ME/CFS: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
(We really have to watch pages like this for bias. There IS evidence ME and CFS overlap -- that 50% of people who are diagnosed with Fukuda criteria will also be diagnosed with ICC or CCC criteria -- and we can cite it. Let's not say otherwise!)
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<embedvideo service="youtube" dimensions="400" alignment="right" container="frame" description="''What is ME/CFS'' By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)">https://www.youtube.com/watch?v=pqDubEeIBtA</embedvideo>The acronym '''ME/CFS''' is commonly used as an umbrella term to cover the various [[Definitions of ME and CFS|case definitions]] employed to describe [[myalgic encephalomyelitis]] (ME) and/or [[chronic fatigue syndrome]] (CFS). In ME/CFS research, the terms are often used synonymously, though there is no clear evidence to support either equating them or separating them.  
<embedvideo service="youtube" dimensions="400" alignment="right" container="frame" description="''What is ME/CFS'' By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)">https://www.youtube.com/watch?v=pqDubEeIBtA</embedvideo>The acronym '''ME/CFS''' is may be used to describe [[myalgic encephalomyelitis]]. Different names may be used to indicate which of several sets of diagnostic criteria are being described.  The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name.  


ME was the original name for CFS; the names are used interchangeably or with the acronym ME/CFS.<ref name=":0">{{Cite news|url=https://www.verywellhealth.com/myalgic-encephalomyelitis-me-715663|title=Myalgic Encephalomyelitis or Chronic Fatigue Syndrome|last=Dellwo|first=Adrienne|authorlink=Adrienne Dellwo|date=Nov 24, 2018|work=Verywell Health|access-date=2018-11-28|archive-url=|archive-date=|dead-url=|quote=|author-link=}}</ref> [[United States]] (US) government bodies now use the acronym.<ref>{{Cite web|url=https://www.medscape.com/viewarticle/871552|title=Biomarker Research Advances in 'Chronic Fatigue Syndrome|last=|first=|authorlink=Miriam Tucker|last2=|first2=|authorlink2=|date=Nov 8, 2016|website=Medscape.com|archive-url=|archive-date=|dead-url=|access-date=2019-02-07|quote=The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,}}</ref> The [[United States|US]] [[Centers for Disease Control and Prevention]]'s (CDC) website page is ''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)''.<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/index.html|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} CDC|date=2018-07-03|website=www.cdc.gov|language=en-us|access-date=2018-09-07}}</ref> The acronym [[CFS/ME]] is used by the [[National Health Service]] (NHS) in the [[United Kingdom]].<ref>{{Cite web|url=https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/|title=Chronic fatigue syndrome (CFS/ME)|website=nhs.uk|language=en-GB|access-date=2018-08-13}}</ref> The CDC recognizes ME/CFS as a "disabling and complex disease"<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/about/index.html|title=What is ME/CFS? {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} CDC|date=2019-01-18|website=www.cdc.gov|language=en-us|access-date=2019-04-12}}</ref>
[[United States]] (US) government bodies now use the acronym ME/CFS,<ref>{{Cite web|url=https://www.medscape.com/viewarticle/871552 | title = Biomarker Research Advances in 'Chronic Fatigue Syndrome|last = | first = | authorlink = Miriam Tucker | date = Nov 8, 2016 | website = Medscape.com|archive-url=|archive-date=|url-status=|access-date=2019-02-07|quote=The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,}}</ref> as does the US Clinician's Coalition.<ref>{{Cite web|url=https://mecfscliniciancoalition.org/home/ | title = U.S. ME/CFS Clinician Coalition|website=U.S. ME/CFS Clinicians Coalition|language=en-US|access-date=2021-01-11}}</ref> The [[United States|US]] [[Centers for Disease Control and Prevention]]'s (CDC) website page is ''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)''.<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/index.html | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2018-07-03 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-09-07}}</ref> The acronym [[CFS/ME]] is used by the [[National Health Service]] (NHS) in the [[United Kingdom]].<ref>{{Cite web|url=https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/ | title = Chronic fatigue syndrome (CFS/ME) | website = [[National Health Service]] | language = en-GB | access-date = 2018-08-13}}</ref> The CDC recognizes ME/CFS as a "disabling and complex disease"<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/about/index.html | title = What is ME/CFS? {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2019-01-18 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2019-04-12}}</ref>


