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Mary Schweitzer
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{{NeedsImage}} '''Mary M. Schweitzer''', PhD, is an advocate who has been living with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) since 1994.<ref>[http://slightlyalive.blogspot.com/2015/11/my-20-years-with-myalgic.html My 20 years with Myalgic Encephalomyelitis]</ref> She stated in a written testimony to [[Chronic Fatigue Syndrome Advisory Committee]] ([[CFSAC]]): "I first collapsed with 'chronic fatigue syndrome' on October 24, 1994 (although I probably already had it when an outbreak of Epstein-Barr swept Villanova, where I was a professor, in the fall of 1990)".<ref>http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer_1009.pdf</ref> She has been receiving [[Ampligen]] since 1999. After a period where she stopped [[Ampligen]], she had a severe relapse, making her committed to never voluntarily going off [[Ampligen]] again.<ref>http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer_1009.pdf</ref><ref>[https://twitter.com/SlightlyAlive94 Twitter - Mary Schweitzer]</ref> Currently she is in the [[Ampligen]] trial with Dr. [[Daniel Peterson]] in Incline Village. Mary blogs at [http://slightlyalive.blogspot.co.uk/ ''Slightly Alive'']. ==Open Letter== [http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html Open Letter to Dr. Sanjay] ==Talks and interviews== *2011, [https://www.youtube.com/watch?v=TnBvAOEtU4A ME/CFS Alert Episode 14 - Patient Perspectives: Mary Schweitzer] *2014, [https://www.youtube.com/watch?v=R8W1YfO3t6Q Comments before the IOM committee] ==HHS/CFSAC Testimony== *May 2007, [https://wayback.archive-it.org/3919/20140324194852/http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer2.pdf Written Testimony CFSAC meeting] *May 2009, [https://wayback.archive-it.org/3919/20140324194759/http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer_0509.pdf Written Testimony CFSAC meeting] *Oct 2009, [http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer_1009.pdf Written Testimony CFSAC meeting] *May, 2011, [https://wayback.archive-it.org/3919/20140324193531/http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201105_schweitzer.pdf Written Testimony CFSAC meeting] *Nov, 2011, [http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_schweitzer.pdf Public Testimony CFSAC meeting] *Jun, 2012, [http://www.hhs.gov/advcomcfs/meetings/presentations/schweitzer_061312_.pdf Public Testimony for Jun 2012 CFSAC meeting] *Jan, 2015, [http://www.hhs.gov/advcomcfs/meetings/2015-01-public-comment-mary-schweitzer.pdf Public Testimony CFSAC meeting] ==Online presence== *[https://twitter.com/SlightlyAlive94 Twitter] *[http://slightlyalive.blogspot.co.uk/ Slightly Alive Blog] *[http://www.cfids-me.org/marys/essays.html Life with ME/CFS, Essays by Mary Schweitzer] ==Learn more== *2016, [https://slightlyalive.blogspot.co.uk/2016/08/my-22-years-with-myalgic_8.html My 22 years with Myalgic Encephalomyelitis] ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]][[Category:American advocates or allies]]
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