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MillionsMissing Deutschland
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[[File:MillionsMissing Germany.png|thumb|Protest in Berlin 2019 – more at millionsmissing.de]] '''MillionsMissing Deutschland''' (MillionsMissing Germany) was founded in 2018.<ref>{{Cite web|url=https://www.millionsmissing.de/über-mmd/ | title = Über #MillionsMissing Deutschland|website=#MillionsMissing Deutschland|language=de-DE|access-date=2019-07-21}}</ref> It's a [[Germany|German]] affiliate group of [[The MEAction Network]] and partner of the [[Deutsche Gesellschaft für ME/CFS|German Association for ME/CFS]]. MillionsMissing Germany is run by a network of dedicated volunteers. ==Aims== Its aim is to work towards health equity for people with [[Myalgic encephalomyelitis|Myalgic Encephalomyelitis]] (ME).<ref>{{Cite web|url=https://www.millionsmissing.de/über-mmd/ | title = Über #MillionsMissing Deutschland|website=#MillionsMissing Deutschland|language=de-DE|access-date=2019-07-21}}</ref> ==Events== In May 2018 MillionsMissing Germany organized [[Millions Missing protests|#MillionsMissing protests]] in Berlin and Gütersloh and supported a third one, hosted by the [[Lost Voices Stiftung|Lost Voices Foundation]] in Hannover.<ref>{{Cite web|url=https://www.millionsmissing.de/2018/07/13/internationaler-me-cfs-tag-am-12-05-2018-millionsmissing/ | title = Internationaler ME/CFS Tag am 12.05.2018 – #MillionsMissing | date = 2018-05-12 | website = #MillionsMissing Deutschland|language=de-DE|access-date=2019-07-21}}</ref> In May 2019 MillionsMissing Germany organized #MillionsMissing protests in Berlin, Munich and Halle (Saale). Later that month a protest in front of the German Bundestag (national parliament) took place.<ref>{{Cite web|url=https://www.millionsmissing.de/2019/05/20/70-jahre-grundgesetz-art-1-die-w%C3%BCrde-des-menschen-ist-unantastbar/ | title = 70 Jahre Grundgesetz – Art. 1: »Die Würde des Menschen ist unantastbar.« | date = 2019-05-20 | website = #MillionsMissing Deutschland|language=de-DE|access-date=2019-07-22}}</ref> MillionsMissing Germany organized a Kudoboard for the health policy spokeswoman of the Green Party Maria Klein-Schmeink, who made an inquiry about ME/CFS in the Bundestag. [https://www.kudoboard.com/boards/4YSSVj1y?fbclid=IwAR1J3s3sAkjBDNqpBsidJoYrJqexVbOtROPvHVdn2VE6EONKY_5l6cNNNh4 The Kudoboard] contained over 150 messages from pwME and was presented in printed form in the Bundestag.<ref>{{Cite web|url=https://www.klein-schmeink.de/aktuelles/meldung/treffen-mit-me-cfs-betroffenen-in-berlin | title = Treffen mit ME/CFS-Betroffenen in Berlin|website=Maria Klein-Schmeink|language=de-DE|access-date=2020-07-07}}</ref> Together with the German Association for ME/CFS and MP Martina Stamm-Fibich, MillionsMissing Germany organized the first Parliamentary Expert Discussion on ME/CFS in the Bundestag in March 2020.<ref>{{Cite web | title = Erstes Parlamentarisches Fachgespräch über ME/CFS im Bundestag | url =https://www.mecfs.de/parlament-fachgespraech/|website=Deutsche Gesellschaft für ME/CFS | date = 2020-03-07|access-date=2020-07-07}}</ref> Due to the corona crisis in 2020, MillionsMissing Germany had to cancel the #MillionsMissing visibility actions in nine cities and organized a postcard campaign to health minister Jens Spahn and other politicians instead.<ref>{{Cite web|url=https://www.millionsmissing.de/2020/05/01/jens-spahn-sie-haben-post/ | title = »Jens Spahn, Sie haben Post !« | date = 2020-05-01 | website = #MillionsMissing Deutschland|language=de-DE|access-date=2020-07-07}}</ref> MillionsMissing Germany organizes screenings of the documentary [[Unrest]] together with the German Association for ME/CFS. ==Interviews and articles== * May 2020, Tagesspiegel: [https://www.tagesspiegel.de/politik/chronisches-fatigue-syndrom-me-cfs-jens-spahn-sie-haben-post/25820834.html "Jens Spahn, Sie haben Post!"]<ref>{{Cite web|url=https://www.tagesspiegel.de/politik/chronisches-fatigue-syndrom-me-cfs-jens-spahn-sie-haben-post/25820834.html | title = „Jens Spahn, Sie haben Post!