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Kim McCleary
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{{NeedsImage}} '''K. Kim McCleary''', also known as '''K. Kimberly Kenney''', is the Managing Director of FasterCures, a Center of the Milken Institute that works to speed and improve the medical research system.<ref>http://www.milkeninstitute.org/about/our-team/view/160</ref> From 1991 until June 2013, she served as President and CEO of the Chronic Fatigue and Immune Dysfunction Syndrome Association of America, often abbreviated CFIDS Association of America or CAA, (now the [[Solve ME/CFS Initiative]]). During her tenure the Association was instrumental in developing the 1998 policy ruling for the Social Security Administration that first recognized [[Chronic fatigue syndrome|CFS]] as a disabling condition; fought to create [[CFSAC]], the [[ME/CFS]] advisory committee to the [[Health and Human Services]] Department; exposed the [[Centers for Disease Control and Prevention|CDC]]'s misappropriation of $12.9 millions of dollars designated for CFS program and worked with the agency and members of Congress, including, Senator Harry Reid, to restore those funds to research and awareness activities; helped launch the Research Institute Without Walls with Dr. [[Suzanne Vernon]]; organized lobby days; and led numerous fundraising and public awareness campaigns.<ref>http://solvecfs.org/wp-content/uploads/2013/06/NAME_CHANGE_PressRelease.pdf</ref><ref>https://www.linkedin.com/in/kim-mccleary-18466b6</ref> As with so many of the illness's most dedicated champions, McCleary has a family member who has ME/CFS.<ref>http://www.healthrising.org/blog/2013/04/24/end-of-an-era-kim-mccleary-steps-down-after-22-years-at-the-helm-of-the-cfids-association-of-america-caa/</ref> ==Awards== *2001, Special Service Award awarded by [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] ([[IACFS/ME]])<ref>{{Cite web|url=https://www.iacfsme.org/iacfs-me-awardees | title = IACFS/ME Awardees|website= IACFS/ME|access-date=2020-04-23}}</ref> ==CFSAC testimony== *May 2009, [https://wayback.archive-it.org/3919/20140324194802/http://www.hhs.gov/advcomcfs/meetings/presentations/mccleary_0509.pdf Written testimony] *Oct 2009, [https://wayback.archive-it.org/3919/20140324194722/http://www.hhs.gov/advcomcfs/meetings/presentations/mcclearyoct09.pdf Written testimony] *May 2010, [https://wayback.archive-it.org/3919/20140324194548/http://www.hhs.gov/advcomcfs/meetings/presentations/cfsac_testimony_may_10th_kimberly_mccleary.pdf Written testimony] *Oct 2010, [https://wayback.archive-it.org/3919/20140324193619/http://www.hhs.gov/advcomcfs/meetings/presentations/testimony_10142010_kimmccleary.pdf Public testimony] *May 2011, [https://wayback.archive-it.org/3919/20140324193523/http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201105_mccleary.pdf Written testimony] ==Articles== *[https://www.linkedin.com/pulse/6-must-do-steps-strengthen-patient-centricity-2016-kim-mccleary?trk=prof-post 6 Must-Do Steps to Strengthen Patient-Centricity in 2016, by Kim McCleary] ==Notable studies== *2014, No association found between the detection of either [[xenotropic murine leukemia virus-related virus]] or polytropic murine leukemia virus and [[chronic fatigue syndrome]] in a blinded, multi-site, prospective study by the establishment and use of the [[SolveCFS BioBank & Patient Registry|SolveCFS BioBank]]<ref>{{Cite journal | last = Irlbeck | first = David M. | last2 = Vernon | first2 = Suzanne D. | authorlink2 = Suzanne Vernon | last3 = McCleary | first3 = K. Kimberly | authorlink3 = Kim McCleary | last4 = Bateman | first4 = Lucinda | authorlink4 = Lucinda Bateman | last5 = Klimas | first5 = Nancy G. | authorlink5 = Nancy Klimas | last6 = Lapp | first6 = Charles W. | authorlink6 = Charles Lapp | last7 = Peterson | first7 = Daniel L. | authorlink7 = Daniel Peterson | last8 = Brown | first8 = James R. | last9 = Remlinger | first9 = Katja S.| date = 2014 | title = No association found between the detection of either xenotropic murine leukemia virus-related virus or polytropic murine leukemia virus and chronic fatigue syndrome in a blinded, multi-site, prospective study by the establishment and use of the SolveCFS BioBank | url =https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236736/|journal=BMC Research Notes|volume=7 | pages = 461|doi=10.1186/1756-0500-7-461|via= | last10 = Wilfret | last11 = Gerondelis | first11 = Peter | first10 = David A.}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236736/ (Full Text)] ==Learn more== *Apr 24, 2013, [http://www.healthrising.org/blog/2013/04/24/end-of-an-era-kim-mccleary-steps-down-after-22-years-at-the-helm-of-the-cfids-association-of-america-caa/ "End of an Era: Kim McCleary Steps Down After 22 Years at the Helm of the CFIDS Association of America (CAA)," by Cort Johnson] ==See also== *[[Solve ME/CFS Initiative]] *[[CFSAC]] *[[CDC]] *[[Suzanne Vernon]] ==Online presence== *[https://twitter.com/kimtweetsdc Twitter] *[https://www.linkedin.com/in/kim-mccleary-18466b6 LinkedIn] ==References== {{Reflist}} [[Category:Advocates or allies]] [[Category:American advocates or allies]]
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