ME/CFS: Difference between revisions
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
(We really have to watch pages like this for bias. There IS evidence ME and CFS overlap -- that 50% of people who are diagnosed with Fukuda criteria will also be diagnosed with ICC or CCC criteria -- and we can cite it. Let's not say otherwise!) |
(Added US Clinician's Coalition as a reference, reworked the introductory paragraphs.) |
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<embedvideo service="youtube" dimensions="400" alignment="right" container="frame" description="''What is ME/CFS'' By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)">https://www.youtube.com/watch?v=pqDubEeIBtA</embedvideo>The acronym '''ME/CFS''' is | <embedvideo service="youtube" dimensions="400" alignment="right" container="frame" description="''What is ME/CFS'' By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)">https://www.youtube.com/watch?v=pqDubEeIBtA</embedvideo>The acronym '''ME/CFS''' is may be used to describe [[myalgic encephalomyelitis]]. Different names may be used to indicate which of several sets of diagnostic criteria are being described. The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name. | ||
[[United States]] (US) government bodies now use the acronym ME/CFS,<ref>{{Cite web|url=https://www.medscape.com/viewarticle/871552|title=Biomarker Research Advances in 'Chronic Fatigue Syndrome|last=|first=|authorlink=Miriam Tucker|last2=|first2=|authorlink2=|date=Nov 8, 2016|website=Medscape.com|archive-url=|archive-date=|dead-url=|access-date=2019-02-07|quote=The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,}}</ref> as does the US Clinician's Coalition.<ref>{{Cite web|url=https://mecfscliniciancoalition.org/home/|title=U.S. ME/CFS Clinician Coalition|website=U.S. ME/CFS Clinicians Coalition|language=en-US|access-date=2021-01-11}}</ref> The [[United States|US]] [[Centers for Disease Control and Prevention]]'s (CDC) website page is ''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)''.<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/index.html|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} CDC|date=2018-07-03|website=www.cdc.gov|language=en-us|access-date=2018-09-07}}</ref> The acronym [[CFS/ME]] is used by the [[National Health Service]] (NHS) in the [[United Kingdom]].<ref>{{Cite web|url=https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/|title=Chronic fatigue syndrome (CFS/ME)|website=nhs.uk|language=en-GB|access-date=2018-08-13}}</ref> The CDC recognizes ME/CFS as a "disabling and complex disease"<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/about/index.html|title=What is ME/CFS? {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} CDC|date=2019-01-18|website=www.cdc.gov|language=en-us|access-date=2019-04-12}}</ref> | |||
"The most common overlapping condition with ME/CFS is [[fibromyalgia]]."<ref name=":30">{{Cite web|url=https://ammes.org/overlapping-conditions/|title=Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society|last=|first=|date=|website=ammes.org|language=en-US|archive-url=|archive-date=|dead-url=|access-date=2018-08-12}}</ref><ref name=":31">{{Cite journal|last=Jason|first=Leonard|last2=Taylor|first2=R.R.|last3=Kennedy|first3=C.L.|last4=Song|first4=S|last5=Johnson|first5=D|last6=Torres|first6=S.R.|date=2001-01-01|title=Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness|url=https://www.researchgate.net/publication/285787383_Chronic_fatigue_syndrome_Comorbidity_with_fibromyalgia_and_psychiatric_illness|journal=Medicine and Psychiatry|volume=4|pages=29–34}}</ref> While some have posited ME/CFS and fibromyalgia are variants of the same illness, [[Benjamin Natelson]], MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.<ref>{{Cite journal|last=Natelson|first=Benjamin H.|date=2019-02-19|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences|url=https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/abstract|journal=Clinical Therapeutics|language=English|volume=0|issue=0|doi=10.1016/j.clinthera.2018.12.016|issn=0149-2918|pmid=30795933}}</ref> | "The most common overlapping condition with ME/CFS is [[fibromyalgia]]."<ref name=":30">{{Cite web|url=https://ammes.org/overlapping-conditions/|title=Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society|last=|first=|date=|website=ammes.org|language=en-US|archive-url=|archive-date=|dead-url=|access-date=2018-08-12}}</ref><ref name=":31">{{Cite journal|last=Jason|first=Leonard|last2=Taylor|first2=R.R.|last3=Kennedy|first3=C.L.|last4=Song|first4=S|last5=Johnson|first5=D|last6=Torres|first6=S.R.