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List of news articles on ME and CFS
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==Illnesses== '''Jennifer Brea ’05: Shooting Pain – Struggling to capture life with chronic fatigue [sic] on film in Canary in a Coal Mine'''<ref>{{citation |last = Rolston | first = Dorian | date = 4 February 2015 | title = Jennifer Brea ’05: Shooting Pain – Struggling to capture life with chronic fatigue on film in Canary in a Coal Mine|url= https://paw.princeton.edu/article/jennifer-brea-%E2%80%9905-shooting-pain|newspaper= Princeton Alumni Weekly|location= |access-date= }}</ref> ''Princeton Alumni Weekly'' By: Dorian Rolston '10. (Feb 4, 2015) "One warm day last March, [[Jennifer Brea]] ’05 rose from her bed, walked out onto her deck, and lay down. It was a modest outing for someone who had been confined indoors for five months. Brea suffers from [[myalgic encephalomyelitis|Myalgic Encephalomyelitis]], a form of chronic fatigue that is inexplicably crippling and easily exacerbated. To capture what life is like for those with the disease, she is directing [[Canary in a Coal Mine]], a feature-length documentary that is scheduled to be released in 2017." '''Why it will take more than exercise and a positive attitude to help people with Chronic Fatigue Syndrome'''<ref>{{citation |last = McKittrick|first = Kerry | date = 10 November 2015 | title = Why it will take more than exercise and a positive attitude to help people with Chronic Fatigue Syndrome|url= http://www.belfasttelegraph.co.uk/life/features/why-it-will-take-more-than-exercise-and-a-positive-attitude-to-help-people-with-chronic-fatigue-syndrome-34184538.html|newspaper= Belfast Telegraph|location= |access-date= }}</ref> ''Belfast Telegraph'' By: Kerry McKittrick. (Nov 10, 2015) "After a psychiatrist sparked controversy by suggesting exercise and a positive attitude could help people recover from this chronic condition, two sufferers explain why it will take more than that." '''[[Laura Hillenbrand]] releases new book while fighting chronic fatigue syndrome'''<ref>{{Cite news | last = Hesse | first = Monica | date = November 28, 2010 | title = Laura Hillenbrand releases new book while fighting chronic fatigue syndrome|url= http://www.washingtonpost.com/wp-dyn/content/article/2010/11/28/AR2010112803533.html|newspaper= The Washington Post|location= |access-date= }}</ref> ''The Washington Post'' By: Monica Hesse. (Nov 28, 2010) "Then there are the more recent wins. The time she managed to take an entire shower standing up. The time she and her husband, Borden Flanagan, drove to the alley at the end of their block so she could see something other than the cemetery behind their yard, and the time, a few weeks later, that they drove all the way to Starbucks. Sat in the parking lot. Drove home." '''The Unbreakable [[Laura Hillenbrand]]'''<ref>{{Cite news | last = Hylton | first = Wil S. | date = December 18, 2014 | title = The Unbreakable Laura Hillenbrand | url = http://www.nytimes.com/2014/12/21/magazine/the-unbreakable-laura-hillenbrand.html|newspaper= The New York Times|access-date= }}</ref> ''The New York Times'' By: Wil S. Hylton. (Dec 18, 2014) "Since 1987, Hillenbrand has been sick with chronic fatigue syndrome, which has mostly confined her indoors for the last quarter century." '''ME/CFS is 'poor relation' of other neurological conditions say Worcestershire campaigners'''<ref>{{citation |last = Connell|first = James | date = March 11, 2016 | title = ME/CFS is 'poor relation' of other neurological conditions say Worcestershire campaigners|url= http://www.worcesternews.co.uk/news/14339066.ME_CFS_is__poor_relation__of_other_neurological_conditions_say_Worcestershire_campaigners/|newspaper= Worcester News|location= |access-date= }}</ref> ''Worcester News'' By: James Connell. (Mar 11, 2016) "A debilitating condition which feels like 'permanent flu' is being treated as 'the poor relation' of other neurological conditions say frustrated sufferers in Worcestershire." '''Is chronic fatigue syndrome finally being taken seriously?'''<ref>{{citation |last = Cox | first = David | date = April 4, 2016 | title = Is chronic fatigue syndrome finally being taken seriously?|url= https://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously|newspaper= The Guardian|location= London|access-date= }}</ref> ''The Guardian'' By: David Cox. (Apr 4, 2016) "CFS is believed to affect around 1 million Americans and approximately 250,000 people in the UK. The effects can be devastating." '''Fatigue illness inspires documentary by filmmaker from Warner Robins and Dublin'''<ref>{{citation |last = Pannell|first = Michael W. | date = April 5, 2016 | title = Fatigue illness inspires documentary by filmmakers from Warner Robins and Dublin | url = http://www.macon.com/news/local/community/houston-peach/the-sun-news/article70187257.html|newspaper= The Telegraph|location= Macon|access-date= }}</ref> ''The Telegraph (Macon)'' By: Michael W. Pannell. (Apr 5, 2016) "While some still imagine the disease is "all in your head," Prior and others know otherwise. He said some cope with a measure of their former lives intact, but others enter a hidden existence of desperation and suffering." '''Chronic Fatigue Syndrome (ME/CFS): Uncovering a Mystery'''<ref>{{citation |last = Richardson | first = Michael | date = 6 May 2016 | title = Chronic Fatigue Syndrome (ME/CFS): Uncovering a Mystery|url= http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/|newspaper= Healthy Magazine|location= Alpine, UT|access-date= }}</ref> ''Healthy Magazine'' By: Michael Richardson. (May 6, 2016) "When the media talks about a mystery illness, it’s often in reference to some obscure disease with a horrific symptom. But there is an elusive, misunderstood illness that affects more than a million Americans of all ages, and researchers are hustling to get a grip on it, to create better pathways of care." '''Be Aware and Beware: Chronic Fatigue Syndrome Is an Equal Opportunity Disease'''<ref>{{citation |last = Hanson | first = Maureen | date = 20 May 2016 | title = Be Aware and Beware: Chronic Fatigue Syndrome Is an Equal Opportunity Disease|url= http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html|newspaper= The Huffington Post|location= New York|access-date= }}</ref> ''The Huffington Post'' By: Maureen Hanson. (May 20, 2016) "Two notorious outbreaks in the mid-1980s each affected hundreds of people. One was in a prosperous community at the edge of Lake Tahoe and another in a less affluent farming community near Lake Ontario. Most victims near Lake Tahoe were adults; most near Lake Ontario were children. Today, while some of the children have recovered to some degree, many of the adults remain very ill 30 years later." '''The Real Story About Chronic Fatigue Syndrome – A devastating illness that needs a better name'''<ref>{{citation |last = Hanson | first = Maureen | date = 19 October 2016 | title = The Real Story About Chronic Fatigue Syndrome – A devastating illness that needs a better name|url= http://garnetnews.com/2016/10/19/real-story-chronic-fatigue-syndrome/|newspaper= Garnet News|location= New York|access-date= }}</ref> ''Garnet News'' By: [[Maureen Hanson]]. (Oct 19, 2016) "Chronic Fatigue Syndrome is an illness that many may have heard of, but few, in reality, know much about. The misconception of the seriousness of the disease is in part caused by the use of the name Chronic Fatigue Syndrome (CFS), coined in 1988 by a committee convened at the Centers for Disease Control. Prior to that recommendation, the disease was known by the more intimidating name Myalgic Encephalomyelitis (ME), which is favored by many patients and still used in many countries overseas. Chronic Fatigue Syndrome trivializes the nature of the disease and its impact on the lives of the people who suffer with it." '''"Chronic fatigue is not a condition of the mind"'''<ref>{{citation |last = Liptrot | first = Kate | date = 10 November 2016 | title = "Chronic fatigue is not a