"The most common overlapping condition with ME/CFS is [[fibromyalgia]]."<ref name=":30">{{Cite web|url=https://ammes.org/overlapping-conditions/|title=Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society|last=|first=|date=|website=ammes.org|language=en-US|archive-url=|archive-date=|dead-url=|access-date=2018-08-12}}</ref><ref name=":31">{{Cite journal|last=Jason|first=Leonard|last2=Taylor|first2=R.R.|last3=Kennedy|first3=C.L.|last4=Song|first4=S|last5=Johnson|first5=D|last6=Torres|first6=S.R.|date=2001-01-01|title=Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness|url=https://www.researchgate.net/publication/285787383_Chronic_fatigue_syndrome_Comorbidity_with_fibromyalgia_and_psychiatric_illness|journal=Medicine and Psychiatry|volume=4|pages=29–34}}</ref> While some have posited ME/CFS and fibromyalgia are variants of the same illness, [[Benjamin Natelson]], MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.<ref>{{Cite journal|last=Natelson|first=Benjamin H.|date=2019-02-19|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences|url=https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/abstract|journal=Clinical Therapeutics|language=English|volume=0|issue=0|doi=10.1016/j.clinthera.2018.12.016|issn=0149-2918|pmid=30795933}}</ref>
"The most common overlapping condition with ME/CFS is [[fibromyalgia]]."<ref name=":30">{{Cite web|url=https://ammes.org/overlapping-conditions/ | title = Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society|last = | first = | date = |website=ammes.org|language=en-US|archive-url=|archive-date=|url-status=|access-date=2018-08-12}}</ref><ref name=":31">{{Cite journal | last = Jason | first = Leonard | last2 = Taylor | first2 = R.R. | last3 = Kennedy | first3 = C.L. | last4 = Song | first4 = S | last5 = Johnson | first5 = D | last6 = Torres | first6 = S.R. | date = 2001-01-01 | title = Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness|url=https://www.researchgate.net/publication/285787383_Chronic_fatigue_syndrome_Comorbidity_with_fibromyalgia_and_psychiatric_illness|journal=Medicine and Psychiatry|volume=4|pages=29–34}}</ref> While some have posited ME/CFS and fibromyalgia are variants of the same illness, [[Benjamin Natelson]], MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.<ref>{{Cite journal|last = Natelson | first = Benjamin H. | date = 2019-02-19 | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences|url=https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/abstract|journal=Clinical Therapeutics|language=English|volume=41|issue=4 | pages = 612|doi=10.1016/j.clinthera.2018.12.016|issn=0149-2918|pmid=30795933}}</ref>
== See also ==
== See also ==
* [[Chronic fatigue syndrome]]
* [[Chronic fatigue syndrome]]
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* [[Severe and very severe ME]]
* [[Severe and very severe ME]]
'''Case definitions for ME/CFS'''
'''Case definitions for ME/CFS'''
*[[Canadian Consensus Criteria]] (CCC)<ref name="Carruthers, 2003">{{Citation
*[[Canadian Consensus Criteria]] (CCC)<ref name="Carruthers, 2003">{{Citation | last = Carruthers | first1 = Bruce M. | authorlink1 = Bruce Carruthers | last2 = Jain | first2 = Anil Kumar | authorlink2 = Anil Kumar Jain | last3 = De Meirleir | first3 = Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Peterson | first4 = Daniel L. | authorlink4 = Daniel Peterson | last5 = Klimas | first5 = Nancy G. | authorlink5 = Nancy Klimas | last6 = Lerner | first6 = A. Martin | authorlink6 = Martin Lerner | last7 =Bested | first7 = Alison C. | authorlink7 = Alison Bested | last8 =Flor-Henry | first8 = Pierre | authorlink8 = Pierre Flor-Henry | last9 = Joshi | first9 = Pradip | authorlink9 = Pradip Joshi | last10 = Powles | first10 = AC Peter | authorlink10 = A C Peter Powles | last11 = Sherkey | first11 = Jeffrey A. | authorlink11 = Jeffrey Sherkey | last12 = van de Sande | first12 = Marjorie I.  | authorlink12 = Marjorie van de Sande | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols | journal = Journal of Chronic Fatigue Syndrome | volume = 11 | issue = 2 | pages = 7-115 | date = 2003 |pmid = | doi = 10.1300/J092v11n01_02 | url = http://phoenixrising.me/wp-content/uploads/Canadian-definition.pdf }}</ref>  A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
| last1  = Carruthers   | first1 = Bruce M.     | authorlink1 = Bruce Carruthers  
| last2   = Jain         | first2 = Anil Kumar   | authorlink2 = Anil Kumar Jain
| last3   = De Meirleir   | first3 = Kenny L.     | authorlink3 = Kenny De Meirleir
| last4   = Peterson     | first4 = Daniel L.     | authorlink4 = Daniel Peterson
| last5   = Klimas       | first5 = Nancy G.     | authorlink5 = Nancy Klimas
| last6   = Lerner       | first6 = A. Martin     | authorlink6 = Martin Lerner
| last7   = Bested       | first7 = Alison C.     | authorlink7 = Alison Bested
| last8   = Flor-Henry   | first8 = Pierre       | authorlink8 = Pierre Flor-Henry  
| last9   = Joshi         | first9 = Pradip       | authorlink9 = Pradip Joshi
| last10 = Powles       | first10 = A C Peter   | authorlink10 = A C Peter Powles
| last11 = Sherkey       | first11 = Jeffrey A.   | authorlink11 = Jeffrey Sherkey
| last12 = van de Sande | first12 = Marjorie I.  | authorlink12 = Marjorie van de Sande
| title   = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols
| journal = Journal of Chronic Fatigue Syndrome | volume = 11 | issue = 2 | page = 7-115
| date   = 2003
| pmid   =  
| doi     = 10.1300/J092v11n01_02
| url     = http://phoenixrising.me/wp-content/uploads/Canadian-definition.pdf
}}</ref>  A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.


