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Lynn Gilderdale
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{{NeedsImage}} '''Lynn Gilderdale''' (1977-2008) was a British woman who was fourteen when she became [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome|unwell]] after a routine tuberculosis inoculation. After several illnesses in quick succession she became ill with [[Myalgic encephalomyelitis]] (ME). She had been ill 17 years. == Life == Lynn was sporty and athletic and excelled at ballet. She rode horses and was an accomplished musician. ===Illness=== After a routine TB inoculation, Lynn never recovered and then flu, bronchitis, tonsillitis and glandular fever all occurred within three months. A psychiatrist took over her case when an ME specialist referred her to him as he never saw such a [[Severe and very severe ME|severe case]] of ME. The psychiatrist misdiagnosed her with [[hysteria]].<ref>{{Cite news | url=http://tanyamarlow.com/why-should-you-care-about-m-e/ | title = Why should you care about M.E.? | date = 2012-05-08|work=Tanya Marlow - Thorns and Gold|access-date=2018-08-16|language=en-GB}}</ref> She worsened and [[myalgic encephalomyelitis|ME]] confined her to her bedroom and she was [[paralysis|unable to move her legs]], swallow or eat and at times recognize no one. She could no longer speak. She lived with tubes in her nose, chest and inner thigh. At age 20 she went through [[early menopause|menopause]]. During her last hospitalization, she picked up four [[infection]]s. In 2007 she attempted to take her own life.<ref>{{Cite news | url=http://www.telegraph.co.uk/news/uknews/law-and-order/7074234/Lynn-Gilderdale-how-a-14-year-old-was-condemned-to-a-life-lived-from-a-bed.html | title = Lynn Gilderdale: how a 14-year-old was condemned to a life lived from a bed|last = Gammell|first = Caroline | date = 2010 | publisher =The Telegraph|url-access=registration|access-date=2018-08-16|language=en-GB|issn=0307-1235}}</ref> ===Graded exercise=== Lynn was not put through [[graded exercise therapy]] (GET) but was put on an "activity regime". This consisted of doing certain amounts of [[exercise]], schoolwork and socializing regardless of how she felt.<ref name="Whyyoushouldcare">{{Cite news | url=http://tanyamarlow.com/why-should-you-care-about-m-e/ | title = Why should you care about M.E.? | date = 2012-05-08|work=Tanya Marlow - Thorns and Gold|access-date=2018-08-16|language=en-GB}}</ref> Lynn's mother wrote an open letter about her experience appealing for appropriate care for people with ME.<ref name="Appeal">{{Cite news | url=https://25megroup.org/wp-content/uploads/2018/07/Appeal-for-Appropriate-Care-Kay-G-signed.pdf | last = Gilderdale | first = Kay | authorlink = Kay Gilderdale |website=The 25% ME Group | date = Jul 2018 | title = Appeal for appropriate care|language=en-GB}}</ref> ==Death== Lynn Gilderdale requested her mother's assistance in ending her life. Her mother administered 2 large doses of morphine and as the hours went on sleeping pills, antidepressants and further doses of morphine. After 28 hours, Lynn passed away December 4th, 2008 at age 31.<ref name="Guardian">{{Cite news | url=http://www.theguardian.com/society/2010/jan/25/lynn-gilderdale-me-assisted-suicide | title = Trapped by ME, Lynn Gilderdale made it clear she wanted to die|last = Laville | first = Sandra | date = 2010-01-25|publisher=The Guardian|language=en|access-date=2018-08-16}}</ref> Lynn had [[ganglionitis]] which is an infection of [[dorsal root ganglia]] of her spine, typical for a [[Nervous system|neurological]] illness.<ref>{{Cite web|url=https://niceguidelines.blogspot.com/2011/04/lynn-gilderdales-autopsy-showed-dorsal.html | title = THE NICEGUIDELINES BLOG: Lynn Gilderdale's autopsy showed 'dorsal root ganglionitis' - infected nerve roots, just like Sophia Mirza's|last = Speedy|first = Maik | date = 2011-04-16 | website = THE NICEGUIDELINES BLOG|access-date=2018-08-16}}</ref><ref name="book">{{Cite book | title = One Last Goodbye: Sometimes only a mother's love can help end the pain | url =https://www.amazon.com/One-Last-Goodbye-Sometimes-mothers/dp/0091939143|publisher=Ebury Press | date = 2011-04-14|isbn=9780091939144|language=English|first = Kay|last = Gilderdale| year = |location=|pages=}}</ref><ref>{{Cite web | title = talkhealth forums - dorsal root ganglionitis|url=https://www.talkhealthpartnership.com/forum/viewtopic.php?t=4600 | website = talkhealthpartnership.com|access-date=2018-08-16}}</ref> ===Legacy=== Lynn was in the UK Documentary [[Voices from the Shadows]]. Kay Gilderdale, Lynn's mother, wrote the book [[One Last Goodbye]] and it is available at [http://www.easyfundraising.org.uk/amazon/?t=retailers Amazon Easy Fundraising].