condition of the mind"|url= http://www.yorkpress.co.uk/news/14880253._Chronic_fatigue_is_not_a_condition_of_the_mind_/|newspaper= The York Press|location= |access-date= }}</ref> ''The York Press'' By: Kate Liptrot. (Nov 10, 2016) "Reports that Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis (ME), can be treated with psychological therapies have frustrated those living with a very physical condition For Bill Clayton, there has been little progress in understanding ME since it was first derided as “yuppie flu”." '''Woman sleeps for up to 22 HOURS a day - but rare condition means she STILL feels tired'''<ref>{{citation |last = Turrill|first = Katrina | date = 12 November 2016 | title = Woman sleeps for up to 22 HOURS a day - but rare condition means she STILL feels tired | url = http://www.express.co.uk/life-style/life/731622/sleep-kleine-levin-syndrome-chronic-fatigue-myalgic-encephalomyelitis|newspaper= The Daily Express|location= London|access-date= }}</ref> ''The Daily Express'' By: Katrina Turrill. (Nov 12, 2016) "Heather has been battling two debilitating conditions - myalgic encephalomyelitis (ME) and Kleine-Levin Syndrome, also known as Sleeping Beauty syndrome - for more than seven years. Shockingly, her illnesses, which are not believed to be related, developed virtually overnight." '''Finding new life at a snail’s pace'''<ref>{{citation |last = Cooper | first = Al | date = 17 November 2016 | title = Finding new life at a snail’s pace|url= http://www.thespectrum.com/story/life/2016/11/17/finding-new-life-snails-pace/93802074/|newspaper= The Spectrum|location= McLean, VA|access-date= }}</ref> ''The Spectrum'' By: Al Cooper. (Nov 17, 2016) "Elizabeth Tova Bailey a hard-working professional gardener in Maine went on a short well-earned vacation to Europe where she encountered a mysterious and invisible pathogen that struck her down, leaving her totally devitalized and bedridden, unable even to sign her own name to a document. At the age of 34 she leaves her beloved Maine home and dog Brandy for a room in a convalescent studio where she lacks even the sight of the outdoors from a window she can’t raise her head to look out of." '''ME cluster bomb'''<ref>{{citation |last = Hammond | first = Phil | date = November 25, 2016 | title = ME cluster bomb|url= http://www.meassociation.org.uk/2016/11/me-cluster-bomb-medicine-balls-column-private-eye-25-november-2016/|newspaper = Private Eye|location= London|access-date= }}</ref> ''Private Eye: Medicine Balls'' By: Dr. Phil Hammond. (Nov 25, 2016) "MD's greatest regret as a junior doctor was not to take the time to understand [[myalgic encephalomyelitis|ME]] (myalgic encephalopathy). As a result, MD was infected with the same prejudices as many of his peers, namely that ME was largely psychological, and an illness of the middle classes ("[[Yuppie Flu]]")." '''Despite the number of Americans living with ME/CFS, little is known about the debilitating illness'''<ref>{{citation |last = Addison | first = Rebecca | date = November 30, 2016 | title = Despite the number of Americans living with ME/CFS, little is known about the debilitating illness|url= http://www.pghcitypaper.com/pittsburgh/despite-the-number-of-americans-living-with-me-cfs-little-is-known-about-the-debilitating-illness/Content?oid=1968212|newspaper= Pittsburgh City Paper|location= |access-date= }}</ref> ''Pittsburgh City Paper'' By: Rebecca Addison. (Nov 30, 2016) "Open eyes, wiggle toes, sit up, sink down, back up again. It’s 10 a.m. and Stefanie is just waking up. As part of her usual routine, she’d usually stay under the covers for only another hour before gingerly climbing out of bed. But two days ago she overexerted herself. Add that to her usual brain fog, gastrointestinal issues and the not-so-usual muscle aches she’s been feeling and it equals another day spent in bed. It will be her second day in a row, just one of a handful of days this month, and of a few dozen days this year — her third year living with myalgic encephalomyelitis/chronic fatigue syndrome." '''Sapped of strength and stricken with pain and confusion those with chronic fatigue syndrome seek help with an elusive illness'''<ref>{{citation |last = Spear | first = Lisa | date = 19 December 2016 | title = Sapped of strength and stricken with pain and confusion those with chronic fatigue syndrome seek help with an elusive illness|url= http://www.gazettenet.com/Whately-woman-battles-chronic-fatigue-120616-6595735|newspaper= Daily Hampshire Gazette|location= Northampton, MA|access-date= }}</ref> ''Daily Hampshire Gazette'' By: Lisa Spear. (Dec 19, 2016) "Erica Verrillo of Whately rarely leaves her house. She is exhausted much of the time and spends many days in her bathrobe, not venturing far from her bed. At her worst moments, a toothbrush or hair comb might feel as heavy to lift as an anvil." '''Coroner questions bed-blocking at Maelor Hospital after woman accidentally killed herself in A&E'''<ref>{{citation |last = Tyler | first = Ann | date = 12 January 2017 | title = Coroner questions bed-blocking at Maelor Hospital after woman accidentally killed herself in A&E|url= http://www.dailypost.co.uk/news/north-wales-news/coroner-questions-bed-blocking-maelor-12446117|newspaper= Daily Post|location= UK|access-date= }}</ref> ''Daily Post'' By: Ann Tyler. (Jan 12, 2017) "Mrs Smith was giving evidence at an inquest into the death of mother-of-four Sarah Ann Tyler, who accidentally killed herself in the hospital’s emergency department where she had been on a trolley for about eight hours, having been admitted after taking an overdose of paracetamol. Miss Tyler, of Ffordd y Gaer, Bradley, was found unconscious with a ligature made of an ECG cable around her neck in the early hours of February 9, 2015. The hearing was told that she had been suffering from depression and severe ME (myalgic encephalomyelitis) which had left her bed-bound." '''People say ‘Oh, I think I had that last week’ – Lisa battles illness and stigma'''<ref>{{citation |last = Potter | first = Tom | date = 9 February 2017 | title = People say ‘Oh, I think I had that last week’ – Lisa battles illness and stigma|url= http://www.ipswichstar.co.uk/news/people_say_oh_i_think_i_had_that_last_week_lisa_battles_illness_and_stigma_1_4884001|newspaper= Ipswich Star|location= |access-date= }}</ref> ''Ipswich Star'' By: Tom Potter. (Feb 9, 2017) "'I’ve heard it all,' says the 53-year-old former funeral arranger, who has been out of work for six years. 'Because there is no disability to see – unless someone is using walking sticks – it tends to not be taken seriously.'" ===Severe ME === '''‘Chronic Fatigue Syndrome Isn’t What You Think It Is — It’s Much Worse’'''<ref>{{citation |last = Land | first = Stephanie | date = 28 March 2016 | title = 'Chronic Fatigue Syndrome Isn’t What You Think It Is — It’s Much Worse'|url= http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html|newspaper= The Huffington Post|location= New York|access-date= }}</ref> ''The Huffington Post'' By: Stephanie Land. (Mar 28, 2016) "I found out recently an old friend of mine, [[Whitney Dafoe]], has a severe disease. He’d posted on his website that he was sick, but when he’d said “Chronic Fatigue Syndrome,” I thought that meant normal or mundane tasks overly exhausted him and that was the end of his affliction. I thought he’d get over it, eventually. The last message I’d received from him said, “Can’t type,” and from that point he sent little red hearts and links to songs by John Prine. That was Thanksgiving of 2014." '''Anna spends 22 hours a day in bed. But experts hope they're close to a cure.'''<ref name="smhanna" /> ''The Sydney Morning Herald'' By: Melissa Cunningham (Aug 14, 2019) "Physical exertion is my kryptonite," she said. "I know now that the more I exert, the sicker and sicker I get." '''Kara Jane Spencer: Severely ill singer seeks help finishing album.'''