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ME/CFS Phone Support Group
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The '''ME/CFS Phone Support Group''' is a patient-organized support group started on July 9, 2016. This ME/CFS support group hosts free periodic conference calls designed to provide peer-to-peer support by listening and sharing experiences with other participants. Most participants have ME/CFS, but the calls are also open to family, friends, other caregivers and advocates in an effort to share different perspectives and information. == Aims == These regularly scheduled calls and the [https://www.facebook.com/groups/293261061038536/ group’s Facebook page] aim to provide support and social interactions to individuals affected by ME/CFS. The conference call format was chosen to provide another avenue of support, recognizing that in-person events and online-only forums may be difficult for individuals with ME/CFS to take advantage of. Topics vary each call, based on what participants want to talk about during that call. Discussions can cover a wide range of matters, including symptoms, socializing, research, treatments, diet, the isolation and stigma of this disease and advocacy efforts. == Conference Call Details (Year-Round) == *'''When:''' Saturday's at 5:00 p.m. Pacific / 8:00 p.m. Eastern (USA time zones) *'''Instructions for joining a scheduled call by phone (enter the Access Code after calling the relevant dial-in number):''' **''U.S. Dial-In Number'': (609) 746-1155 **''[https://fccdl.in/i/mecfsphone List of International Dial-In Numbers for 60+ countries]'' **''Access Code'': 915110# **Local or long distance phone charges may apply, and participants should contact their phone service provider for questions of this nature. *'''Alternative option for joining a scheduled call through an "online meeting" (audio only):''' **Participants may join a call online by downloading and launching the [https://www.freeconferencecall.com/apps FreeConferenceCall.com] application. This application may also be downloaded and/or launched by clicking "Join Online Meeting" at the following link: https://www.freeconferencecall.com/wall/mecfsphone. **Participants using this option will need to enter the following "Online Meeting ID" to join a call: mecfsphone **For technical support or more detailed instructions, go to https://www.freeconferencecall.com/support-center/en/us/categories/meetings. *'''General info / Facebook group:''' **Participants can join the [https://www.facebook.com/groups/293261061038536/ Facebook group] for additional information and to receive scheduling updates and reminders for the calls. **The [https://www.facebook.com/groups/293261061038536/ group’s Facebook page] describes other tips and guidelines for joining the conference calls (see the “About" section on the [https://www.facebook.com/groups/293261061038536/ group’s Facebook page], or Facebook group members may access the "Files" section for additional information). **A typical call runs 1-1.5 hours, but participants can join for a shorter period. == Online presence == *[https://www.facebook.com/groups/MECFSPhoneGroup/ Facebook] *MECFSPhoneGroup@gmail.com == References == https://www.facebook.com/groups/MECFSPhoneGroup/ [[Category:Patient groups]]
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