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ME/cvs Vereniging
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[[File:Logo-me-cvs-vereniging.jpg|thumb|Logo of the Dutch ME/CFS Association]] '''The ME/<span style="font-variant: small-caps;">cvs</span> Vereniging''' is a Dutch association for and by those suffering from [[ME/CFS]] and their close ones. The small letters for "CVS" in its name underpins that the association wishes the medical world to stop using the name Chronic Fatigue Syndrome, which it considers stigmatizing. ("CVS" is the Dutch abbreviation for Chronic Fatigue Syndrome.) ==Aims== The association's objective is: * To provide and disseminate information about [[myalgic encephalomyelitis]] (code G93.3 in the ICD-10) * To provide and disseminate information about [[chronic fatigue syndrome]] (code G93.3 in the ICD-10) * promote the best possible outcomes for people suffering from ME/CFS, their partners, relatives and others close to them * promote a clear public image of ME/CFS * encourage those suffering from ME/CFS, their partners, relatives and those close to them in activities aimed at improving or restoring their health and improving their living conditions<ref name="statue2012" /> ==History== ME/cvs Vereniging, originally known as [[ME en CVS Vereniging]], was founded on April 15, 2005<ref name="statue2012">{{Cite web|url=https://www.me-cvsvereniging.nl/statuten | title = Statuten|last = ME/cvs Vereniging|first = | authorlink = ME/cvs Vereniging | website = me-cvsvereniging.nl | date = Oct 17, 2012|archive-url=|url-status=|access-date=|archive-date=|language=nl}}</ref> by [[Eelco van Tuyll]], [[Rico Landman]] and [[Guido den Broeder]].<ref name="about-20110716">{{Cite web|url=http://www.me-cvsvereniging.nl/me-cvs-vereniging|archive-date=Jul 16, 2011|archive-url=https://web.archive.org/web/20110716223807/http://www.me-cvsvereniging.nl/me-cvs-vereniging|last = ME/CVS Vereniging| title = ME/CVS Vereniging|url-status=dead | date = |access-date=|website=|first = | authorlink = |language=nl}}</ref> In 2011, Guido den Broeder left as chairman and founded [[ME Vereniging Nederland|ME Vereniging Nederlands]].<ref>{{Cite web|url=https://web.archive.org/web/20111002084009/http://www.me-cvsvereniging.nl/algemene-ledenvergadering | title = Algemene Ledenvergadering|last = ME/cvs Vereniging|first = | authorlink = ME/cvs Vereniging | date = Oct 2011 | website = |archive-url=https://web.archive.org/web/20111002084009/http://www.me-cvsvereniging.nl/algemene-ledenvergadering|archive-date=Oct 2, 2011|url-status=dead|access-date=2019-09-23}}</ref><ref>{{Cite web|url=http://www.mevereniging.nl/me-vereniging/ | title = ME Vereniging|last = ME Vereniging Nederland | first = | authorlink = ME Vereniging Nederland | date = |website=mevereniging|language=nl|archive-url=|archive-date=|url-status=|access-date=2019-09-23}}</ref> ==Funding== Their funding comes from individual contributions and donations.{{Citation needed|reason=}} ==Patient survey == In 2019, the association released a report summarizing the results of a 2017 patient survey.<ref name="ZorgVoorBetereBehandeling">{{Cite web|url=https://www.me-cvsvereniging.nl/sites/default/files/documenten/Rapport%20Zorg%20voor%20betere%20behandeling.pdf | title=Zorg voor betere behandeling bij ME|last = Corsius | first = L. | authorlink = Lou Corsius | last2 = Crijnen | first2 = B. | authorlink2 = | date = Sep 2019 | website = ME/cvs Vereniging|archive-url=|archive-date=|url-status=|access-date=Sep 11, 2019 | last3 = Hogeweg | last4 = Kuijper}}</ref> This report only included responses from patients who met the [[SEID]] diagnostic criteria, as these diagnostic criteria were considered consistent with the recent report by the Gezondheidsraad (Dutch Health Council).<ref name="ZorgVoorBetereBehandeling" /> Of those completing the survey, 94% reported a diagnosis of ME, 2.6% reported a diagnosis of CFS, no patients reported a diagnosis of SEID, and 4% reported a different diagnosis.<ref name="ZorgVoorBetereBehandeling" />{{Rp | page = 15}} ==Online presence== *[http://www.me-cvsvereniging.nl/ Website] *[https://www.facebook.com/ME.cvs.Vereniging/ Facebook page] *[https://twitter.com/MEcvsVereniging Twitter] *[https://www.youtube.com/channel/UCNRE0hwYJl5B_RccCst5k8Q YouTube channel] *[https://www.youtube.com/user/WetenschapvMEcvsVer ME/cvs Vereniging's ''Science for Patients'' YouTube channel] ==Learn more == *[https://www.me-cvsvereniging.nl/sites/default/files/documenten/Rapport%20Zorg%20voor%20betere%20behandeling.pdf Zorg voor betere behandeling bij ME] - 2017 patient survey ==References== {{reflist}} [[Category:Patient groups]] [[Category:Dutch patient groups]]
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