<ref>{{Cite news | url=https://www.bbc.com/news/uk-england-derbyshire-52647259 | title = Seriously ill singer seeks help finishing album|last = Bevis | first = Gavin | date = 2020-05-16|work=BBC News|access-date=2020-05-18|language=en-GB}}</ref> ''BBC News, Derby'' By: Gavin Bevis (May 16, 2020) "'''A singer seriously ill with a severe form of ME has asked musicians and studio technicians to help finish her debut album.''' Kara Jane Spencer, 29, from Shirebrook in Derbyshire, was diagnosed with the condition 13 years ago after suddenly losing the ability to walk. She now has severely restricted movement and requires full-time nursing care. Despite this, writing and singing songs has remained her passion." '''Declan Vallance’s desperate search for a cure to mystery illness'''<ref>{{citation |last = Tyler | first = Bethany | date = Jun 1, 2016 | title = Declan Vallance’s desperate search for a cure to mystery illness|url= http://www.geelongadvertiser.com.au/news/geelong/declan-vallances-desperate-search-for-a-cure-to-mystery-illness/news-story/abfbb7c532e98eb175d12699b1617c97|newspaper= Geelong Advertiser|location= |access-date= }}</ref> ''Geelong Advertiser'' By: Bethany Tyler. (Jun 1, 2016) Soft paywall. "A misunderstood illness has progressively crippled a young Barwon Heads man who has spent the past four years searching for a cure. The extreme pain and fatigue started when Declan Vallance was at university, and has gradually robbed movement from the 24-year-old by sapping energy from his arms, legs and now his vocal chords." '''I've gone from a super-fit party girl to being almost bedridden at 33'''<ref>{{citation |last = Collinson | first = Dawn | date = 29 February 2016 | title = I've gone from a super-fit party girl to being almost bedridden at 33|url= http://www.liverpoolecho.co.uk/news/real-lives/ive-gone-super-fit-party-10967888|newspaper= Liverpool Echo|location= |access-date= }}</ref> ''Liverpool Echo News'' By: Dawn Collinson. (Feb 29, 2016) "Just 18 months ago, Faye Dempsey had a career, ran up to eight miles a day and loved a night out with friends. Now, she says, she's like a prisoner in her own body, wracked with pain so badly there are days when she is virtually bedridden." === Research projects === '''UK to launch world's largest genetic study into chronic fatigue syndrome. Research aims to shine a light on condition that is believed to affect 250,000 people in UK'''<ref name="Guardian23Jun2020">{{Cite news | url=https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs | title = UK to launch world's largest genetic study into chronic fatigue syndrome|last = Siddique | first = Haroon | date = 2020-06-23|work=The Guardian|access-date=2020-06-25|archive-url=|archive-date=|language=en-GB|issn=0261-3077|quote=}}</ref> ''The Guardian'' By: Haroon Siddique. (Jun 23, 2020) '''Chronic fatigue syndrome: ‘It felt like I’d been in a car crash'''<ref name="Times23Jun2020">{{Cite news | url=https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-it-felt-like-id-been-in-a-car-crash-9nrk56fcb | title = Chronic fatigue syndrome: 'It felt like I’d been in a car crash'|last = O'Neil|first = Sean | date = 2020-06-23|work=The Times|access-date=2020-06-25|archive-url=|archive-date=|others=Video by Federica De Caria|language=en|issn=0140-0460|quote=}}</ref> ''The Times'' By: Sean O'Neil. (Jun 23, 2020) '''Anna spends 22 hours a day in bed. But experts hope they're close to a cure.'''<ref name="smhanna">{{Cite web|url=https://www.smh.com.au/national/victoria/anna-spends-22-hours-a-day-in-bed-but-experts-hope-they-re-close-to-a-cure-20190808-p52f3g.html | title = Anna spends 22 hours a day in bed. But experts hope they're close to a cure|last = Cunningham|first = Melissa | date = 2019-08-13 | website = The Sydney Morning Herald|language=en|access-date=2019-08-16}}</ref> '''Anna spends 22 hours a day in bed. But experts hope they're close to a cure.'''<ref name="smhanna">{{Cite web|url=https://www.smh.com.au/national/victoria/anna-spends-22-hours-a-day-in-bed-but-experts-hope-they-re-close-to-a-cure-20190808-p52f3g.html | title = Anna spends 22 hours a day in bed. But experts hope they're close to a cure|last = Cunningham|first = Melissa | date = 2019-08-13 | website = The Sydney Morning Herald|language=en|access-date=2019-08-16}}</ref> ''The Sydney Morning Herald'' By: Melissa Cunningham (Aug 14, 2019) "There has just been so little research into this condition in the past and almost no money put into biomedical research," Professor Fisher said. "For first time in the world we have the opportunity to start to examine the cause and effect to try to understand the biomedical basis." '''With his son terribly ill, a top scientist takes on chronic fatigue syndrome'''<ref>{{citation |last = Tucker | first = Miriam E. | date = 5 October 2015 | title = With his son terribly ill, a top scientist takes on chronic fatigue syndrome|url= https://www.washingtonpost.com/national/health-science/with-his-son-terribly-ill-a-top-scientist-takes-on-chronic-fatigue-syndrome/2015/10/05/c5d6189c-4041-11e5-8d45-d815146f81fa_story.html|newspaper= The Washington Post|location= |access-date= }}</ref> ''The Washington Post: Health & Science'' By: Miriam E. Tucker. (Oct 5, 2015) "Before he got sick, [[Whitney Dafoe]] was an award-winning photographer and a world traveler. He’d helped build a nunnery in India, ridden a motorcycle in the Himalayas and visited all 50 American states. He also worked on Barack Obama’s 2008 presidential campaign, and although he was already ill by January 2009, pushed himself to travel to Washington from his California home to photograph the inauguration." '''The puzzle solver – A researcher changes course to help his son'''<ref>{{citation |last = White | first = Tracie | date = Spring 2016 | title = The puzzle solver – A researcher changes course to help his son | url = http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html|newspaper= Stanford Medicine Magazine|location= |access-date= }}</ref> ''Stanford Medicine'' By: Tracie White. (Spring 2016) "For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison." '''Time to swot up on chronic fatigue'''<ref>{{citation |last = Brooks | first = Michael | date = 12 November 2015 | title = Time to swot up on chronic fatigue|url= http://www.newstatesman.com/culture/observations/2015/11/time-swot-chronic-fatigue|newspaper= New Statesman|location= London|access-date= }}</ref> ''New Statesman'' By: Michael Brooks. (Nov 12, 2015) "Future general practitioners need to be made aware that “psychosomatic” should not be the default suspicion." '''Chronic Fatigue Syndrome: Diagnostic Tests, Treatment, and Prevention Urgently Needed'''<ref>{{citation |last = Wittenberg|first = Clarissa K. | date = Feb 15, 2017 | title = Chronic Fatigue Syndrome: Diagnostic Tests, Treatment, and Prevention Urgently Needed | url = http://www.huffingtonpost.com/entry/chronic-fatigue-syndrome-diagnostic-tests-treatment_us_58a490e7e4b0e172783aa350?|newspaper= The Huffington Post - Blog|location= New York|access-date= }}</ref> ''The Huffington Post - Blog'' By: Clarissa K. Wittenberg. (Feb 15, 2017) "This blog was inspired by the good news that the [[National Institutes of Health]] (NIH) has doubled its research budget for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). However, it was shocking to see that the increase was from $7.6 million last year to $15 million this year. This is a very small research budget given that hundreds of thousands, even as high as 2.5 million men, women, and children suffer from this syndrome. Several studies use different criteria for diagnosis making for a wide variance in prevalence. The economic cost of ME/CFS is estimated at $17 to $24 billion annually [1]. NIH is the nation’s premiere biomedical research agency and as such, whatever budget is allotted, its influence adds credibility to the importance of studying ME/CFS." ===Lack of specialized medical care and suicidality=== '''Chronic fatigue syndrome sufferer considered euthanasia after lack of NHS help'''<ref name="DailyRecordDec2019">{{Cite web|url=https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609 | title = Chronic fatigue syndrome sufferer considered euthanasia after lack of NHS help | last = Mega | first = Marcello | authorlink = | date = 2019-12-28 | website = Daily Record|archive-url=|archive-date=|url-status=live|access-date=2019-12-28}}</ref> ''DAILY RECORD'' By: Marcello Mega. (Dec 28, 2019) "Given the number of people whose lives are ruined by this condition, you’d think there would be greater urgency to provide support and that the NHS would fund research and effective treatment." “I just want the right to be able to access safe housing, medical support and security without having to live under a stress cloud all my life.” "Sufferers have been offered a ray of hope by Scotland’s chief medical officer, Dr Catherine Calderwood." "At a recent meeting of the public petitions committee at Holyrood, she pledged to ask experts to analyse trials." '“Earlier this month, the Scottish Government published a five-year action plan to support people with a neurological condition backed by £4.5million of funding.