|date=2001-01-01|title=Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness|url=https://www.researchgate.net/publication/285787383_Chronic_fatigue_syndrome_Comorbidity_with_fibromyalgia_and_psychiatric_illness|journal=Medicine and Psychiatry|volume=4|pages=29–34}}</ref> While some have posited ME/CFS and fibromyalgia are variants of the same illness, [[Benjamin Natelson]], MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.<ref>{{Cite journal|last=Natelson|first=Benjamin H.|date=2019-02-19|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences|url=https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/abstract|journal=Clinical Therapeutics|language=English|volume=0|issue=0|doi=10.1016/j.clinthera.2018.12.016|issn=0149-2918|pmid=30795933}}</ref> | ||
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'''Case definition for ME''' | '''Case definition for ME''' | ||
*[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last=Carruthers|first=Bruce M.|author-link=Bruce Carruthers|last2=van de Sande|first2=Marjorie I.|author-link2=Marjorie van de Sande|last3=De Meirleir|first3=Kenny L.|author-link3=Kenny De Meirleir|last4=Klimas|first4=Nancy G.|author-link4=Nancy Klimas|last5=Broderick|first5=Gordon|author-link5=Gordon Broderick|last6=Mitchell|first6=Terry|author-link6=Terry Mitchell|last7=Staines|first7=Donald|author-link7=Donald Staines|last8=Powles|first8=A. C. Peter|author-link8=A C Peter Powles|last9=Speight|first9=Nigel|author-link9=Nigel Speight|last10=Vallings|first10=Rosamund|author-link10=Rosamund Vallings|last11=Bateman|first11=Lucinda|author-link11=Lucinda Bateman|last12=Baumgarten-Austrheim|first12=Barbara|author-link12=Barbara Baumgarten-Austrheim|last13=Bell|first13=David|author-link13=David Bell|last14=Carlo-Stella|first14=Nicoletta|author-link14=Nicoletta Carlo-Stella|last15=Chia|first15=John|author-link15=John Chia|last16=Darragh|first16=Austin|author-link16=Austin Darragh|last17=Jo|first17=Daehyun|author-link17=Daehyun Jo|last18=Lewis|first18=Donald|author-link18=Donald Lewis|last19=Light|first19=Alan|author-link19=Alan Light|last20=Marshall-Gradisnik|first20=Sonya|author-link20=Sonya Marshall-Gradisnik|last21=Mena|first21=Ismael|author-link21=Ismael Mena|last22=Mikovits|first22=Judy|author-link22=Judy Mikovits|last23=Miwa|first23=Kunihisa|author-link23=Kunihisa Miwa|last24=Murovska|first24=Modra|author-link24=Modra Murovska|last25=Pall|first25=Martin|author-link25=Martin Pall|last26=Stevens|first26=Staci|author-link26=Staci Stevens|date=2011-08-22|title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref> This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis | *[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last=Carruthers|first=Bruce M.|author-link=Bruce Carruthers|last2=van de Sande|first2=Marjorie I.|author-link2=Marjorie van de Sande|last3=De Meirleir|first3=Kenny L.|author-link3=Kenny De Meirleir|last4=Klimas|first4=Nancy G.|author-link4=Nancy Klimas|last5=Broderick|first5=Gordon|author-link5=Gordon Broderick|last6=Mitchell|first6=Terry|author-link6=Terry Mitchell|last7=Staines|first7=Donald|author-link7=Donald Staines|last8=Powles|first8=A. C. Peter|author-link8=A C Peter Powles|last9=Speight|first9=Nigel|author-link9=Nigel Speight|last10=Vallings|first10=Rosamund|author-link10=Rosamund Vallings|last11=Bateman|first11=Lucinda|author-link11=Lucinda Bateman|last12=Baumgarten-Austrheim|first12=Barbara|author-link12=Barbara Baumgarten-Austrheim|last13=Bell|first13=David|author-link13=David Bell|last14=Carlo-Stella|first14=Nicoletta|author-link14=Nicoletta Carlo-Stella|last15=Chia|first15=John|author-link15=John Chia|last16=Darragh|first16=Austin|author-link16=Austin Darragh|last17=Jo|first17=Daehyun|author-link17=Daehyun Jo|last18=Lewis|first18=Donald|author-link18=Donald Lewis|last19=Light|first19=Alan|author-link19=Alan Light|last20=Marshall-Gradisnik|first20=Sonya|author-link20=Sonya Marshall-Gradisnik|last21=Mena|first21=Ismael|author-link21=Ismael Mena|last22=Mikovits|first22=Judy|author-link22=Judy Mikovits|last23=Miwa|first23=Kunihisa|author-link23=Kunihisa Miwa|last24=Murovska|first24=Modra|author-link24=Modra Murovska|last25=Pall|first25=Martin|author-link25=Martin Pall|last26=Stevens|first26=Staci|author-link26=Staci Stevens|date=2011-08-22|title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref> This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis. | ||
== Learn more == | == Learn more == | ||
Revision as of 21:21, January 11, 2021
The acronym ME/CFS is may be used to describe myalgic encephalomyelitis. Different names may be used to indicate which of several sets of diagnostic criteria are being described. The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name.
