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List of deaths caused by myalgic encephalomyelitis or chronic fatigue syndrome
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[[File:Sophia mirza.jpg|thumb|right|Sophia suffered from [[Severe and very severe ME|very severe ME]], which caused her death]] When [[Sophia Mirza]], a young artist, died in 2005 her death was widely reported as the first death from ME/CFS, but Sophia's may not have been the first death certificate stating that the cause of death was ME or [[chronic fatigue syndrome]].<ref name="RichardSenior" /><ref name="magicalmedicine" /> After Mirza's death, [[Merryn Crofts]] died from ME shortly after her 21st birthday.<ref name="magicalmedicine" /><br style="clear:both"> __NOTOC__ {| class="wikitable sortable" |+ |- ! Name !! Age at death !! Died !! Notes |- | [[Roger Cicero]] || 45 || 2016 || Died of a stroke which caused reported as being caused by [[chronic fatigue syndrome]], just hours after performing.<ref name="DeutscheWelle20160329rc">{{citation | author = Deutsche Welle (news) | title = German jazz singer Roger Cicero dies, aged 45 | date = Mar 29, 2016 | url = http://www.dw.com/en/german-jazz-singer-roger-cicero-dies-aged-45/a-19147899 }}</ref> He had collapsed with severe weakness the previous year, leading to a diagnosis of [[myocarditis]], and had to cancel the remainder of his tour.<ref name="bunte">{{Cite news | url=https://www.bunte.de/stars/star-news/trauerfaelle/roger-cicero-45-er-lebte-so-gesund-wie-konnte-das-passieren-276891.html| title = Er lebte so gesund! Wie konnte das passieren?|website=Bunte de Redaktion | date = 2016-03-30|trans-title=|quote=Doch wie konnte es trotz seines gesunden Lebensstils zu seinem tragischen Tod kommen? Hat sich der leidenschaftliche Sänger so kurz vor seiner Tournee womöglich zu viel Stress zugemutet? Schon Ende letzten Jahres musste Roger Cicero wegen akuter Schwächesyndrome Termine absagen, er erlitt einen Zusammenbruch. Die Diagnose damals: Herzmuskelentzündung. Doch der Sänger, der seine Arbeit so liebte, schonte sich kaum, reiste von einer Stadt in die nächste, um seine „Cicero sings Sinatra“-Tour zu promoten, die im April starten sollte. Hat er sich zu wenig Ruhe gegönnt?}}</ref> |- | [[Emily Collingridge]] || 30 || 2012 || Died from "respiratory arrest in an individual with clinically diagnosed ME due to the side-effects of prescription drugs and aspiration of gastric contents" during a long hospital admission.<ref name="IMER2016">{{Cite web|url = https://www.25megroup.org/wp-content/uploads/2018/07/A-Day-for-Remembrance-Emily.pdf | title=In Remembrance: Emily Rose Collingridge | date = Jul 2017 | website = [[Invest in ME Research]]}}</ref> Emily became tube fed due to ME, doubly incontinent, suffered extreme pain and transient blindness and [[periodic paralysis|epidoses of paralysis]].<ref name="IMER2016" /> Ill with ME since she was six years old.<ref name="IMER2016" /> |- | [[Merryn Crofts]] || 21 || 2017 || Merryn's death was due to severe malnutrition after the withdrawal of her nutrition due to ME.<ref name="MerrynBBC">{{Cite news | url=https://www.bbc.com/news/health-44969741 | title = 'Vindication' for woman who wanted ME on death certificate | date = 2018-07-27|work=BBC News|access-date=2021-12-08|language=en-GB}}</ref> Doctors had previously suggested her weight loss was due to [[anorexia, eating disorders and ME/CFS|anorexia]] but investigating found intestinal failure and swallowing problems. She had a feeding tube, then an intravenous nutrition line, but it became infected.<ref name="Merryn5halfstone">{{Cite web|url=http://www.dailymail.co.uk/news/article-5569091/Woman-dies-aged-21-weighing-just-six-stone-wasting-away-ME.html | title = Woman dies aged 21 weighing just six stone after wasting away from ME | last = Baker | first = Keiligh | date = 2018-04-02 | website = Mail Online|access-date=2021-12-08}}</ref> Merryn was bedbound with extreme [[photophobia|sensitivity to light]], convulsions, breathing problems and [[paralysis]].<ref name="MerrynMEN">{{Cite web|url=https://www.manchestereveningnews.co.uk/news/greater-manchester-news/bed-bound-unimaginable-pain-watching-14474293 | title = 'Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture' | last = Wilkinson | first = Damon | date = 2018-04-01 | website = Manchester Evening News|language=en|access-date=2021-12-08}}</ref> |- | [[Brynmor John]] || 54 || 1988 || Collapsed outside the House of Commons gym, after being told to exercise for ME.<ref name="magicalmedicine" /> |- | Kara Jane Spencer | 32 | 2023 |Kara was a British singer-songwriter who died from [[sepsis]] and Myalgic Encephalomyeltis, after battling for fifteen years with M.E.<ref>{{Cite web|url=https://karajanesings.com/2023/01/02/announcement/ | title = A Heartbreaking Announcement | date = 2023-01-02|website=Kara Jane Sings|language=en-GB|access-date=2023-01-09}}</ref><ref name="KBBC2023">{{Cite news | url = https://www.bbc.co.uk/news/uk-england-derbyshire-64160788 | title = Kara Jane Spencer: Severely ill singer who recorded hit album dies | first = Gavin | last = Bevis | website = BBC News | access-date = 2023-01-10 }}</ref> ME was recorded as the cause of death on her death certificate.