<ref name="book" /> Kay dedicated it to her inspirational daughter. Kay continues to raise awareness and money for research in Lynn's name.<ref name="ldfme">{{Cite web|url=http://blog.ldifme.org/2011/12/one-last-goodbye.html | title = One Last Goodbye|last = | first = | date = Dec 5, 2011 | website = [[Let's Do It for ME]]|archive-url=|archive-date=|url-status=|access-date=2018-08-16}}</ref> === TV news documentary=== Panorama TV Show [http://topdocumentaryfilms.com/helped-daughter-die/ "I Helped My Daughter Die"]<ref>{{Cite web|url=https://topdocumentaryfilms.com/helped-daughter-die/ | title = I Helped My Daughter Die|last = | first = | date = 2010 | website = topdocumentaryfilms.com|publisher=Grace Productions|archive-url=|archive-date=|url-status=|access-date=}}</ref> == Activity regime made her worse == * Voices From The Shadows—World Premiere and Panel Discussion<ref name="Appeal"/> * [https://www.facebook.com/MEActNetUK/photos/a.1629296327388324.1073741829.1624308461220444/1657774154540541/?type=3&theater Kay Gilderdale's Plea for Healthcare Education and Appropriate Patient Care]<ref>{{Cite web|url=https://www.facebook.com/MEActNetUK/photos/a.1629296327388324.1073741829.1624308461220444/1657774154540541/?type=3&theater | title = The #MEAction Network UK- Home of the MillionsMissing|last = | first = | date = Aug 26, 2016 | website = facebook|language=en|archive-url=|archive-date=|url-status=|access-date=2018-08-16}}</ref> :Kay Gilderdale, Lynn's mother, is quoted on the [[MEActionUK]] Facebook page: "We watched as our daughter, under the care of those who said they could cure her, lost the ability to do almost anything." == The trial of Lynn's mother, Kay Gilderdale == *[https://www.meassociation.org.uk/2009/07/mrs-kay-gilderdale-admits-aiding-and-abetting-suicide-of-her-daughter/ Mrs Kay Gilderdale admits aiding and abetting suicide of her daughter]<ref>{{Cite web|url=http://www.meassociation.org.uk/2009/07/mrs-kay-gilderdale-admits-aiding-and-abetting-suicide-of-her-daughter/ | title = Mrs Kay Gilderdale admits aiding and abetting suicide of her daughter|website=[[The ME Association]]|language=en-US|access-date=2018-08-16}}</ref><blockquote>A FORMER nurse accused of trying to kill her daughter after watching her battle a serious illness for 17 years yesterday admitted aiding her [[suicide]].</blockquote><blockquote>Kathleen Gilderdale, 54, known as Kay, was supported by family and friends as she entered her plea at Lewes Crown Court.</blockquote> *[http://www.fightingfatigue.org/mother-charged-with-attempted-murder-of-mecfs-daughter/ Mother Charged With Attempted Murder of ME/CFS Daughter]<ref>{{Cite web|url=http://www.fightingfatigue.org/mother-charged-with-attempted-murder-of-mecfs-daughter/ | title = Mother Charged With Attempted Murder of ME/CFS Daughter {{!}} Chronic Fatigue Syndrome | website = fightingfatigue.org|language=en-US|access-date=2018-08-16}}</ref><blockquote>Kay Gilderdale, 54, has been charged with the attempted murder of her bedridden daughter who suffered for 17 years from [[ME/CFS]]. Kay was the full-time caregiver to her daughter, Lynn Gilderdale, 31. Lynn died last December after a suspected morphine overdose reported by Mrs. Gilderdale’s ex-husband, Richard, a former police sergeant. If Gilderdale is convicted, she could spend the rest of her life in prison.</blockquote> *[http://news.bbc.co.uk/2/hi/uk_news/england/sussex/8479211.stm Mother cleared of ME daughter's attempted murder]<ref name="bbc">{{Cite news | url=http://news.bbc.co.uk/2/hi/uk_news/england/sussex/8479211.stm | title = Mother cleared in ME death trial | date = 2010 | access-date=2018-08-16|language=en-GB}}</ref><blockquote>A mother has been found not guilty of the attempted murder of her severely ill daughter who had ME. Bridget Kathleen Gilderdale, 55, of Stonegate, East Sussex, was cleared of attempting to murder Lynn Gilderdale by jurors at Lewes Crown Court.</blockquote> *[http://lynngilderdale.org/ Verdict's family statement.]<ref>{{Cite web|url=http://lynngilderdale.org/ | title = Verdict's family statement. | last = | first = | date = |website=lynngilderdale.org|archive-url=|archive-date=|url-status=|access-date=2018-08-16}}</ref> <blockquote>"My mother, Kay Gilderdale, has today been found “not guilty” of attempted murder of Lynn Gilderdale my sister, in early December 2008.