“' ===Social services and healthcare abuses === '''Chronic fatigue syndrome: ME families accused of child abuse'''<ref name="Times24Jun2020">{{Cite news | url=https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt | title = Chronic fatigue syndrome: ME families accused of child abuse|last = O'Neill|first = Sean | date = 2020-06-24|work=The Times|access-date=2020-06-25|archive-url=|archive-date=|language=en|issn=0140-0460|quote=}}</ref> '''Blamed for wasting doctors' time, branded attention-seekers and told their ailment doesn't even exist: Three ME patients reveal the accusations they''' "'''have endured during their battle with the crippling condition'''<ref name="Mail2018">{{Cite web|url=https://www.dailymail.co.uk/health/article-7015737/Three-patients-reveal-accusations-endured.html | title = Three ME patients reveal the accusations they have endured | last = Matthews | first = Stephen | date = 2019-05-23 | website = Mail Online|access-date=2020-05-08}}</ref> ''Mail Online'' By: Stephen Matthews Health Editor For Mailonline and Sam Blanchard. (May 23, 2019) "Ms Chittick claims to have heard cruel nurses mutter the phrase 'attention-seeker' under their breath when they walked past her laying helplessly in bed. And before she discharged with no answers to her ailment, medics allegedly refused to help her sit up in bed, give her water or even let her shower. 'Despite my condition deteriorating drastically, I was repeatedly told that I'd be better after a good sleep and be back at work within a fortnight,' Ms Chittick said." "The 50-year-old said: ‘There is now more than enough biomedical evidence out there proving ME is not hysteria or deconditioning. ‘To argue otherwise is similar to climate change deniers. ‘It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – do no harm.’" '''ME parents’ fury at child abuse claims'''<ref>{{Cite news | publisher =Daily Express | date = Jun 23, 2015 |url=http://www.express.co.uk/news/uk/585891/ME-parents-fury-child-abuse-claims | title = ME parents’ fury at child abuse claims|last = Wheeler | first = Caroline}}</ref> ''The Express'' By: Caroline Wheeler. (June 23, 2015) "HUNDREDS of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse." [https://web.archive.org/web/20150625023636/http://www.ayme.org.uk/news/-/asset_publisher/2uYbtahTJKdk/content/ayme-featured-in-sunday-express-article Archived full article] '''"They took Karina and made her sick"'''<ref>{{citation |last = Autzen | first = Peter Friis | date = March 1, 2017 | title = They took Karina and made her sick | url = https://translate.google.co.uk/translate?sl=da&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http://fredericia.lokalavisen.dk/de-tog-karina-og-gjorde-hende-syg-/20170301/artikler/703079993/2023&edit-text|newspaper=Lokalavisen|access-date= }}</ref> ''Lokalavisen'' By: Peter Friis Autzen. (Mar 1, 2017) ''Google Translated'' "'They came with eight officers,' said Ketty Hansen and remembers back and 12 February 2013. It was the day when she and Per Hansen saw their daughter for the last time in several years. She was forcibly removed. Carried out the front door, while her parents were detained in the backyard and could not say goodbye." '''ME sufferer Eirik (30) denied the help of paramedics: - I was ridiculed and forced to crawl on the ground'''<ref>{{citation |last = Hvamb|first = Trine | date = March 12, 2017 | title = ME sufferers Eirik (30) denied the help of paramedics: - I was ridiculed and forced to crawl on the ground | url = https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http%3A%2F%2Fwww.tv2.no%2Fnyheter%2F8889523%2F&edit-text=&act=url|newspaper= TV2|location= Bergen, Norway|access-date= }}</ref> ''TV2'' By: Trine Hvamb (Mar 12, 2017) ''Google Translated'' "Harassed, discriminated against and discredited. How Eirik Aksnes (30) experienced Norwegian health care when he was diagnosed with ME. - I felt ridiculed and not believed in, he says." === Psychiatric paradigm === '''It's time for doctors to apologize to their ME patients - For too long the medical community has dismissed 'Chronic Fatigue Syndrome' as a mental illness which can be cured with therapy and exercise'''<ref>{{citation |last = Shepherd | first = Charles | date = 7 December 2015 | title = It’s time for doctors to apologise to their ME patients|url= http://www.telegraph.co.uk/news/health/12033810/Its-time-for-doctors-to-apologise-to-their-ME-patients.html|newspaper= The Telegraph|location= London|access-date= }}</ref> ''The Telegraph'' By: Dr. [[Charles Shepherd]]. (Dec 7, 2015) "The mud from the BMJ stuck. Like most doctors at the time, I left medical school believing that ME was not a real disease and I would probably never see a case. I was wrong." '''Chronic Fatigue Syndrome Is Not All In Your Head'''<ref>{{citation |last = Newman | first = Rebecca | date = 3 November 2016 | title = Chronic Fatigue Syndrome Is Not All In Your Head | url = http://www.elleuk.com/life-and-culture/elle-voices/longform/a32559/chronic-fatigue-syndrome-is-not-all-in-your-head/|newspaper= Elle|location= London|access-date= }}</ref> ''Elle UK'' By: Rebecca Newman. (Nov 3, 2016) "One morning when I was 15, I ran out of energy as I walked to a lesson at school. I sank down to rest my face on a frosty path, and couldn't get back up. I had been ill with glandular fever the previous summer and returned to school a week late but life was busy: it was the summer of 1995, I was an A-grade student, taking extra subjects and fencing at a national level." '''I Sometimes Feel Defeated by My Chronic Illness'''<ref>{{citation | last = Pippa | first = Stacey | date = Oct 1, 2018 | title = I Sometimes Feel Defeated by My Chronic Illness|url= https://www.huffingtonpost.co.uk/entry/disability-undefeatable_uk_5d921745e4b0019647ac4b29|newspaper=Huffington Post|location= |access-date= }}</ref> ''The Huffington Post'' By: Pippa Stacey. (Oct 1, 2019) "Do people really think that the idea of exercising or getting more active simply hasn't occurred to disabled people?" "We unfortunately live in a society that continually splits the disabled community into two camps: the inspirational superheroes, 'overcoming' their 'limitations' to climb mountains and win Paralympic medals, and The Rest: the ones seen as benefits scroungers, as the ones 'who don’t help themselves', the ones who are a drain on society." '''ME sufferers demand end to exercise treatment'''<ref name="ScotsGET" /> ''The Sunday Times'' By: Mark Macaskill. (May 10, 2020) Paywalled. Scottish ministers are being urged to withdraw a controversial treatment that is prescribed on the NHS to treat myalgic encephalomyelitis (ME) but is blamed for leaving many victims housebound or crippled. More than 21,000 Scots suffer from ME, also known as chronic fatigue syndrome, and coronavirus is expected to trigger more cases. There are concerns that GPs will prescribe graded exercise therapy (GET), a treatment offered on the NHS that asks patients to continually increase their levels of