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ME/CFS Epidemiology and Genomics Alliance
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{{stub}} '''M.E./CFS Epidemiology and Genomics Alliance (MEGA)''' is a group of 15 British researchers supported by several [[UK]] patient charities which is applying for millions of [[ME/CFS]] research funding.<ref>{{Cite web|url=http://www.megaresearch.me.uk/mega-team/ | title = Biographies of MEGA Team Members|last = MEGA|first = | authorlink = | date = | website = megaresearch.me.uk|archive-url=|archive-date=|url-status=|access-date=2019-01-20}}</ref> MEGA's funding application to the Wellcome Trust was turned down in 2017, and the MEGA blog has not been updated since.<ref>{{Cite web|url=http://www.megaresearch.me.uk/ | title = ME/CFS Epidemiology and Genomics Alliance – Understanding the biology of ME/CFS|last = MEGA|first = | authorlink = | date = | website = megaresearch.me.uk|archive-url=|archive-date=|url-status=|access-date=2019-01-20}}</ref> == Notable people == * [[Sonya Chowdhury]] of British charity [[Action for ME]] * [[Stephen Holgate]], best known for his role of Chair of the UK's [[Medical Research Council]] * Professor [[Esther Crawley]], a paediatrician * Professor [[Carmine Pariante]], a psychiatrist * Professor [[George Davey-Smith]] a geneticist, University of Bristol *Professor [[Julia Newton]] University of Newcastle ==Criticism == MEGA has been criticized for arranging a patient petition to show support for its research aims, which is not the way research projects are usually planned or funded.<ref>{{Cite web|url=https://opposingmega.wordpress.com/ | title = Opposing MEGA (OMEGA)|last = Opposing MEGA|first = | authorlink = Opposing MEGA | date = |website=OMEGA|language=en|archive-url=|archive-date=|url-status=|access-date=2019-01-20}}</ref> The [[Opposing MEGA]] group was started to directly oppose the funding of the MEGA project, and has raised concerns about the researchers involved, including their close ties to the extremely controversial [[PACE trial]]. There was also concern about patient inclusion & selection with plans to recruit for blood and urine samples from the NHS fatigue clinics and the Q & A saying that “Patients with CFS/ME will be identified by clinicians in the NHS clinics. The clinicians will be asked to identify patients they judge from NICE criteria to have CFS/ME“ <ref>{{Cite web|url=https://www.change.org/p/support-this-huge-biomedical-m-e-cfs-study-and-its-application-to-major-uk-research-funders/u/18056402 | title = MEGA Questions and Answers|website=Change.org|language=en-US|access-date=2021-09-03}}</ref> * [http://www.megaresearch.me.uk/ Website] == See also == * [[Opposing MEGA]] * [[Biopsychosocial model]] * [[PACE trial]] * [[Esther Crawley]] == References == {{Reflist}} [[Category:Epidemiology]] [[Category:Research initiatives]] [[Category:British research initiatives]]
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