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Mary Dimmock
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[[File:Mary Dimmock .png|right|Source: healthrising.org]] '''Mary Dimmock''' worked in the pharmaceutical industry until becoming a patient advocate after her son, Matthew Lazell-Fairman developed ME/CFS in 2010.<ref>{{Cite web|url=https://www.facebook.com/mary.dimmock/posts/10206719425646942 | title = Mary Dimmock | website = facebook.com|language=en|access-date=2020-12-06}}</ref><ref>http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_dimmock.pdf</ref> Her advocacy work includes: authoring papers on the history,<ref name=":0">{{Cite web|url=https://www.dropbox.com/s/bycueauxmh49z4l/Thirty%20Years%20of%20Disdain%20-%20Background.pdf?dl=0 | title = Thirty Years of Disdain - Background.pdf | website=Dropbox|language=en|access-date=2020-12-06}}</ref> the disease burden,<ref name=":1">{{Cite journal | last = Dimmock|first = Mary E. | authorlink = Mary Dimmock | last2 = Mirin | first2 = Arthur A. | authorlink2 = | last3 = Jason | first3 = Leonard A. | authorlink3 = Leonard Jason | date = 2016 | title=Estimating the disease burden of ME/CFS in the United States and its relation to research funding | url =http://oatext.com/Estimating-the-disease-burden-of-MECFS-in-the-United-States-and-its-relation-to-research-funding.php|journal=Journal of Medicine and Therapeutics|volume=1|issue=1|pages=|doi=10.15761/JMT.1000102|pmc=|pmid=|access-date=|quote=|via=}}</ref> and common data elements for research of [[ME/CFS]];<ref name=":2" /> participating in government committees; and public speaking. ==''Thirty Years of Disdain''== In 2015, Dimmock wrote an extensively referenced advocacy paper with her son, [[Matthew Lazell-Fairman]], titled ''[[Thirty Years of Disdain]]: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis,'' which documents the history and the politics of [[myalgic encephalomyelitis|ME]] since the 1980s, with a particular focus on how the US [[Health and Human Services]] (HHS) and [[Wessely school|a group of British psychiatrists]] led by [[Simon Wessely]] have mishandled the disease.<ref name=":0" /> ==Studies and articles== *2016, Estimating the disease burden of [[ME/CFS]] in the [[United States]] and its relation to research [[National Institutes of Health funding|funding]]<ref name=":1" /> [https://oatext.com/Estimating-the-disease-burden-of-MECFS-in-the-United-States-and-its-relation-to-research-funding.php (Full Text)] *2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials<ref name="Common Data Elements, 2017">{{Citation | last1 = Cella | first1 = David | authorlink = David Cella | last2 = Dimmock | first2 = Mary | authorlink2 = Mary Dimmock | last3 = Friedberg | first3 = Fred | authorlink3 = Fred Friedberg | last4 = Lin | first4 = Jin-Mann Sally | authorlink4 = Jin-Mann Sally Lin | last5 = Nacul | first5 = Luis | authorlink5 = Luis Nacul | last6 = Saligan | first6 = Leorey | authorlink6 = Leorey Saligan | title = NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials | date = Dec 2017|url=https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf}}</ref> - [https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf (Full Text)] *2018, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: What Every Family Physician Needs to Know<ref name="FamilyDoctor2018">{{Cite journal | last = Dimmock | first = Mary | author-link = Mary Dimmock | last2 = Devine | first2 = Susan | authorlink2 = Susan Levine | last3 = Wilder | first3 = Terri L | authorlink3 = Terri Wilder | date = Winter 2018 | title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: What Every Family Physician Needs to Know | url = http://solvecfs.org/wp-content/uploads/2018/02/Family-Physician-Winter-2018-MECFS.pdf | journal=Family Doctor: A Journal of the New York State Academy of Family Physicians|volume=6|issue=3| pages = 23-25 |quote=|via=}}</ref> [http://solvecfs.org/wp-content/uploads/2018/02/Family-Physician-Winter-2018-MECFS.pdf (Full text)] *2021, Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref>{{Cite journal | title = Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2021-10-06|url=https://doi.org/10.3390/healthcare9101331|journal=Healthcare|volume=9|issue=10|pages=1331 | last = Montoya | first = Jose | authorlink = Jose Montoya | last2 = Dowell | first2 = Theresa | authorlink2 = | last3 = Mooney | first3 = Amy | authorlink3 = | last4 = Dimmock | first4 = Mary | authorlink4 = Mary Dimmock | last5 = Chu | first5 = Lily | authorlink5 = Lily Chu|doi=10.3390/healthcare9101331|pmc=PMC8544443|pmid=34683011|access-date=|issn=2227-9032|quote=|via=}}</ref> [https://doi.org/10.3390/healthcare9101331 (Full text)] ==Committees== *2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group, the Neuroendocrine Working Group, and the Immune Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] (NINDS) and the [[Centers for Disease Control and Prevention]] (CDC).<ref name=":2">{{Cite web|url=https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome#pane-138 | title = Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster | last = | first = | authorlink = | date = | website = NIH|archive-url=|archive-date=|url-status=|access-date=2019-10-11}}</ref> *2018 - served on the Clinical Trials and Treatment Working Group of the [[Chronic Fatigue Syndrome Advisory Committee]] (CFSAC), sponsored by the US [[Health and Human Services]] (HHS) Department. ==Talks and interviews== *Jan 2014, [https://www.youtube.com/watch?v=7ZiQsMOTHWA Public Comment 3] Mary Dimmock Comments to [[Institute of Medicine]] (IOM) Committee. *2015, [https://www.youtube.com/watch?v=f7mFjo39xQQ Chronic Fatigue Syndrome - A Disease Looking for Doctors and Researchers - WHC 7044 (Full Episode)] [[Llewellyn King]] interviews Mary Dimmock. *2016, [https://www.youtube.com/watch?v=q2c1kstA8pY Episode 78 - Mary Dimmock] via [[ME/CFS Alert]]. ==HHS/CFSAC Testimony== *[http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_dimmock.pdf CFSAC Public Testimony at Nov 2011 CFSAC Meeting] *[https://thoughtsaboutme.com/2013/05/23/mary-dimmocks-may-2013-cfsac-testimony/ CFSAC Public Testimony at May 2013 CFSAC Meeting] *[https://wayback.archive-it.org/3919/20140324193131/http://www.hhs.gov/advcomcfs/meetings/presentations/mary-dimmock.pdf CFSAC Public Testimony at Dec 2013 CFSAC Meeting] *[http://www.hhs.gov/advcomcfs/meetings/presentations/0614-mary-dimmock.pdf CFSAC Public Testimony at Jun 2014 CFSAC Meeting] *[http://www.hhs.gov/advcomcfs/meetings/presentations/1214-mary-dimmock.pdf CFSAC Public Testimony at Dec 2014 CFSAC Meeting] *[http://www.hhs.gov/advcomcfs/meetings/presentations/2016-cfsac-dimmock-testimony.pdf CFSAC Public Testimony at May 2016 CFSAC Meeting] ==Online presence== *[https://twitter.com/marydimmock Twitter] *[https://www.facebook.com/mary.dimmock Facebook] *[https://www.linkedin.com/in/mary-dimmock-1a4a072 LinkedIn] *[https://www.youtube.com/user/medct1 YouTube] ==Learn more== *2016, [http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously Is chronic fatigue syndrome finally being taken seriously?] ==References== {{reflist}} [[Category:Advocates or allies]] [[Category:American advocates or allies]] [[Category:Authors]]
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