activity and “push through” symptoms. Campaigners claim many patients have been harmed by the therapy, and they are pressing for it to be dropped in the UK. ===Illness and disbelief=== '''Marcel Robert's view is a darkened room in a rest home: Life with chronic illness ME'''<ref name="NZHeraldNov2019">{{Cite news | url=https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12263275 | title = Marcel Robert's view is a darkened room in a rest home: Life with chronic illness ME|last = Akoorie | first = Natalie | date = 2019-11-02|work=New Zealand Herald|access-date=2019-12-28|language=en-NZ|issn=1170-0777|quote=|url-access=subscription | authorlink = |archive-date=2019-11-02|archive-url=https://m.e.awareness.nz/marcel-needs-research-for-me}}</ref> ''NEW ZEALAND HERALD'' By: Natalie Akoorie. (Nov 2, 2019) "It didn't work. In fact Robert grew sicker." "Marcel Robert now lives in a quiet, darkened room in a rest home." '"Following medical advice I paid for meals to be delivered and home help as Southern Health refused to believe he had a physical illness, saying they didn't recognise ME," Ron says.' As his son grew sicker, he watched on helpless, and says apart from [[Rosamund Vallings]], other doctors did not believe he had a physical illness. There's another code within DNA which responds to environment and things that are happening to you and can change in diseases, called the epigenetic code... We've looked at 30 million sites across their whole genome, to look for changes in these little chemical tags, and they change the function of the DNA in terms of whether information gets out or not." === Living life === '''Dear Graham Norton: I have M.E. and can't stop being jealous of friends'''<ref>{{citation |last = Norton | first = Graham | date = January 30, 2016 | title = Dear Graham Norton: I have M.E. and can't stop being jealous of friends|url= http://www.telegraph.co.uk/wellbeing/graham-nortons-advice/dear-graham-norton-i-have-me-and-cant-stop-being-jealous-of-frie/|newspaper= The Telegraph|location= London|access-date= }}</ref> ''The Telegraph'' By: Graham Norton. (Jan 30, 2016) "I’m sure you are getting the medical treatment you need but depression can often be associated with conditions such as yours, so make sure you are talking to someone about that alongside your M.E."<br> '''What it's like to have Chronic Fatigue Syndrome, a misunderstood illness that leaves people in wheelchairs and derails entire careers'''<ref>{{Cite news | url=https://www.insider.com/what-its-like-to-have-chronic-fatigue-syndrome-myalgic-encephalomyelitis-2019-11 | date = Jan 12, 2022 | title = What it's like to have Chronic Fatigue Syndrome, a misunderstood illness that leaves people in wheelchairs and derails entire careers | last = Millington | first = Alison|publisher=The Insider|access-date=2022-01-13}}</ref> ''The Insider'' By: Alison Millington. (Feb 18, 2020) "Clare Josa, 46, believes her CFS was brought on by "having four fillings replaced in four weeks while living in a student flat with no central heating. “I was at university when I got ME,” the author of "Ditching Imposter Syndrome" said. “I had to accept I had a problem when I woke up one morning and couldn't get out of bed, despite having an exam...” That was 20 years ago, and Josa is still living with the illness." <br> "Dr [[Nina Muirhead]], an NHS dermatologist and surgeon, became ill with ME herself in September 2016 after a bout of glandular fever. She told Insider that while she initially had to use days off and evenings to cope with admin as she was struggling to concentrate at work, she saw 13 different doctors before she was diagnosed. “I started changing where I would park so I'd be as close as possible to things, changing what I was wearing so it would be easier to get on and off,” she said. Her illness came along with headaches, nausea, and vomiting, before she was ultimately signed off work for 15 months — six of which were spent completely bed-bound. “I was unable to read or watch TV,” she said. “I was severely unwell. I couldn't live in the same house as my children for four or five months.” She started to get better little by little, using a wheelchair at times and easing her way back into work. Now, she works three half days a week, and rests in between." <br> === Financial hardships === '''Finanacial hardships of chronic illness'''<ref>{{citation |last = Salter | first = Caitlin | date = 18 February 2016 | title = Financial hardships of chronic illness|url= http://www.stuff.co.nz/dominion-post/news/76787260/financial-hardships-of-chronic-illness|newspaper= The Dominion Post|location= Wellington|access-date= }}</ref> ''The Dominion Post'' By: Caitlin Salter. (Feb 18, 2016) "In 1983, when Coddington was a high-achieving university student, she was struck down by a sudden flu-like illness. Years later she is still suffering. Her condition is called myalgic encephalomyelitis (ME) which followed a viral infection. Like [[Fibromyalgia]], there is no cure for ME and no universally effective treatment." '''Tipp teacher taking action against Zurich Life Assurance claims she was followed by investigators'''<ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Tipp teacher taking action against Zurich Life Assurance claims she was followed by investigators|url= http://www.breakingnews.ie/ireland/tipp-teacher-taking-action-against-zurich-life-assurance-claims-she-was-followed-by-investigators-754663.html|newspaper= BreakingNews.ie|location= Cork | date = 14 September 2016|access-date= }}</ref> ''BreakingNews.ie''. (Sep 14, 2016) "A retired secondary school teacher claims she was followed by private investigators after taking legal action against Zurich Life Assurance. Bridget Majella Daly from The Chase, Clonmel in Co. Tipperary is suing them for withdrawing payments under a salary protection scheme. In 1999, Bridget Majella Daly was diagnosed with Chronic Fatigue Syndrome and was forced to stop teaching a few years later." '''As eviction nears, LO mother and son wait for a miracle'''<ref>{{citation |last = O'Halloran | first = Kelsey | date = 28 December 2016 | title = As eviction nears, LO mother and son wait for a miracle|url= http://koin.com/2016/12/26/as-eviction-nears-lo-mother-and-son-wait-for-a-miracle/|newspaper= KOIN 6 (Reprint from Portland Tribune)|location= Portland, OR|access-date= }}</ref> ''KOIN 6 (Reprint from Portland Tribune)'' (Dec 28, 2016) "If the past decade has taught Cynthia Johnson anything, it’s that poor health and financial hardships can hit anyone at any time. But the Lake Oswego resident never imagined that the struggles would leave her and her son without a home this winter." === Drug therapy success === '''Is ''This'' Why You're Still So Tired?'''<ref>{{citation |last = Weinstock|first = Cheryl Platzman | date = 12 November 2015 | title = Is This Why You're Still So Tired?