Marjorie van de Sande

Marjorie I. van de Sande, BEd, GradDipEd, is an educator, author and advocate who lives with myalgic encephalomyelitis (ME) and fibromyalgia (FM). She was the Director for Alberta and the Director of Education for the Canadian National ME/FM Action Network from 1995 – 2004 and then an advisor and editor/webmaster until 2010.

She co-authored several case definitions and guidelines with Dr. Bruce Carruthers and the Canadian and International Expert Consensus Panels:

• 2012 - Myalgic Encephalomyelitis- Adult & Paediatric, International Consensus Primer for Medical Practitioners Bruce M Carruthers & Marjorie I van de Sande (editor) with the International Consensus Panel
• 2011 - Myalgic encephalomyelitis: International Consensus Criteria Carruthers BM, van de Sande MI, De Meirleir KL, Klimas DG, Broderick G, Mitchell T, Staines D, Powles ACP, Speight N, Vallings R, Bateman L, Baumbarten-Austrheim B, Bell DS, Carlo-Stella N, Chia J, et al. 2011
• 2005 - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A clinical Case Definition and Guidelines for Medical Practitioners. An Overview of the Canadian Consensus Document
• 2005 - Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners. An Overview of the Canadian Consensus Document Bruce M Carruthers & Marjorie I van de Sande
• 2003 - Canadian Consensus Criteria for Myalgic Encephalomyelitis, published as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols
• 2003 - Fibromyalgia Syndrome: Canadian Clinical Working Case Definition, Diagnostic and Treatment Protocols - A Consensus
• 2002, 2005 - Teach ME - A Sourcebook for Teachers of Young People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS), Chapters 1 & 2 - MI van de Sande & BM Carruthers

Articles

• 2011, Re-inventing ‘CFS’- the International Consensus Criteria for ME: the Marjorie Van de Sande Interview

See Also

Bruce Carruthers

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.