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Massachusetts ME/CFS & FM Association
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The '''Massachusetts ME/CFS & FM Association''' is a 501c3 non-profit organization founded in 1985. They support patients with [[ME/CFS]] and [[Fibromyalgia]] and their families and advocate for more effective treatment and research, as well as, work to educate health-care providers and the general public regarding these often severely-disabling physical illnesses.<ref>https://www.masscfids.org/</ref> It is one of the oldest voluntary associations in the United States for patients with [[Myalgic Encephalomyelitis]] (ME), [[Chronic Fatigue Syndrome]] (CFS or CFIDS) and [[Fibromyalgia]] (FM). Bonnie Gorman, RN founded the group.<ref>https://www.masscfids.org/history-of-our-association</ref> Resources available throught their website are: [https://www.masscfids.org/images/pdf/Primer_2014.pdf Downloadable copy of IACFS/ME Primer - 2014 Edition] [https://www.masscfids.org/disability-handbook The Massachusetts CFIDS/ME & FM Disability Handbook]; a [https://www.masscfids.org/newsletter Newsletter]; a designated phone line for patient's questions; a Support Group Leaders Operational Manual; and links to educational videos and websites. The association frequently works with the [[Chronic Fatigue Syndrome Advisory Committee]], the committee that advises [[Health and Human Services]] regarding [[ME/CFS]], often having a member of the Massachusetts ME/CFS & FM Association as a committee member or by providing testimony. == Name change == "Legally named Massachusetts C. F. I. D. S. Association, the organization has updated its “doing business as” name periodically, adding Fibromyalgia (“& FM”) in the early 1990s, changing “CFIDS” to “CFIDS/ME” in 2008, and “CFIDS/ME” to “ME/CFS” in 2018."<ref>[https://www.massmecfs.org/history-of-our-association History of the Association - Massachusetts ME/CFS & FM Association]</ref> ==Contact info== :P.O. Box 690305 :Quincy, MA 02269 :Info Line: 617-471-5559 ==Talks and interviews== *Mar 29, 2017, [https://www.youtube.com/watch?v=cOEed2Gu-l4 Episode 86 - The work of the Massachusetts CFIDS/ME & FM Association] by [[ME/CFS Alert]] with [[Charmian Proskauer]] ==Online presence== *[https://www.facebook.com/pages/Massachusetts-CFIDS-ME-FM-Association/1417893258457858 Facebook] *[https://www.masscfids.org/ Website] ==See also== *[[Charmian Proskauer]] *[[Donna Pearson]] ==References== {{Reflist}} [[Category:Patient groups]] [[Category:American patient groups]]
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