|url= http://www.oprah.com/health_wellness/Chronic-Fatigue-Syndrome|newspaper= O, The Oprah Magazine|location= New York|access-date= }}</ref> ''O, The Oprah Magazine'' By: Cheryl Platzman Weinstock. (Nov 12, 2015) "[[chronic fatigue syndrome|Chronic Fatigue Syndrome]] finally gets its due." '''Hemispherx BioPharma CEO Explains Chronic Fatigue Syndrome And How The Company Is Treating It'''<ref>{{citation |last = Hasse | first = Javier | date = 30 December 2016 | title = Hemispherx BioPharma CEO Explains Chronic Fatigue Syndrome And How The Company Is Treating It|url= https://www.benzinga.com/general/biotech/16/12/8851721/hemispherx-biopharma-ceo-explains-chronic-fatigue-syndrome-and-how-the|newspaper= Benzinga|location= Detroit Michigan|access-date= }}</ref> ''Benzinga'' By: Javier Hasse. (December 30, 2016) "Hemispherx BioPharma, Inc (HEB 0.72%) is a nano-cap biopharmaceutical research and development company that focuses on the treatment of seriously debilitating disorders. Benzinga recently had the chance to speak with CEO Tom Equels, who explained what chronic fatigue syndrome is and how one of the company’s drugs is used to treat it." === Advocacy and awareness === '''Cool customer Tom hopes to race into record books'''<ref>{{citation |last = King|first = Susan | date = 16 September 2016 | title = Cool customer Tom hopes to race into record books|url= https://twitter.com/staplessarah1/status/777868529039204352|newspaper= Sussex Express|location= |access-date= }}</ref> ''Sussex Express'' By: Susan King. (Sep 16, 2016) A superfit Crowborough teenager is running from Lands End to John O'Groats to say thank you to an inspirational teacher. '''Carol Head Receives Prestigious Honor from Oprah Magazine, Is Named 2017 Health Hero'''<ref>{{citation |last = P|first = C | date = Jan 2017 | title = Carol Head Receives Prestigious Honor from Oprah Magazine, Is Named 2017 Health Hero|url= http://www.solvecfs.org/wp-content/uploads/2016/12/Oprah-Magazine-Flier.pdf | newspaper= O, The Oprah Magazine|location= New York|access-date= }}</ref> ''O, The Oprah Magazine'' By: C. P. (Jan 2017) Print Only [LINK Reprint available via Solve ME/CFS] "Chronic fatigue syndrome (CFS) is the Rodney Dangerfi eld of diseases: It gets next to no respect. “We’re all fatigued” is the response Carol Head sometimes hears when she tells people she’s fundraising on behalf of CFS. “They don’t realize it’s a debilitating condition affecting up to two and a half million Americans,” she says." ====Millions Missing==== '''Chronic Fatigue Patients Fight for Research, Funding, and Recognition'''<ref>{{citation |last = Ducharme | first = Jamie | date = 27 September 2016 | title = Chronic Fatigue Patients Fight for Research, Funding, and Recognition | url = http://www.bostonmagazine.com/health/blog/2016/09/27/millions-missing-boston/|newspaper= Boston Magazine|location= |access-date= }}</ref> ''Boston Magazine'' By: Jamie Ducharme. (Sep 27, 2016) "On Tuesday, in 25 cities around the world, myalgic encephalomyelitis (ME) patients and allies will raise the voices they feel they’ve been denied for decades. Under the name Millions Missing, the ME community is protesting the neglect it says it’s felt from the government and the medical field—a neglect spokespeople say has left millions of people undiagnosed, untreated, and unnoticed." '''Life-draining disease needs research'''<ref>{{citation |last = Vastag|first = Bonnie | date = 23 September 2016 | title = Life-draining disease needs research|url= http://www.greenbaypressgazette.com/story/life/2016/09/23/life-draining-disease-needs-research/90843430/|newspaper= Green Bay Press-Gazette|location= |access-date= }}</ref> ''Green Bay Press-Gazette '' By: Bonnie Vastag. (Sep 23, 2016) "Myalgic encephalomyelitis (ME) — It’s the difficult to spell, hard to pronounce illness that afflicts our son, Brian Vastag, and millions of sufferers in the U.S. and around the world. On Sept. 27, the second Millions Missing protest is scheduled for Washington, D.C., and worldwide. I have mailed a pair of shoes to D.C. representing Brian — missing from the job he loves, missing from socializing with his friends, missing health care professionals who understand his disease. They’ll be displayed with thousands of other pairs as advocates work for adequate research dollars to help solve this scourge." '''Rows of empty shoes outside the Radcliffe Camera, Oxford will represent Chronic Fatigue Syndrome sufferers at Millions Missing'''<ref>{{citation |last = Hughes | first = Pete | date = 27 September 2016 | title = Rows of empty shoes outside the Radcliffe Camera, Oxford will represent Chronic Fatigue Syndrome sufferers at Millions Missing | url = http://www.oxfordtimes.co.uk/news/yourtown/oxford/14765529.Rows_of_empty_shoes_will_represent__hidden__sufferers_of_debilitating_condition/|newspaper= The Oxford Times|location= |access-date= }}</ref><ref>{{citation |last = Hughes | first = Pete | date = 27 September 2016 | title = Rows of empty shoes outside the Radcliffe Camera, Oxford will represent Chronic Fatigue Syndrome sufferers at Millions Missing | url = http://www.oxfordmail.co.uk/news/14765529.display/|newspaper= Oxford Mail|location= |access-date= }}</ref> ''The Oxford Times'' and ''Oxford Mail'' By: Pete Hughes. (Sep 27, 2016) "MORE than a hundred pairs of shoes will be lined up outside the Radcliffe Camera in Oxford tomorrow to represent sufferers unable to attend a demonstration to raise awareness for one of the most debilitating and least understood conditions of our time." '''Commentary: A day of action for a hidden epidemic'''<ref>{{citation |last = Solomon | first = Rivka | date = 26 September 2016 | title = Commentary: A day of action for a hidden epidemic|url= http://www.courierpostonline.com/story/opinion/columnists/2016/09/26/commentary-day-action-hidden-epidemic/91123178/|newspaper= Courier-Post|location= Cherry Hill, NJ|access-date= }}</ref> ''Courier-Post'' By: [[Rivka Solomon]]. (Sep 26, 2016) "A hidden epidemic has swept the globe — and your neighborhood is not immune. In its wake are millions of lives ruined. Its silent victims are all ages and backgrounds, in every state across America: Up to 99,000 in Illinois, 152,000 in New York and 211,000 in Texas. There is no prevention, no treatment and no cure for this barely acknowledged disease that gets barely any government funding." '''Dozens Rally To Bring Attention To Incurable Disease'''<ref>{{citation |last = Fielding|first = Lisa | date = 27 September 2016 | title = Dozens Rally To Bring Attention To Incurable Disease|url= http://chicago.cbslocal.com/2016/09/27/dozens-rally-to-bring-attention-to-incurable-disease/|newspaper= CBS Chicago|location= |access-date= }}</ref> ''CBS Chicago'' By: Lisa Fielding. (September 27, 2016) "It’s called Myalgic Encephalomyelitis or Chronic Fatigue Syndrome and it affects 17 million people worldwide. “This particular illness is more functionally debilitating than chronic congestive heart disease and cancer. The quality of life is significantly less. There’s over a million people in this country with this illness, 25% are homebound or bedbound,” said Leonard Jason, DePaul University, who’s been studying the disease for 25 years." '''Silent shoe protest at lack of funding for ME'''<ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Silent shoe protest at lack of funding for ME|url= http://www.itv.com/news/westcountry/2016-09-27/silent-shoe-protest-at-lack-of-funding-for-me/|newspaper= ITV News|location= London | date = 27 September 2016|access-date= }}</ref> ''ITV News''. (Sep 27, 2016) "More than a hundred pairs of shoes have been laid out on College Green in Bristol in a silent protest at the lack of funding for research into ME, also known as Chronic Fatigue Syndrome. The empty shoes represent people who couldn't be at the protest because of the condition." '''Shoes for a syndrome'''<ref>{{Cite news | last = Michael|first = Pascal | date = | title = Shoes for a syndrome|url= http://sandtonchronicle.co.za/165664/shoes-for-a-syndrome|newspaper= Sandton Chronicle | date = 2016|access-date= }}</ref> ''Sandton Chronicle'' By: Pascale Michael. (2016) "On 27 September, residents are encouraged to put out a pair of shoes to remember the sufferers of myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS)." '''100 pairs of shoes used to make poignant protest on ME research in Bristol city centre'''<ref>{{Cite news |last = Clensy|first = David | date = September 27, 2016 | title = 100 pairs of shoes used to make poignant protest on ME research in Bristol city centre|url= http://www.bristolpost.co.uk/100-pairs-of-shoes-make-silent-protest-on-me-research-in-bristol-city-centre/story-29755005-detail/story.html|newspaper= Bristol Post|access-date= }}</ref> ''Bristol Post'' By: David Clensy. (Sep 27, 2016) "A hundred pairs of shoes were laid out on College Green in a poignant silent protest against the lack of funding for research into the causes of ME, also known as Chronic Fatigue Syndrome (CFS). Each pair of shoes represented a sufferer of ME who was unable to attend the rally in Bristol city centre, but was too exhausted as a result of their condition to attend in person." '''Demonstrators at Stormont urge more research into chronic disease ME'''<ref>{{citation |last = Simpson | first = Claire | date = September 28, 2016 | title = Demonstrators at Stormont urge more research into chronic disease ME|url= http://www.irishnews.com/news/northernirelandnews/2016/09/28/news/demonstrators-at-stormont-urge-more-research-into-chronic-disease-m-e--712221/|newspaper= The Irish News|location= Belfast|access-date= }}</ref> ''The Irish News'' By: Claire Simpson. (September 28, 2016) "A major demonstration urging more research into M.E. was held at Stormont on Tuesday as part of a global day of action. Protests took part in 25 cities across the world, including Belfast, Melbourne, London and New York." '''Protesters Demand Increased Funding or ME/CFS Research'''<ref>{{citation | last1 = Schlossman | first1 = Fallon | last2 = Dugyala | first2 = Rishika | date = 28 September 2016 | title = Protesters Demand Increased Funding or ME/CFS Research|url= http://www.usnews.com/news/articles/2016-09-28/protesters-demand-increased-funding-or-me-cfs-research|newspaper= U.S. News & World Report|location= Washington, D.C.