</blockquote><blockquote>On behalf of Mum and Lynn’s family and friends, I would like to thank the judge and the jury for their compassion and fair and just considerations.</blockquote><blockquote>We believe this “not guilty” verdict properly reflects the selfless actions my mother took, on finding that Lynn had decided to take her own life, to make her daughter’s final moments as peaceful and painless as possible.</blockquote><blockquote>These actions exhibit the same qualities of dedication, love and care that Mum unwaveringly demonstrated throughout the 17 years of Lynn’s severe illness. I am very proud of her, and I hope that she will now be afforded the peace she deserves to rebuild her life and finally grieve the death of her daughter.</blockquote><blockquote>Thank you very much."</blockquote><blockquote>''This statement was issued by Lynn's brother, Stephen, after the verdict was issued.''</blockquote> == Media about Lynn Gilderdale == *[https://www.telegraph.co.uk/news/uknews/law-and-order/7074234/Lynn-Gilderdale-how-a-14-year-old-was-condemned-to-a-life-lived-from-a-bed.html Lynn Gilderdale: how a 14-year-old was condemned to a life lived from a bed]<ref>{{Cite news | url=http://www.telegraph.co.uk/news/uknews/law-and-order/7074234/Lynn-Gilderdale-how-a-14-year-old-was-condemned-to-a-life-lived-from-a-bed.html | title = Lynn Gilderdale: how a 14-year-old was condemned to a life lived from a bed|last = Gammell|first = Caroline | date = 2010 | access-date=2018-08-16|language=en-GB|issn=0307-1235}}</ref><blockquote>At the age of 14, Lynn Gilderdale was the picture of health. Sporty, athletic, she excelled at ballet, pursued her love of horses with vigour and was an accomplished musician.</blockquote> *[https://www.theguardian.com/society/2010/jan/25/lynn-gilderdale-me-assisted-suicide Trapped by ME, Lynn Gilderdale made it clear she wanted to die]<ref>{{Cite web|url=http://www.theguardian.com/society/2010/jan/25/lynn-gilderdale-me-assisted-suicide | title = Trapped by ME, Lynn Gilderdale made it clear she wanted to die|last = Laville | first = Sandra | date = 2010-01-25|publisher=The Guardian|language=en|access-date=2018-08-16}}</ref><blockquote>Live Journal was the one place where Lynn Gilderdale felt safe uttering her deepest, most troubling thoughts. Using a specially-designed handheld computer, and adopting the pseudonym Jessie Oliver, it was on the internet networking forum that she shared her desire to die with her closest friends.</blockquote> *2011, [https://www.youtube.com/watch?time_continue=155&v=OWMonLvpQoo 'TV clip: Mother talks of death of daughter with ME']<ref>{{Cite web|url=https://www.youtube.com/watch?time_continue=155&v=OWMonLvpQoo | title = TV clip: Mother talks of death of daughter with ME|last = | first = | date = Apr 15, 2011 | website = YouTube|publisher=ITV|archive-url=|archive-date=|url-status=|access-date=}}</ref> == Lynn's diary == *[http://www.dailymail.co.uk/news/article-1246053/Lynn-Gilderdales-heartbreaking-online-diary-chronicled-life-suffered-ME.html The ME victim's diary of despair: 'My body is tired and my spirit is broken. I have had enough, I long to die']<ref name="diary">{{Cite news | url=http://www.dailymail.co.uk/news/article-1246053/Lynn-Gilderdales-heartbreaking-online-diary-chronicled-life-suffered-ME.html | title = The daughter's diary of despair: 'My body is tired and my spirit is broken. I have had enough, I long to die'|last = | first = | date = Jan 26, 2010|work=Mail Online|access-date=2018-08-16|archive-url=|archive-date=|url-status=}}</ref> *[https://www.mirror.co.uk/news/uk-news/why-i-want-to-die---heartbreaking-letter-197570 Why I want to die - heartbreaking letter of mercy-killing daughter Lynn Gilderdale] *[http://www.blogistan.co.uk/blog/articles/transcript_of_frontline_documentary_on_me_from_1993 Transcript of Frontline documentary on ME from 1993]<ref>{{Cite news | url=http://www.blogistan.co.uk/blog/articles/transcript_of_frontline_documentary_on_me_from_1993 | title = Transcript of Frontline documentary on ME from 1993 | date = 2010-03-21|work=Indigo Jo Blogs|access-date=2018-08-16|language=en-US}}</ref> (Edited version of Lynn's Diary.) == See also == *[[Dorsal root ganglia]] *[[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome]] *[[Severe and very severe ME]] *[[Medical neglect and abuse]] *[[Causes of death]] ==Learn more== *[[One Last Goodbye]] *[https://en.wikipedia.org/wiki/Lynn_Gilderdale Wikipedia - Lynn Gilderdale] ==References == {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Deceased people with ME, CFS, and/or FMS]]
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