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NICE guidelines
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====Forward-ME response ==== Forward-ME welcomed the new guideline and highlighted the introduction of [[energy management]] as a new treatment approach in the NICE guideline, including [[pacing]], and the significant improvements made to child safeguarding, stating that "some parents of children with ME have been subjected to inappropriate child protection orders, and threatened with the removal of their children, in the belief that the parents had caused a [[Fabricated Induced Illness|‘fabricated or induced illness’]]." Forward-ME started that "the recommendations on ‘Energy Management’ will also help people with [[Long COVID|LongCovid]] who experience [[Post-exertional malaise|Post-Exertional Malaise]] (PEM), many of whom have reported that [[graded exercise therapy|‘Graded Exercise Therapy’]] worsened their condition, and their symptoms were dismissed as anxiety."<br />"This recommendation is a clear break from the past. Previously, people with ME were offered ‘Graded Exercise Therapy’ (GET), based on a hypothesis that they were [[deconditioning|deconditioned]]. NICE found the evidence for this to be poor quality, and many people with ME reported that GET caused serious harm. The new guideline on ME/CFS was due to be published in August, but NICE ‘paused’ the release following intervention from some clinicians. After a round-table with representatives from the ‘Royal Colleges’ and ME charities, NICE is now confident that the guideline can be fully implemented."<ref name="fwdmepub">{{Cite web|url=https://forward-me.co.uk/news-updates/ | title = NEW NICE GUIDELINES ON ME: FORWARD-ME STATEMENT & MEDIA SUPPORT - Oct 29th 2021 | date =Oct 29, 2021 | last = Forward-ME | authorlink = Forward-ME|access-date=2021-10-29}}</ref><ref name="fwdme-improved">{{Cite web|url=https://forward-me.co.uk/news-updates/ | title = NICE Publishes new Guideline on ME/CFS, driving major improvements in care | date = Oct 29, 2021 | last = Forward-ME | authorlink = Forward-ME|access-date=2021-10-29}}</ref>
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