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List of news articles on ME and CFS
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== By: Advocates == === Funding === '''A job for a lone Congress member: Speak up for a forgotten disease'''<ref>{{citation |last = King|first = Llewellyn | date = 2 June 2015 | title = A job for a lone Congress member: Speak up for a forgotten disease|url= http://thehill.com/blogs/congress-blog/healthcare/243667-a-job-for-a-lone-congress-member-speak-up-for-a-forgotten|newspaper= The Hill|location= Washington, D.C.|access-date= }}</ref> ''The Hill'' Congress Blog By: [[Llewellyn King]]. (02 Jun 2015) "The cause is research on [[myalgic encephalomyelitis|Myalgic Encephalomyelitis]], also known as [[chronic fatigue syndrome|Chronic Fatigue Syndrome]] -- and often known by both sets of initials as [[ME/CFS]]. It's a disease I know quite a lot about because I've been writing and broadcasting about it for the last five years." === PACE trial === '''Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough'''<ref>{{citation |last = Tuller | first = David | date = Nov 18, 2015 | title = Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough|url= http://alumni.berkeley.edu/california-magazine/just-in/2015-11-20/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped|newspaper= California Magazine|location= |access-date= }}</ref> ''California Magazine:'' By: [[David Tuller]]. (18 Nov 2015) "Years ago, I never thought to myself, ‘Hey, I’ve gotta be the guy who writes about chronic fatigue syndrome.’ I mean, why would I? It just sort of happened. When research suggested in 2010 that the illness might be linked to a mouse retrovirus, I wrote a piece about it for The New York Times. After that I wrote another story, and then more stories, and then a few more—probably a dozen or so in all. But within a couple of years the mouse retrovirus hypothesis fell apart. And media interest in the illness vanished." '''“No scientific ground to stand on”'''<ref>{{citation |last = Tuller | first = David | date = 27 March 2017 | title = “No scientific ground to stand on”|url= http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12119/No-scientific-ground-to-stand-on#.WNmmu4HtYxY.twitter|newspaper= The Observant|location= The Netherlands|access-date= }}</ref> ''Observant'' By: David Tuller. (27 Mar 2017) "The PACE investigators continue in their refusal to actually address the key concerns raised about their study. First, they continue to refer to this as a "secondary" paper. While it is true that the PACE authors for reasons only they know designated "recovery" as a secondary outcome in the PACE protocol, "recovery" is surely not of secondary importance to patients, so dismissing the paper's significance in this way is unwarranted." === GET and CBT === '''ME – the truth about exercise and therapy'''<ref>{{citation |last = Colby|first = Jane | date = 24 February 2011 | title = ME – the truth about exercise and therapy|url= https://www.theguardian.com/society/2011/feb/24/truth-about-exercise-and-therapy|newspaper= The Guardian|location= London|access-date= }}</ref> ''The Guardian:'' By: [[Jane Colby]]. (24 Feb 2011) "However, in the latest study of [[graded exercise therapy|GET]] and [[cognitive behavioral therapy|Cbt]] for people with chronic fatigue syndrome, researchers concluded that the treatment resulted in worse physical function and bodily pain scores (Clinical Rheumatology, 15 January 2011)." '''This Is Why I Quit Exercise Therapy When it comes to my illness, I've learned to listen to my symptoms, trust my body, and give it the one thing it really needs: rest.'''<ref name="Camilla">https://www.buzzfeed.com/camillamaxted/this-is-why-i-quit-exercise-therapy</ref> ''Buzzfeed'' By: Camilla Maxted "Weirdly, I was OK while doing the actual walk itself; it would hit me afterwards and I'd have to lie down, and I'd wake the next day feeling as though I'd run a marathon." "After the worst phase of physical punishment for my efforts had passed, I also found that I'd lost the little function that I'd had before starting the exercise program." "Am I angry that I was given the wrong advice? Of course. And my heart breaks every time I read another story of how graded exercise put another person with ME/CFS in bed. More than this, though, I'm angry at how needlessly we have suffered. Why was biomedical research not begun earlier? Why were psychiatrists allowed to squash exploration in this field, by taking it and calling it their own? Why, even now, are people being told to undertake exercise programmes without being informed of the risks?"
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