Mary Dimmock: Difference between revisions

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==Committees==
==Committees==
*2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group and Neuroendocrine Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control & Prevention]].<ref>https://www.commondataelements.ninds.nih.gov/ReportViewer.aspx?%2fnindscdereports%2fRoster&rs%3aCommand=Render&rc:Parameters=false&diseaseid=MECFS&custom:disableExcel=true&custom:disableXML=true&custom:disableCSV=true</ref>
*2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group, the Neuroendocrine Working Group, and the Immune Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control & Prevention]].<ref>https://www.commondataelements.ninds.nih.gov/ReportViewer.aspx?%2fnindscdereports%2fRoster&rs%3aCommand=Render&rc:Parameters=false&diseaseid=MECFS&custom:disableExcel=true&custom:disableXML=true&custom:disableCSV=true</ref>
*2018 - served on the Clinical Trials and Treatment Working Group of the [[Chronic Fatigue Syndrome Advisory Committee]], sponsored by the US [[Health and Human Services]] Department.
*2018 - served on the Clinical Trials and Treatment Working Group of the [[Chronic Fatigue Syndrome Advisory Committee]], sponsored by the US [[Health and Human Services]] Department.



Revision as of 14:07, June 23, 2018

Source: healthrising.org

Mary Dimmock worked in the pharmaceutical industry but became a patient advocate after her son, Matthew Lazell-Fairman, became sick in 2010.[1][2] Her advocacy work includes: authoring papers on the history,[3] the disease burden,[4] and common data elements for research of ME/CFS;[5] participating in government committees; and public speaking.

Thirty Years of Disdain[edit | edit source]

In 2015, Dimmock wrote an extensively referenced advocacy paper with her son, Matthew Lazell-Fairman, titled Thirty Years of Disdain: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis, which documents the history and the politics of ME since the 1980s, with a particular focus on how the US Health and Human Services and a group of British psychiatrists have mishandled the disease.[6]

Studies[edit | edit source]

  • 2016, Estimating the disease burden of ME/CFS in the United States and its relation to research funding[4] (Full Text)
  • 2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials[5] (Full Text)

Committees[edit | edit source]

Talks & interviews[edit | edit source]

HHS/CFSAC Testimony[edit | edit source]

Online presence[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]