United States (US) government bodies now use the acronym ME/CFS,[1] as does the US Clinician's Coalition.[2] The US Centers for Disease Control and Prevention's (CDC) website page is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).[3] The acronym CFS/ME is used by the National Health Service (NHS) in the United Kingdom.[4] The CDC recognizes ME/CFS as a "disabling and complex disease"[5]
"The most common overlapping condition with ME/CFS is fibromyalgia."[6][7] While some have posited ME/CFS and fibromyalgia are variants of the same illness, Benjamin Natelson, MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.[8]
See also[edit | edit source]
- Myalgic encephalomyelitis
- Pediatric myalgic encephalomyelitis and chronic fatigue syndrome
- Prognosis for myalgic encephalomyelitis and chronic fatigue syndrome
- Severe and very severe ME
Case definitions for ME/CFS
- Canadian Consensus Criteria (CCC)[9] A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
- Systemic Exertion Intolerance Disease (SEID)[10] ME/CFS (SEID) is accurately diagnosed when the core symptoms are met. The Institute of Medicine report as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
Case definition for ME
- International Consensus Criteria (ICC)[11] This criterion will accurately diagnose myalgic encephalomyelitis (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis.
Learn more[edit | edit source]
Persons living with ME/CFS
Dr. Keith Geraghty is a UK researcher and an ME/CFS patient. He helped analyze the PACE trial data and found the results published in The Lancet were untrue
Carol Head is an American and former CEO of the Solve ME/CFS Initiative. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered
Brian Vastag is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that PEM is a severe symptom that keeps him from gainful employment
Cort Johnson is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with CFS and Fibromyalgia in 1980. He founded Phoenix Rising and Health Rising, both being "Citizen Science" blogs and forums. He works for Simmaron Research
Ryan Prior was a healthy, athletic American high school student when he became ill with ME/CFS in 2006. Prior wrote an article for USA Today: College Viewpoint: The real story of chronic fatigue syndrome. Ryan and his then-girlfriend, Nicole Castillo, co-directed Forgotten Plague
Laura Hillenbrand is an American and an award-winning author having two books made into acclaimed movies. She became ill in 1987 and has said about the illness “Fatigue is what we experience, but it is what a match is to an atomic bomb.”
References[edit | edit source]
- ↑ "Biomarker Research Advances in 'Chronic Fatigue Syndrome". Medscape.com. November 8, 2016. Retrieved February 7, 2019.
The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,
Cite has empty unknown parameter:|dead-url=(help) - ↑ "U.S. ME/CFS Clinician Coalition". U.S. ME/CFS Clinicians Coalition. Retrieved January 11, 2021.
- ↑ "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | CDC". www.cdc.gov. July 3, 2018. Retrieved September 7, 2018.
- ↑ "Chronic fatigue syndrome (CFS/ME)". nhs.uk. Retrieved August 13, 2018.
- ↑ "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | CDC". www.cdc.gov. January 18, 2019. Retrieved April 12, 2019.
- ↑ "Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society". ammes.org. Retrieved August 12, 2018. Cite has empty unknown parameter:
|dead-url=(help) - ↑ Jason, Leonard; Taylor, R.R.; Kennedy, C.L.; Song, S; Johnson, D; Torres, S.R. (January 1, 2001). "Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness". Medicine and Psychiatry. 4: 29–34.
- ↑ Natelson, Benjamin H. (February 19, 2019). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences". Clinical Therapeutics. 0 (0). doi:10.1016/j.clinthera.2018.12.016. ISSN 0149-2918. PMID 30795933.
- ↑ Carruthers, Bruce M.; Jain, Anil Kumar; De Meirleir, Kenny L.; Peterson, Daniel L.; Klimas, Nancy G.; Lerner, A. Martin; Bested, Alison C.; Flor-Henry, Pierre; Joshi, Pradip; Powles, A C Peter; Sherkey, Jeffrey A.; van de Sande, Marjorie I. (2003), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (PDF), Journal of Chronic Fatigue Syndrome, 11 (2): 7-115, doi:10.1300/J092v11n01_02
- ↑ Clayton, Ellen Wright; Alegria, Margarita; Bateman, Lucinda; Chu, Lily; Cleeland, Charles; Davis, Ronald; Diamond, Betty; Ganiats, Theodore; Keller, Betsy; Klimas, Nancy; Lerner, A Martin; Mulrow, Cynthia; Natelson, Benjamin; Rowe, Peter; Shelanski, Michael (2015). "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness" (PDF). nationacademies.org. Cite has empty unknown parameter:
|dead-url=(help) - ↑ Carruthers, Bruce M.; van de Sande, Marjorie I.; De Meirleir, Kenny L.; Klimas, Nancy G.; Broderick, Gordon; Mitchell, Terry; Staines, Donald; Powles, A. C. Peter; Speight, Nigel; Vallings, Rosamund; Bateman, Lucinda; Baumgarten-Austrheim, Barbara; Bell, David; Carlo-Stella, Nicoletta; Chia, John; Darragh, Austin; Jo, Daehyun; Lewis, Donald; Light, Alan; Marshall-Gradisnik, Sonya; Mena, Ismael; Mikovits, Judy; Miwa, Kunihisa; Murovska, Modra; Pall, Martin; Stevens, Staci (August 22, 2011). "Myalgic encephalomyelitis: International Consensus Criteria". Journal of Internal Medicine. 270 (4): 327–338. doi:10.1111/j.1365-2796.2011.02428.x. ISSN 0954-6820. PMC 3427890. PMID 21777306.