|access-date= }}</ref> ''U.S. News & World Report'' By: Fallon Schlossman and Rishika Dugyala. (Sep 28, 2016) "Protesters placed dozens of pairs shoes in front of the Department of Health and Human Services Tuesday, symbolizing people so affected by Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome, that they're unable to fully live their lives." '''MillionsMissing: A Hidden Epidemic and a Day of Action'''<ref>{{citation |last = Solomon | first = Rivka | date = 28 September 2016 | title = MillionsMissing: A Hidden Epidemic and a Day of Action | url = http://www.huffingtonpost.com/rivka-solomon/millionsmissing-a-hidden-_b_12183114.html?|newspaper= The Huffington Post|location= New York|access-date= }}</ref> ''The Huffington Post'' By: [[Rivka Solomon]]. (Sep 28, 2016) "A hidden epidemic has swept the globe — and your neighborhood is not immune. In its wake are millions of lives ruined. Its silent victims are all ages, from all backgrounds and in every state across America: Up to 99,000 in Illinois, 152,000 in New York and 211,000 in Texas. There is no prevention, no treatment and no cure for this barely acknowledged disease that gets barely any government funding." '''More than a million Americans are suffering from a debilitating disease that makes simple tasks impossible — and they're sick and tired of being ignored'''<ref>{{citation |last = Letzter | first = Rafi | date = 29 September 2016 | title = More than a million Americans are suffering from a debilitating disease that makes simple tasks impossible — and they're fed up with being ignored | url = http://www.businessinsider.com/me-cfs-protest-government-2016-9|newspaper= Business Insider|location= New York|access-date= }}</ref> ''Business Insider'' By: Rafi Letzter. (Sep 29, 2016) "Imagine living with a disease that renders you disabled and exhausted, unable to meet the physical demands of daily living. Now imagine that much of the medical establishment refused to believe your disease was "real" in the sense of a physical illness, and failed to fund research into its true causes and treatment." '''Millions Are Missing: Will The World Finally Notice?'''<ref>{{citation |last = Hanson | first = Maureen | date = 30 September 2016 | title = Millions Are Missing: Will The World Finally Notice?|url= http://www.huffingtonpost.com/maureen-hanson/millions-are-missing-will-the-world-finally-notice_b_12184042.html?|newspaper= The Huffington Post|location= New York|access-date= }}</ref> ''The Huffington Post'' By: Maureen Hanson. (Sep 30, 2016) "This week, demonstrations occurred in 25 global cities world-wide to focus attention on a neglected, devastating disease — Myalgic Encephalomyelitis (ME), an illness that also goes by the misleading name Chronic Fatigue Syndrome (CFS). At this event, the most powerful demonstrators were those who could not attend — the bedridden and housebound patients." '''Brock's Banter: Beyond “Sick and Tired”'''<ref>{{citation |last = Weir | first = Brock | date = 2 November 2016 | title = Brock's Banter: Beyond “Sick and Tired”|url= http://www.newspapers-online.com/auroran/?p=15705|newspaper= The Auroran|location= |access-date= }}</ref> ''The Auroran'' By: Brock Weir. (Nov 2, 2016) "The predicament in question was finding the wherewithal to get through a peaceful demonstration in Toronto to help facilitate a solution. But, when you’re mad as hell and you’re not going to take things lying down, how are you going to make a difference if the thing you feel like most in the world is lying down?" ==== Unrest film ==== '''‘[[Unrest]]’ documents lives of ME patients'''<ref>{{citation |last = Moody|first = Frances | date = 17 January 2017 | title = 'Unrest' documents lives of ME patients|url= http://www.parkrecord.com/entertainment/sundance-slamdance/unrest-documents-lives-of-me-patients/|newspaper= Park Record|location= Park City, UT |access-date= }}</ref> ''Park Record'' By: Frances Moody. (Jan 17, 2017) "Trying to ignore bouts of excruciating muscle pain, Jennifer Brea forced herself to walk home after a doctor diagnosed her with myalgic encephalomyelitis, commonly called chronic fatigue syndrome." '''Sundance 2017: ‘Unrest’ Is An Emotional Look At Human Strength'''<ref>{{citation |last = Booth|first = Kaitlyn | date = 23 January 2017 | title = 'Unrest' Is An Emotional Look At Human Strength|url= https://www.bleedingcool.com/2017/01/23/sundance-2017-unrest-emotional-watch/#comment-anchor|newspaper= Bleeding Cool|location= Rantoul, IL |access-date= }}</ref> ''Bleeding Cool'' By: Kaitlyn Booth. (Jan 23, 2017) "Unrest takes a very frank look at the often misunderstood illness known as ‘chronic fatigue syndrome’ that is both informative and hard to watch." ''''Unrest': Film Review | Sundance 2017'''<ref>{{citation |last = DeFore | first = John | date = 23 January 2017 | title = 'Unrest': Film Review Sundance 2017|url= http://www.hollywoodreporter.com/review/unrest-review-967867|newspaper= The Hollywood Reporter|location= Los Angeles, CA|access-date= }}</ref> '''The Hollywood Reporter'' By: John DeFore. (Jan 23, 2017) "Late in Jennifer Brea's Unrest, a doctor informs us that Multiple Sclerosis, the devastating nervous system disorder, was viewed by doctors as a "hysterical" illness — one essentially invented in the sufferer's own mind — right up until the CAT scan was introduced, allowing previously dismissive doctors to see what was going on inside their patients' bodies. Unrest finds a similar difficulty facing people with Chronic Fatigue Syndrome, a debilitating but controversial disorder that is barely understood and in some quarters denied entirely. Using her own experience with the syndrome as a springboard, Brea offers an affecting film that, when made available on video, will be embraced by the millions suffering CFS worldwide." '''Sundance Film Review: ‘Unrest’'''<ref>{{citation |last = Harvey|first = Dennis | date = 23 January 2017 | title = Sundance Film Review: ‘Unrest’|url= http://variety.com/2017/film/markets-festivals/unrest-sundance-film-festival-1201966610/|newspaper= Variety|location= Los Angeles, CA|access-date= }}</ref> ''Variety'' By: Dennis Harvey. (Jan 23, 2017) "A largely mysterious condition that reportedly afflicts as many as 17 million people worldwide, Chronic Fatigue Syndrome still flummoxes most physicians, and remains frequently dismissed as a psychosomatic “illness” — including by some nations. Still, it’s hard to buy the “all in your head” diagnosis when seeing the long-term, sometimes entirely bedridden victims of CFS in “Unrest.” Director Jennifer Brea is one of them herself, and this first-feature documentary chronicles her own struggles while taking in the perspectives of other patients and experts around the globe. Though the “Patient, film thyself” concept is starting to risk overexposure — Sundance alone premieres two such features this year, the other being