Mary Dimmock: Difference between revisions
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*2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group and | *2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group, the Neuroendocrine Working Group, and the Immune Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control & Prevention]].<ref>https://www.commondataelements.ninds.nih.gov/ReportViewer.aspx?%2fnindscdereports%2fRoster&rs%3aCommand=Render&rc:Parameters=false&diseaseid=MECFS&custom:disableExcel=true&custom:disableXML=true&custom:disableCSV=true</ref> | ||
*2018 - served on the Clinical Trials and Treatment Working Group of the [[Chronic Fatigue Syndrome Advisory Committee]], sponsored by the US [[Health and Human Services]] Department. | *2018 - served on the Clinical Trials and Treatment Working Group of the [[Chronic Fatigue Syndrome Advisory Committee]], sponsored by the US [[Health and Human Services]] Department. | ||
Revision as of 14:07, June 23, 2018
Mary Dimmock worked in the pharmaceutical industry but became a patient advocate after her son, Matthew Lazell-Fairman, became sick in 2010.[1][2] Her advocacy work includes: authoring papers on the history,[3] the disease burden,[4] and common data elements for research of ME/CFS;[5] participating in government committees; and public speaking.
Thirty Years of Disdain[edit | edit source]
In 2015, Dimmock wrote an extensively referenced advocacy paper with her son, Matthew Lazell-Fairman, titled Thirty Years of Disdain: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis, which documents the history and the politics of ME since the 1980s, with a particular focus on how the US Health and Human Services and a group of British psychiatrists have mishandled the disease.[6]
Studies[edit | edit source]
- 2016, Estimating the disease burden of ME/CFS in the United States and its relation to research funding[4] (Full Text)
- 2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials[5] (Full Text)
Committees[edit | edit source]
- 2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group, the Neuroendocrine Working Group, and the Immune Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control & Prevention.[7]
- 2018 - served on the Clinical Trials and Treatment Working Group of the Chronic Fatigue Syndrome Advisory Committee, sponsored by the US Health and Human Services Department.
Talks & interviews[edit | edit source]
- Jan 2014, Mary Dimmock Comments to IOM Committee
- 2015, White House Chronicle, 7044 - Llewellyn King interviews Mary Dimmock
- 2016, ME/CFS Alert Episode 78 - Mary Dimmock
HHS/CFSAC Testimony[edit | edit source]
- CFSAC Public Testimony at Nov 2011 CFSAC Meeting
- CFSAC Public Testimony at May 2013 CFSAC Meeting
- CFSAC Public Testimony at Dec 2013 CFSAC Meeting
- CFSAC Public Testimony at Jun 2014 CFSAC Meeting
- CFSAC Public Testimony at Dec 2014 CFSAC Meeting
- CFSAC Public Testimony at May 2016 CFSAC Meeting
Online presence[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- ↑ Facebook biography
- ↑ http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_dimmock.pdf
- ↑ https://www.dropbox.com/s/bycueauxmh49z4l/Thirty%20Years%20of%20Disdain%20-%20Background.pdf?dl=0
- ↑ 4.0 4.1 Dimmock, Mary E.; Mirin, Arthur A.; Jason, Leonard A. (2016), "Estimating the disease burden of ME/CFS in the United States and its relation to research funding", Journal of Medical Therapy, doi:10.15761/JMT.1000102
- ↑ 5.0 5.1 Cella, David; Dimmock, Mary; Friedberg, Fred; Lin, Jin-Mann Sally; Nacul, Luis; Saligan, Leorey (December 2017), NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials (PDF)
- ↑ https://www.dropbox.com/s/bycueauxmh49z4l/Thirty%20Years%20of%20Disdain%20-%20Background.pdf?dl=0
- ↑ https://www.commondataelements.ninds.nih.gov/ReportViewer.aspx?%2fnindscdereports%2fRoster&rs%3aCommand=Render&rc:Parameters=false&diseaseid=MECFS&custom:disableExcel=true&custom:disableXML=true&custom:disableCSV=true