*[[Systemic Exertion Intolerance Disease]] (SEID)<ref>{{Cite web|url=http://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFScliniciansguide.pdf|title=Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness|last=Clayton|first=Ellen Wright|date=2015|website=nationacademies.org|archive-url=|archive-date=|dead-url=|access-date=|authorlink=Ellen Wright Clayton|last2=Alegria|first2=Margarita|authorlink2=Margarita Alegria|authorlink3=Lucinda Bateman|authorlink4=Lily Chu|authorlink5=Charles Cleeland|authorlink6=Ronald Davis|authorlink7=Betty Diamond|authorlink8=Theodore Ganiats|authorlink9=Betsy Keller|authors=|last3=Bateman|first3=Lucinda|last4=Chu|first4=Lily|last5=Cleeland|first5=Charles|last6=Davis|first6=Ronald|last7=Diamond|first7=Betty|last8=Ganiats|first8=Theodore|last9=Keller|first9=Betsy|last10=Klimas|first10=Nancy|authorlink10=Nancy Klimas|last11=Lerner|first11=A Martin|authorlink11=Martin Lerner|last12=Mulrow|first12=Cynthia|authorlink12=Cynthia Mulrow|last13=Natelson|first13=Benjamin|authorlink13=Benjamin Natelson|last14=Rowe|first14=Peter|authorlink14=Peter Rowe|last15=Shelanski |first15=Michael|authorlink15=Michael Shelanski}}</ref> ME/CFS ([[Systemic Exertion Intolerance Disease|SEID]]) is accurately diagnosed when the [[Systemic Exertion Intolerance Disease#Diagnostic criteria|core symptoms]] are met. The [[Institute of Medicine report]] as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
*[[Systemic Exertion Intolerance Disease]] (SEID)<ref>{{Cite web|url=http://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFScliniciansguide.pdf | title=Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness|last = Clayton | first = Ellen Wright | date = 2015 | website = National Academies|archive-url=|archive-date=|url-status=|access-date= | authorlink = Ellen Wright Clayton | last2 = Alegria | first2 = Margarita | authorlink2 = Margarita Alegria | authorlink3 = Lucinda Bateman | authorlink4 = Lily Chu | authorlink5 = Charles Cleeland | authorlink6 = Ronald Davis | authorlink7 = Betty Diamond | authorlink8 = Theodore Ganiats | author-link9 = Betsy Keller | last3 = Bateman | first3 = Lucinda | last4 = Chu | first4 = Lily | last5 = Cleeland | first5 = Charles | last6 = Davis | first6 = Ronald | last7 = Diamond | first7 = Betty | last8 = Ganiats | first8 = Theodore | last9 = Keller | first9 = Betsy | last10 = Klimas | first10 = Nancy | authorlink10=Nancy Klimas | last11 = Lerner | first11 = A Martin | authorlink11=Martin Lerner | last12 = Mulrow | first12 = Cynthia | authorlink12=Cynthia Mulrow | last13 = Natelson | first13 = Benjamin | authorlink13 = Benjamin Natelson | last14 = Rowe | first14 = Peter | authorlink14=Peter Rowe | last15 = Shelanski | first15 = Michael | authorlink15=Michael Shelanski}}</ref> ME/CFS ([[Systemic Exertion Intolerance Disease|SEID]]) is accurately diagnosed when the [[Systemic Exertion Intolerance Disease#Diagnostic criteria|core symptoms]] are met. The [[Institute of Medicine report]] as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.