“ | website = tagesspiegel.de|language=de|access-date=2020-07-07}}</ref> * May 2019, [https://www.millionsmissing.de/2019/05/29/berichterstattung-%C3%BCber-me-cfs-rund-um-den-12-mai/ List of media reports about the #MillionsMissing events in Germany] * June 2018, BR: [https://www.br.de/themen/wissen/me-cfs-myalgische-enzephalomyelitis-erschoepfungssyndrom-chronisch-mecfs-grippe-krank-108.html "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht"]<ref>{{Cite news | url=https://www.br.de/themen/wissen/me-cfs-myalgische-enzephalomyelitis-erschoepfungssyndrom-chronisch-mecfs-grippe-krank-108.html | title = Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht {{!}} | last = | first = | date = 2018-06-26|access-date=2018-08-16|language=|work=Bayerischer Rundfunk|archive-url=|archive-date=|url-status=}}</ref> * May 2018, rbb: [https://www.youtube.com/watch?v=TD-wW3Q9rJg "Chronisches Erschöpfungssyndrom anerkennen"] ==Videos== * May 2020, [https://www.youtube.com/watch?v=lqQsmoa6vbY MillionsMissing Germany Trailer 2020] * August 2019, [https://www.youtube.com/watch?v=qM-BTK80lk8 "Eine Krankheit im Verborgenen"] * May 2019, [https://www.youtube.com/watch?v=FweKtoclHAs Protest in front of the German Bundestag] * May 2019, #MillionsMissing visibility actions in [https://www.youtube.com/watch?v=BSBmHW3YKeM&list=PLhGOtt957iy0uxFlXCfsIju-lRrsKF_6K Berlin], [https://www.youtube.com/watch?v=35bDFP0qgcg&list=PLhGOtt957iy3IEvGkE2mQZxcDyWWYSWz9 Halle] and [https://www.youtube.com/watch?v=1ZoTbCTZ1X0&list=PLhGOtt957iy3mQKg4upWhKKL1LYJqNCZ1 Munich] * May 2019, [https://www.youtube.com/watch?v=TbvWKNCavTU MillionsMissing Germany Trailer 2019] * May 2018, #MillionsMissing visibility actions in [https://www.youtube.com/watch?v=PhOOZbqSrIQ&list=PLhGOtt957iy1A4HC_fXnMIHX4wYZUp964 Berlin] and [https://www.youtube.com/watch?v=PrIDZf3JLTE&list=PLhGOtt957iy30ElZr1M6W1eYa8Y9ZvJ4s Gütersloh] ==Photos== * May 2019, [https://www.facebook.com/pg/mmissinggermany/photos/?tab=album&album_id=2115237398774337&__xts__%5B0%5D=68.ARDE0CFHezf539hKtdQRmy1842IYniMjPrdZWVTMTIR0R7gJRZFCgN4CorMBRf8SvX_Q0XofqmTnExbcbdA4dP_R0bL22xzYonRm4KLoTs6oQ9FTZLF-uk2ZMSMh8lESK7XjzssnknAGfHiiaHdNp7L8VhUSorgV7787VV92pKkDtSiAxYspSi_mEqGx8ezOcE5nGmt_JdhBeT89LEepzNHZX1OmKc0_Ah41CNHbJnsfKMZFYaTacue_IeNV7w5_IgvhftYexaE45JA8yoW-gLebO-ZWTFOuAlK_yfV23g80NyK7K3MhtOY5gSn_rxOYRHjqV3Xqbv-SDclcqvHRaGDhB5ZMgOrt5w2ULXtCIlR0DOlj8Z58l1TLhzxcDVDYn6Z2CrpeunCn2JMHgLJchJxg9zZvX_P3IDRdGJDhE_A7nqwW70HKC7Q7tUv5y69i7Z3Fmtppdnb0Igoe9f9IdHnHER5Y7D3OcZ2m_HYFVl_ltMh0O569VxwpId13oNK8OhE_9XiwyYAzmDoCfNavSc3w1YEBolrqz28tO7JnuOKtKoQmf3JsFOOoxnHNNUJNml6ctONTWSIacUE01yjGLQ_6ahC2y5sE5bzH9BurfRpdqUpOyKkFxqYmuFclRwsLcpYex8kE2rQr2rFiIlLppxB-bh_J4fBiq9UF1wMN6gl5pWMou1UTA0xj2s-P5NlkI_XquXThNjLb1IS7DrpPUBDTs2G4KWLLLp8uHo0Ex883MUl5bVkN-X4UJAhWG-GKA0hW_eMUVtuo7rpbx2drMo9jIRvqZ9IqgHG8MN4RLlQAROoLLL97KEM_56V7ac5qWiph9FfixWwstzjhh14XIZRcY-y2esdjiw6HuDQhegrVkMKxt-rj7eQVa2Y&__tn__=-UC-R Protest in front of the German Bundestag] * May 2019, [https://meaction.smugmug.com/MillionsMissing-2019/Europe/Germany #MillionsMissing visibility actions in Berlin, Munich and Halle] * May 2018, #MillionsMissing visibility actions in [https://meaction.smugmug.com/MillionsMissing-2018/Europe/Berlin/ Berlin], [https://meaction.smugmug.com/MillionsMissing-2018/Europe/G%C3%BCtersloh Gütersloh] and [https://meaction.smugmug.com/MillionsMissing-2018/Europe/Hannover Hannover] * Ongoing campaign: [https://www.facebook.com/pg/mmissinggermany/photos/?tab=album&album_id=1867275806903832 "Ich will mein Leben zurück"] (I want my life back) ==Online presence== * [https://www.millionsmissing.de Website] * [https://www.facebook.com/mmissinggermany/ Facebook page] * [https://www.facebook.com/groups/MEActionDeutschland/ Facebook group] * [https://twitter.com/MMissingGermany Twitter] * [https://www.youtube.com/channel/UCEaUZZDxY72llnlHmpZ2dJg/videos YouTube channel] * [https://www.instagram.com/mmissinggermany/?hl=de Instagram] * [https://www.flickr.com/photos/millionsmissingdeutschland/ flickr] ==See also== * [[Millions Missing protests|#MillionsMissing protests]] * [[Deutsche Gesellschaft für ME/CFS|German Association for ME/CFS]] * [[Lost Voices Stiftung|Lost Voices Foundation]] == References == {{Reflist}} [[Category:Patient groups]] [[Category:German patient groups]] [[Category:Advocacy and fundraising initiatives]] [[Category:Protests]]
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