Facebook] *[https://twitter.com/NIH Twitter] *[https://www.instagram.com/nihgov Instagram] *[https://www.youtube.com/user/nihod YouTube] *[https://www.flickr.com/photos/nihgov/ Flickr] *[https://www.nih.gov/ Website] *[http://directorsblog.nih.gov/ NIH Director's blog] *[https://www.nih.gov/news-events/social-media-outreach NIH social media] ==Learn more== *[https://en.wikipedia.org/wiki/National_Institutes_of_Health Wikipedia - National Institutes of Health] *2011, [https://videocast.nih.gov/Summary.asp?File=16477&bhcp=1 Demystifying Medicine - Chronic Fatigue Syndrome: Is there a virus?] *2013, [https://www.youtube.com/watch?v=eZkoKObgvfs&feature=youtu.be Graham McPhee video summary of NIH ME/CFS funding - 5: Money and ME] ([[Graham McPhee]]) *2016, [http://www.occupycfs.com/2016/07/12/rfa-ticker-71116/ RFA Ticker, 7/11/16] *2016, [https://batemanhornecenter.org/nih-charting-course-for-mecfs/ NIH Charting Its Course for ME/CFS] *2016, [http://www.cortjohnson.org/blog/2016/03/10/nih-long-term-effort-chronic-fatigue-syndrome/ NIH Pledges Long Term Effort on Chronic Fatigue] ==See also== *[[National Institutes of Health funding]] *[[Centers for Disease Control]] *[[National Institute of Allergy and Infectious Diseases]] *[[Trans-NIH ME/CFS Working Group]] * [[Francis Collins]] * [[U.S. Department of Health and Human Services]] *[[National Institute of Allergy and Infectious Diseases]] (NIAID) *[[National Institute of Neurological Disorders and Stroke]] (NINDS) ==Learn more == *[https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html Notice of Availability of Administrative Supplements on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)] ==References== {{Reflist}} [[Category:US government agencies]]
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