'''Case definition for ME'''
'''Case definition for ME'''
*[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last=Carruthers|first=Bruce M.|author-link=Bruce Carruthers|last2=van de Sande|first2=Marjorie I.|author-link2=Marjorie van de Sande|last3=De Meirleir|first3=Kenny L.|author-link3=Kenny De Meirleir|last4=Klimas|first4=Nancy G.|author-link4=Nancy Klimas|last5=Broderick|first5=Gordon|author-link5=Gordon Broderick|last6=Mitchell|first6=Terry|author-link6=Terry Mitchell|last7=Staines|first7=Donald|author-link7=Donald Staines|last8=Powles|first8=A. C. Peter|author-link8=A C Peter Powles|last9=Speight|first9=Nigel|author-link9=Nigel Speight|last10=Vallings|first10=Rosamund|author-link10=Rosamund Vallings|last11=Bateman|first11=Lucinda|author-link11=Lucinda Bateman|last12=Baumgarten-Austrheim|first12=Barbara|author-link12=Barbara Baumgarten-Austrheim|last13=Bell|first13=David|author-link13=David Bell|last14=Carlo-Stella|first14=Nicoletta|author-link14=Nicoletta Carlo-Stella|last15=Chia|first15=John|author-link15=John Chia|last16=Darragh|first16=Austin|author-link16=Austin Darragh|last17=Jo|first17=Daehyun|author-link17=Daehyun Jo|last18=Lewis|first18=Donald|author-link18=Donald Lewis|last19=Light|first19=Alan|author-link19=Alan Light|last20=Marshall-Gradisnik|first20=Sonya|author-link20=Sonya Marshall-Gradisnik|last21=Mena|first21=Ismael|author-link21=Ismael Mena|last22=Mikovits|first22=Judy|author-link22=Judy Mikovits|last23=Miwa|first23=Kunihisa|author-link23=Kunihisa Miwa|last24=Murovska|first24=Modra|author-link24=Modra Murovska|last25=Pall|first25=Martin|author-link25=Martin Pall|last26=Stevens|first26=Staci|author-link26=Staci Stevens|date=2011-08-22|title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>  This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis, as opposed to CCC, [[Fukuda criteria|Fukuda]], and [[Systemic Exertion Intolerance Disease|SEID]], which all require 6 months in adults.
*[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last = Carruthers | first = Bruce M. | authorlink = Bruce Carruthers | last2 = van de Sande | first2 = Marjorie I. | authorlink2 = Marjorie van de Sande | last3 = De Meirleir | first3 = Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Klimas | first4 = Nancy G. | author-link4 = Nancy Klimas | last5 = Broderick | first5 = Gordon | author-link5 = Gordon Broderick | last6 = Mitchell | first6 = Terry | author-link6 = Terry Mitchell | last7 = Staines | first7 = Donald | author-link7 = Donald Staines | last8 = Powles | first8 = A.C. Peter | authorlink8 = A C Peter Powles | last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight | last10 = Vallings | first10 = Rosamund | authorlink10 = Rosamund Vallings | last11 = Bateman | first11 = Lucinda | authorlink11 = Lucinda Bateman | last12 = Baumgarten-Austrheim | first12 = Barbara | authorlink12 = Barbara Baumgarten-Austrheim | last13 = Bell | first13 = David | author-link13 = David Bell | last14 = Carlo-Stella | first14 = Nicoletta | author-link14 = Nicoletta Carlo-Stella | last15 = Chia | first15 = John | author-link15 = John Chia | last16 = Darragh | first16 = Austin | author-link16 = Austin Darragh | last17 = Jo | first17 = Daehyun | author-link17 = Daehyun Jo | last18 = Lewis | first18 = Donald | author-link18 = Donald Lewis | last19 = Light | first19 = Alan | author-link19 = Alan Light | last20 = Marshall-Gradisnik | first20 = Sonya | author-link20 = Sonya Marshall-Gradisnik | last21 = Mena | first21 = Ismael | author-link21 = Ismael Mena | last22 = Mikovits | first22 = Judy | author-link22 = Judy Mikovits | last23 = Miwa | first23 = Kunihisa | author-link23 = Kunihisa Miwa | last24 = Murovska | first24 = Modra | author-link24 = Modra Murovska | last25 = Pall | first25 = Martin | author-link25 = Martin Pall | last26 = Stevens | first26 = Staci | author-link26 = Staci Stevens | date = 2011-08-22 | title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4 | pages = 327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>  This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis.


