Lily Chu

Source: iacfsme.org

Lily Chu, MD, MSHS, is board certified in both internal medicine and geriatric medicine.

Education

As per LinkedIn bio:

• Geriatric Medicine Fellowship, University of California, Los Angeles
• MSHS, Public Health, University of California, Los Angeles
• Internal Medicine Residency, University of Rochester
• MD, University of Washington
• BS, Biology, University of Washington

Boards and Committees

• Community Advisory Board Member at Stanford University Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Initiative

• Co-Vice president of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

• Panel member of the 2015 Institute of Medicine report: Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

April 2013 FDA Workshop Survey

• Preliminary Results – April 2013 FDA Workshop Survey, By Lily Chu, Leonard Jason, Madison Sunnquist, Suzanna So

Open Letter to The Lancet

Two open letters to the editor of The Lancet urged the editor to commission a fully independent review of the PACE trial, which the journal had published in 2011. In 2016, Dr. Chu, along with 41 colleagues in the ME/CFS field, signed the second letter.

• 10 February 2016, An open letter to The Lancet, again - Virology blog

ME/CFS Common Data Element (CDE) Project

Co-chair of Post-Exertional Malaise Working Group and a member of the Sleep Working Group and the Biomarkers Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention.

Quotes

• 2016 - "Ultimately the best way to prevent suicide in ME/CFS will be to find effective disease-modifying treatments or cures for it."

Publications

• 2017, Article commentary - Differences of opinion on systemic exercise intolerance disease are not ‘mistakes’: a rejoinder to Jason Sunnquist, Gleason and Fox
• May 2016, Suicide and ME/CFS -- Lily Chu, MD, MSHS
• 2012, "Exercise and chronic fatigue syndrome: maximize function, minimize post-exertional malaise," Letter to the Editor, European Journal of Clinical Investigation

Notable Studies

• 2018, Deconstructing post-exertional malaise in myalgic encephalomyelitis/ chronic fatigue syndrome: A patient-centered, cross-sectional survey (Full Text)
• 2017, Cytokine signature associated with disease severity in chronic fatigue syndrome patients (Full Text)
• 2017, Patients diagnosed with Myalgic encephalomyelitis/chronic fatigue syndrome also fit systemic exertion intolerance disease criteria

Talks and Interviews

• 2015, Solve CFS Webinar - Post-Exertional Malaise: History, Characteristics, Evidence

Written questions and answers to Dr. Chu's webinar

Questions to NIH during Advocacy Call

• 2 Nov 2016, NIH ME/CFS Advocacy Call with Dr. Walter Koroshetz, Dr. Vicky Whittemore, Dr. Joseph Breen, and Dr. Avindra Nath - (Recorded call and Transcript) - During the question and answer session, Dr Chu asked if the ME/CFS interest group seminars would be online and open to extramural investigators but was told by Dr. Avindra Nath that the seminars were set up to be one-on-one interactions.

HHS/CFSAC Testimony

• CFSAC Public Testimony December 2014
• Written Testimony for June 2012 meeting
• Written Testimony for Nov 2011 meeting
• Written Testimony for May 2011 meeting
• Written Testimony for October 2009 meeting

Online Presence

• LinkedIn

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

cytokine any class of immunoregulatory proteins secreted by cells, especially immune cells. Cytokines are small proteins important in cell signaling that modulate the immune system. (Learn more: me-pedia.org)

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.