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ME activists and advocates
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==Patient advocates and activists== {{See also|List of open letters from patient advocates and advocacy organizations|Open letters from patient advocates and organizations}} Notable patient activists with ME or CFS. *[[Jennifer Brea|Jen Brea]], director of [[Unrest]], co-founder of the [[The MEAction Network|#MEAction Network]] *[[Robin Brown]], retired NHS doctor and founder of [[Doctors with M.E.]], author, and creator of a major UK treatment petition, also involved in training doctors *[[Robert Courtney]] (deceased), citizen scientist and who proved that the [[Cochrane]] review of exercise for CFS failed to meet Cochrane's own standards *[[Keith Geraghty]], psychologist, researcher and activist who has investigated if ME charities are militant *[[Ellen Goudsmit]], psychologist and former patron of several ME charities *[[Tanya Harrison]], [[BRAME]] charity founder, resigned from the 2007 [[NICE guidelines]] group because she could not support the controversial guidelines they developed *[[Cort Johnson]], founder of both [[Phoenix Rising]] and [[Health Rising]], has won several awards for advocacy, blogs about science and research *[[Tom Kindlon]], citizen scientist from [[Ireland]] and extremely well known ME advocate *[[Alem Matthees]], citizen scientist from Australia who fought and won a tribunal for the release of the [[PACE trial]] data despite being too ill to attend. He is now very severely ill. *[[Courtney Miller]], member of the Board of Directors and an online writer at [[Simmaron Research]] *[[Nina Muirhead]], NHS surgeon who has done a number of media interviews and is involved in training doctors and [[Doctors with M.E.]] *[[Graham McPhee]] (deceased), former teacher who campaigned against [[graded exercise therapy]] and for the UK's [[NICE guidelines]] to be reviewed, but died shortly before the new guidelines were published *[[John Peters]], [[PACE trial]] critic from [[Wales]] and originator of a number of [[Freedom of Information Act]] requests, friend of [[Ben Lake]] MP *[[Ryan Prior]], journalist, co-director of the documentary [[Forgotten Plague]], founder of [[The Blue Ribbon Foundation]] and associate producer at CNN<ref>{{Cite web|url=https://www.linkedin.com/in/ryantprior | title = Ryan Prior - Journalist at CNN/Co-Director of "Forgotten Plague" | last = Prior | first = Ryan | authorlink=Ryan Prior | date = |website=LinkedIn|archive-url=|archive-date=|url-status=|access-date=}}</ref> *[[Julie Rehmeyer]], US math/science journalist, [[:Category:PACE trial critics|PACE trial critic]] and author of memoir about living with ME/CFS *[[Rivka Solomon]], writer and organizer in the U.S.; she was a lead organizer in some of the largest in-person events ever held for ME *[[Frank Twisk|Frank N. M. Twisk]], [[Stichting ME-de-patiënten|ME-de-patiënten Foundation]], an outspoken Dutch activist with over a dozen letters or citizen science articles published, Twisk advocates for ME but not [[chronic fatigue syndrome]] *[[Mark Vink]], former doctor (general practice) with [[severe and very severe ME|severe ME]], patient researcher, former marathon runner and Dutch national hockey captain *[[Naomi Whittingham]], severely ill since childhood, Naomi featured in [[Voices from the Shadows]] and has a number of media interviews
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