== Learn more ==
== Learn more ==
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File:Carol Head.png|thumb|[[Carol Head]] is an [[American]] and former CEO of the [[Solve ME/CFS Initiative]]. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered
File:Carol Head.png|thumb|[[Carol Head]] is an [[American]] and former CEO of the [[Solve ME/CFS Initiative]]. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered
File:Brian vastag.png|thumb|right|[[Brian Vastag]] is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that [[PEM]] is a severe symptom that keeps him from gainful employment
File:Brian vastag.png|thumb|right|[[Brian Vastag]] is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that [[PEM]] is a severe symptom that keeps him from gainful employment
File:Cort Johnson.jpg|thumb|right|[[Cort Johnson]] is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with [[CFS]] and [[Fibromyalgia]] in 1980. He founded ''[[Phoenix Rising]]'' and ''[[Health Rising]]'', both being "Citizen Science" blogs and forums. He works for [[Simmaron Research]]
File:Cort Johnson.jpg|thumb|right|[[Cort Johnson]] is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with [[chronic fatigue syndrome|CFS]] and [[Fibromyalgia]] in 1980. He founded ''[[Phoenix Rising]]'' and ''[[Health Rising]]'', both being "Citizen Science" blogs and forums. He works for [[Simmaron Research]]
File:Ryan Prior.jpg|400px|thumb|right|[[Ryan Prior]] was a healthy, athletic American high school student when he became ill with ME/CFS in 2006. Prior wrote an article for ''USA Today: College'' ''[https://www.usatoday.com/story/college/2012/10/02/viewpoint-the-real-story-of-chronic-fatigue-syndrome/37397751/ Viewpoint: The real story of chronic fatigue syndrome]''. Ryan and his then-girlfriend, [[Nicole Castillo]], co-directed ''[[Forgotten Plague]]''
File:Ryan Prior.jpg|400px|thumb|right|[[Ryan Prior]] was a healthy, athletic American high school student when he became ill with ME/CFS in 2006. Prior wrote an article for ''USA Today: College'' ''[https://www.usatoday.com/story/college/2012/10/02/viewpoint-the-real-story-of-chronic-fatigue-syndrome/37397751/ Viewpoint: The real story of chronic fatigue syndrome]''. Ryan and his then-girlfriend, [[Nicole Castillo]], co-directed ''[[Forgotten Plague]]''
File:Laura Hillenbrand.png|thumb|[[Laura Hillenbrand]] is an American and an award-winning author having two books made into acclaimed movies. She became ill in 1987 and has said about the illness “Fatigue is what we experience, but it is what a match is to an atomic bomb.”
File:Laura Hillenbrand.png|thumb|[[Laura Hillenbrand]] is an American and an award-winning author having two books made into acclaimed movies. She became ill in 1987 and has said about the illness “Fatigue is what we experience, but it is what a match is to an atomic bomb.”
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== References ==
== References ==
<references />
{{Reflist}}
[[Category:Diagnoses]]
[[Category:Diagnoses]]
[[Category:Disease names and definitions]]
[[Category:Disease names and definitions]]
[[Category:Disease names]]
[[Category:Disease names]]

Latest revision as of 13:53, July 25, 2023

What is ME/CFS By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)

The acronym ME/CFS is may be used to describe myalgic encephalomyelitis. Different names may be used to indicate which of several sets of diagnostic criteria are being described. The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name.

United States (US) government bodies now use the acronym ME/CFS,[1] as does the US Clinician's Coalition.[2] The US Centers for Disease Control and Prevention's (CDC) website page is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).[3] The acronym CFS/ME is used by the National Health Service (NHS) in the United Kingdom.[4] The CDC recognizes ME/CFS as a "disabling and complex disease"[5]

"The most common overlapping condition with ME/CFS is fibromyalgia."[6][7] While some have posited ME/CFS and fibromyalgia are variants of the same illness, Benjamin Natelson, MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.[8]

See also[edit | edit source]

Case definitions for ME/CFS

  • Canadian Consensus Criteria (CCC)[9] A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.

Case definition for ME

Learn more[edit | edit source]

Persons living with ME/CFS

References[edit | edit source]

  1. "Biomarker Research Advances in 'Chronic Fatigue Syndrome". Medscape.com. November 8, 2016. Retrieved February 7, 2019. The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,
  2. "U.S. ME/CFS Clinician Coalition". U.S. ME/CFS Clinicians Coalition. Retrieved January 11, 2021.
  3. "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. July 3, 2018. Retrieved September 7, 2018.
  4. "Chronic fatigue syndrome (CFS/ME)". National Health Service. Retrieved August 13, 2018.
  5. "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. January 18, 2019. Retrieved April 12, 2019.
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