<ref>{{Cite web|url=https://karajanesings.com/2023/01/06/deathcert/ | title = M.E Recorded As Underlying Cause of Kara's Death| date = 2023-01-06|website=Kara Jane Sings|language=en-GB|access-date=2023-01-09}}</ref> |- | [[Sophia Mirza]] || 32 || 2005 || Causes of death: 1. [https://www.medicinenet.com/script/main/art.asp?articlekey=30776 Acute renal failure] arising from the effects of [[chronic fatigue syndrome]]; 2. previous [[meningitis]]; high body mass index, dorsal root [[ganglionitis]]; and [[hepatic steatosis]].<ref name="deathcertificate">{{Cite web|url=http://www.sophiaandme.org.uk/legal/l1.jpg | title = Certified Copy of an Entry - Death Certificate | last = Mirza | first = Sophia | date = |website=SophiaAndME.org.uk|archive-url=|archive-date=|url-status=|access-date=}}</ref><ref name="NewScientist2006">{{Cite news | url=https://www.newscientist.com/article/dn9342-first-official-uk-death-from-chronic-fatigue-syndrome/ | title = First official UK death from chronic fatigue syndrome | last = Hooper | first = Rowan | date = Jun 16, 2006|work=New Scientist|access-date=2018-08-10|archive-url=|archive-date=|url-status=|language=en-US}}</ref> Severe infection of her spine was found at autopsy.<ref>{{Cite web|url=http://www.sophiaandme.org.uk/neuropathologicalreport.html | title = Neuropathological Report | last = | first = | date = | website = sophiaandme.org.uk|archive-url=|archive-date=|url-status=|access-date=2018-08-10}}</ref> [[Severe ME Awareness Day]] created in memory of her.{{citation needed | date = June 2020}} |- | Annabel Senior || 60 || 2003 || Richard Senior that reported his wife died in North Wales, and had CFS recorded on her death certificate. <ref name="RichardSenior">{{Cite news | url=https://www.newscientist.com/letter/mg19125620-600-not-sadly-the-first/ | title = Not, sadly, the first | last = Senior | first = Richard | date = Jul 26, 2006|work=New Scientist|access-date=2018-08-10|archive-url=|archive-date=|url-status=|others=|at=Comment section|language=en-US}}</ref> |- | [[Laurie Walker]] || 59 || 2001 || Laurie was an artist who became increasingly ill with [[Chronic Fatigue Immune Dysfunction Syndrome]] (CFIDS). She developed her own hypothesis about CFIDS, and contributed to research, always fighting to try to get better. She eventually died suddenly when in her art studio.<ref>{{Cite web |url = http://www.legacy.com/obituaries/montrealgazette/obituary.aspx?pid=148643453 | title = Obituary - Laurie Walker|access-date = 2021-12-09|quote =Working with others she devloped an hypothesie regarding the cause of Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), the disease that led to her death.}}</ref> |- | [[Andrew Williams]] || 23 || 2019 || Andrew was a young British man who developed ME/CFS when studying genetics at the University of Edinburgh. After his death, funds were raised to sponsor a PhD student to research genetics in ME/CFS patients.<ref name="MergeSpr2022">{{Cite journal |title = Investing in the future | url = https://www.meresearch.org.uk/wp-content/uploads/2022/05/BreakthroughSpring2022.pdf | journal = Breakthrough | date = Spring 2022 | pages = 11-12 | archive-date = 2022-04-04 | archive-url = https://web.archive.org/web/20220404113444/https://www.meresearch.org.uk/research/genetic-risk-factors/ | url-status = live }}</ref><ref name="genetic-risks">{{Cite web|url=https://www.meresearch.org.uk/research/genetic-risk-factors/|title=Experimental investigation of genetic risk factors for ME/CFS revealed by the DecodeME project|website=[[ME Research UK]]|access-date=2023-08-12}}</ref> |- <!-- | Example || Example || Example || Example |- | Example || Example || Example || Example --> |} ==Publications== In 2010, Professor [[Malcolm Hooper]] published [http://www.margaretwilliams.me/2010/magical-medicine_hooper_feb2010.pdf Magical Medicine: How to Make a Disease Disappear], which described the deaths of Sophia Mirza, Merryn Crofts, [[Brynmor John]] MP, who collapsed outside the House of Commons gyms after being told to [[exercise]] by his doctor, and many others whose deaths were attributed to ME.<ref name="magicalmedicine">{{Cite web|url= http://www.margaretwilliams.me/2010/magical-medicine_hooper_feb2010.pdf | title =Magical Medicine: How to Make a Disease Disappear | date = Feb 12, 2020 | last = Hooper | first = Malcolm | authorlink = Malcolm Hooper|others=Contributions from members of the ME community. Researched by [[Margaret Williams]]}}</ref><ref>{{Cite web |url = http://www.margaretwilliams.me/2010/magical-medicine-press-release_12feb2010.pdf | last = Hooper | first = Malcolm | authorlink = Malcolm Hooper| title = Press release | date = Feb 12, 2010}}</ref>{{Rp|15-17}} ==See also== *[[Sophia Mirza]] *[[Merryn Crofts]] *[[Brynmor John]] *[[Causes of death]] *[[Severe and very severe ME]] *[[Memorial lists]] *[[:Category:Deceased people with ME, CFS, and/or FMS|Deceased people with ME, CFS, and/or FMS]] (category) ==Learn more== ==References== {{Reflist}} [[Category:Lists]] [[Category:Deceased people with ME, CFS, and/or FMS]] [[Category:History]]
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