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National Institute of Neurological Disorders and Stroke
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The '''National Institute of Neurological Disorders and Stroke''' (NINDS) "is a part of the U.S. [[National Institutes of Health]] (NIH). It conducts and funds research on [[brain]] and [[nervous system]] disorders."<ref>[https://en.wikipedia.org/wiki/National_Institute_of_Neurological_Disorders_and_Stroke NINDS - Wikipedia]</ref> [[Walter Koroshetz|Walter J. Koroshetz]], M.D. was selected as director of NINDS in 2011.<ref>http://www.ninds.nih.gov/find_people/ninds/bio_walter_koroshetz.htm</ref> It hosts the NANDS Council Working Group on ME/CFS, chaired by Dr. [[Steve Roberds]]. ==ME/CFS research == On October 29, 2015, the Director of the [[National Institutes of Health]], [[Francis Collins]], announced "launching a research protocol at the NIH Clinical Center to intensely study individuals with ME/CFS and re-invigorating the efforts of the long-standing [[Trans-NIH ME/CFS Research Working Group]] with the National Institute of Neurological Disorders and Stroke (NINDS) as the lead of a multi-institute research effort."<ref>[http://orwh.od.nih.gov/research/me-cfs/index.asp Trans-NIH Working Group]</ref> === NANDS Council Working Group on ME/CFS === In May 2018,<ref name=":0">{{Cite web|url=https://www.ninds.nih.gov/About-NINDS/Who-We-Are/Advisory-Council/ME-CFS-Working-Group | title = NANDSC Working Group for ME/CFS Research {{!}} National Institute of Neurological Disorders and Stroke | website = ninds.nih.gov|access-date=2019-03-31}}</ref> NINDS formed a working group in National Advisory Neurological Disorders and Stroke (NANDS) Council charged with advising the NANDS Council on how best to advance ME/CFS research at NIH. The working group, chaired by Dr. [[Steve Roberds]], held an introductory teleconference in September 2018<ref name=":0" /> and is expected to make its report to the NANDS Council one year later (September 2019).<ref>{{Cite web|url=https://www.ninds.nih.gov/About-NINDS/Who-We-Are/Advisory-Council/ME-CFS-Working-Group-Charge | title = NANDS Council Working Group for ME/CFS Research Charge {{!}} National Institute of Neurological Disorders and Stroke | website = ninds.nih.gov|access-date=2019-03-31}}</ref> In March 2019, the working group opened a [https://www.ninds.nih.gov/RFI-NANDS-ME-CFS public comment period] to run from March 15, 2019 to May 1, 2019 seeking input. All stakeholders--"researchers, health care providers, individuals with ME/CFS, patient advocates and health advocacy organizations, scientific or professional organizations, federal agencies, as well as other interested members of the public"--are invited to submit comments, which can be done anonymously if preferred.<ref>{{Cite web|url=https://www.ninds.nih.gov/RFI-NANDS-ME-CFS | title = Request for Information: Soliciting Input on How Best to Advance Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research {{!}} National Institute of Neurological Disorders and Stroke | website = ninds.nih.gov|access-date=2019-03-31}}</ref> Members of the working group are: ==== Chair ==== Steven Roberds, Ph.D., Tuberous Sclerosis Alliance, National Advisory Neurological Disorders and Stroke Council member ==== Members ==== [[Armin Alaedini]], Ph.D., Columbia University<br>[[Lucinda Bateman]], M.D., Bateman Horne Center<br>[[Jennifer Brea]], [[The MEAction Network|MEAction]] (Alternate for Jennifer Brea: [[Rochelle Joslyn]], Ph.D., MEAction)<br>[[Dane Cook]], Ph.D., University of Wisconsin<br>[[Carol Head]], [[Solve ME/CFS Initiative]]<br>[[Anthony Komaroff]], M.D., Brigham & Womenโs Hospital<br>[[Amrit Shahzad]], MBBS, MBA, University of California, San Diego<br>[[Steven Schutzer]], M.D., Rutgers New Jersey Medical School<br> ==== Ex Officio Members ==== [[Elizabeth Unger]], M.D., Ph.D., Center for Disease Control and Prevention<br> [[Joseph Breen]], Ph.D., NIH/[[NIAID]]<br> [[Vicky Whittemore]], Ph.D., NIH/NINDS<br> ==== Executive Secretary ==== [[Andrew Breeden]], Ph.D., NIH/NINDS ==CFSAC== The [[NIH]] sends a member of NINDS to the [[Health and Human Services]] (HHS) [[Chronic Fatigue Syndrome Advisory Committee]] (CFSAC) meetings until HHS dissolved the committee in 2018. [[Vicky Whittemore|Vicky Holets Whittemore,]] PhD, was serving as the NINDS representative to CFSAC when it was dissolved.<ref>https://www.hhs.gov/ash/advisory-committees/cfsac/about-cfsac/roster/index.html</ref> == References == [[Category:Research initiatives]] {{Reflist}} [[Category:American research initiatives]] [[Category:US government agencies]] == External links == * [http://www.ninds.nih.gov/?AspxAutoDetectCookieSupport=1 www.ninds.nih.gov/]
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