ALS-themed “It’s Not Dark Yet” — “Unrest” is a high-grade example of the form that’s consistently involving, with content diverse enough to avoid the tunnel-visioned pitfalls of diarist cinema." '''Jennifer Brea Filmed Her Sundance Premiere Without Leaving Bed — And it Saved Her Life'''<ref>{{citation |last = Buder | first = Emily | date = 23 January 2017 | title = Jennifer Brea Filmed Her Sundance Premiere Without Leaving Bed — And it Saved Her Life|url= http://nofilmschool.com/2017/01/unrest-jennifer-brea-interview-sundance-2017|newspaper= No Film School|location= Brooklyn, NY|access-date= }}</ref> ''No Film School'' By: Emily Buder. (Jan 23, 2017) "One day, Jennifer Brea woke up to find that her life had been stolen from her. The newly engaged Harvard PhD student couldn't write her own name. She couldn't get out of bed; when she tried, she would collapse on the ground in pain and utter exhaustion. She could barely talk. She couldn't even draw a circle." '''How Great Human Beings Find Their Purpose'''<ref>{{citation |last = Kasanoff|first = Bruce | date = 22 January 2017 | title = How Great Human Beings Find Their Purpose|url= https://www.linkedin.com/pulse/how-great-human-beings-find-purpose-bruce-kasanoff|newspaper= LinkedIn - What Inspires Me|location= Mountain View, CA|access-date= }}</ref> ''LinkedIn - What Inspires Me'' By: Bruce Kasanoff. (Jan 22, 2017) "It's probably a mistake to think you were "born to be" an entrepreneur, cure cancer, or become an actor. Your purpose is not just a function of your inherent talents, but rather the product of how those talents interact with what life throws in your path." '''Entrepreneur Needed To Cure Anti-Initiative Disease'''<ref>{{citation |last = Kasanoff|first = Bruce | date = 26 January 2017 | title = Entrepreneur Needed To Cure Anti-Initiative Disease|url= http://www.forbes.com/sites/brucekasanoff/2017/01/26/entrepreneur-needed-to-cure-anti-initiative-disease/#4f1a7bb52d88|newspaper= Forbes - Leadership|location= Jersey City, NJ |access-date= }}</ref> ''Forbes - Leadersip'' By: Bruce Kasanoff. (Jan 26, 2017) "Perhaps 20 million people worldwide have had their lives curtailed by what I'm calling the Anti-Initiative disease. (In a moment, I'll tell you its more traditional names.) This disease is horrific in that it literally punishes its victims when they display initiative. For example, if a patient who can't get out of bed for weeks then has a good day and decides to go sit in her backyard, she may then be dramatically worse for months." '''‘Unrest’ Review: A Personal Look at Chronic Fatigue Syndrome, With Powerful Results — Sundance 2017'''<ref>{{citation |last = Kohn | first = Eric | date = 27 January 2017 | title = 'Unrest' Review: A Personal Look at Chronic Fatigue Syndrome, With Powerful Results — Sundance 2017|url= http://www.indiewire.com/2017/01/unrest-review-jennifer-brea-sundance-2017-documentary-1201774204/|newspaper= Indie Wire|location= USA |access-date= }}</ref> ''Indie Wire'' By: Erik Kohn. (Jan 27, 2017) "Chronic Fatigue Syndrome — otherwise known as Myalgic Encephalomyelitis — receives little exposure in the media and often goes misdiagnosed, even as it afflicts tens of thousands of people worldwide. Jennifer Brea’s stirring documentary “Unrest” goes a long way toward explaining the nature of the disease and the devastating impact it can have on family life, deriving much of its power from her own encounter with it." '''Sundance review: ‘Unrest’'''<ref>{{citation |last = Means | first = Sean P. | date = 26 January 2017 | title = Sundance review: ‘Unrest’|url= http://www.sltrib.com/home/4867522-155/sundance-review-unrest|newspaper= The Salt Lake Tribune|location= |access-date= }}</ref> ''The Salt Lake Tribune'' By: Sean P. Means. (Jan 26, 2017) "Filmmaker Jennifer Brea gets deeply personal in her documentary "Unrest," as she chronicles her debilitating illness and meets other sufferers around the world — all without leaving her bed." '''10 Kick-Ass Women Filmmakers to Know from Sundance 2017'''<ref>{{citation |last = Farmer | first = Shelly | date = Jan 25, 2017 | title = 10 Kick-Ass Women Filmmakers to Know from Sundance 2017|url= http://www.papermag.com/10-women-filmmakers-watch-sundance-2017-2201353209.html|newspaper= Paper|location= NY City|access-date= }}</ref> ''Paper'' By: Shelly Farmer. (Jan 25, 2017) "Princeton alum Jennifer Brea was pursuing a PhD in political science at Harvard when she was suddenly struck with a mysterious, debilitating illness. Left bedridden and only able to shoot two days a month, Brea – a Sundance Institute Fellow – turned the camera on herself in Unrest, chronicling her struggles with the little-understood myalgic encephalomyelitis (better known as Chronic Fatigue Syndrome) and her connection with four other families grappling with similar health issues." '''Sundance: Medical Mystery Doc 'Unrest' Nabbed by PBS (Exclusive)'''<ref>{{citation |last = Siegel|first = Tatiana | date = 31 January 2017 | title = Sundance: Medical Mystery Doc 'Unrest' Nabbed by PBS (Exclusive)|url= http://www.hollywoodreporter.com/news/sundance-medical-mystery-doc-unrest-nabbed-by-pbs-968176|newspaper= The Hollywood Reporter|location= Los Angeles, CA|access-date= }}</ref> ''The Hollywood Reporter'' By: Tatiana Siegel. (Jan 31, 2017) "The medical mystery doc Unrest has been solved by PBS. The network has acquired U.S. broadcast rights for its Emmy Award-winning series Independent Lens." '''Sind Vorurteile gegen kranke Menschen geschlechtsspezifisch?'''<ref>{{citation |last = Schickendanz|first = Melanie | date = 2 January 2017 | title = Sind Vorurteile gegen kranke Menschen geschlechtsspezifisch?|url= http://www.huffingtonpost.de/melanie-schickedanz/sind-vorurteile-gegen-kra_b_14544026.html|newspaper= The Huffington Post - Germany|location= Munich|access-date= }}</ref> German Language ''The Huffington Post - Germany'' By: Melanie Schickendanz. (Jan 2, 2017) "Im Oktober 2013 startete Jennifer Brea eine Kampagne über Kickstarter, bei der es darum ging, Geld für eine Dokumentation namens Unrest (damals Canary in a Coal Mine) über die Krankheit ME (Myalgische Enzephalomyelitis, auch bekannt als chronisches Erschöpfungssyndrom bzw. CFS) zu sammeln. Nach drei Tagen waren schon 50.000 US-Dollar zusammengekommen. Am Ende hatten über 2.500 Unterstützer eine Summe von 212.692 US-Dollar gespendet." '''If you have to shoot your own illness to show that you are not crazy?'''<ref>{{citation |last = Thorup|first = Mette-Line | date = 16 March 2017 | title = If you have to shoot your own illness to show that you are not crazy?|url= https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=https%3A%2F%2Fwww.information.dk%2Findland%2F2017%2F03%2Fnoedt-filme-egen-sygdom-vise-tosset&edit-text=&act=url|newspaper= Information |location= Denmark|access-date= }}</ref> ''Information'' By: Meete-Kine Thorup (Mar 16, 2017) Google Translated "A woman moans tormented in a gritty dark. She is lying on a wooden floor and trying to rise by supporting arms against the ground, but fail back. She pushes instead toward the bed under the great effort and with a camera turned against itself in one hand." '''New film about chronically tired: their cells are sick - doctors and friends say they just need to get their act together'''<ref>{{citation |last = Rasmussen | first = Lars Igum | date = 17 March 2017 | title = New film about chronically tired: their cells are sick - doctors and friends say they just need to get their act together |url= https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http%3A%2F%2Fpolitiken.dk%2Fforbrugogliv%2Fsundhedogmotion%2Fart5874906%2FDeres-celler-i-kroppen-er-syge-%25E2%2580%2593-l%25C3%25A6ger-og-venner-siger-de-bare-skal-tage-sig-sammen&edit-text=&act=url|newspaper= Politiken |location= Denmark|access-date= }}</ref> ''Politiken'' By: Lars Igum Rasmussen (Mar 17, 2017) Google Translated "The American graduate student at Harvard University Jennifer Brea could everything."
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