Jane Colby
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jane Colby is a British advocate for paediatric patients and formerly had severe myalgic encephalomyelitis (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio"[1] and sometimes as coxsackie B).[2] She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants. [3] She is the Executive Director of Tymes Trust, the longest established national UK service for children and young people with ME and their families.[4]
Authored[edit | edit source]
- 2013, ME - The New Plague 2
- 2007, Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link.[5]
- 1999, Zoe's Win, a book for children with ME[6]
- 1997, Long Term Sickness Absence due to ME/CFS in UK Schools: An Epidemiological Study With Medical and Educational Implications, coauthored by Jane Colby and Elizabeth G Dowsett, is the largest ever epidemiological study of ME in the UK which revealed that ME is the most frequent cause of long-term sickness absence from school.[7]
- 1996, ME - The New Plague, about the connection between ME and poliomyelitis.[8]
Tymes Trust publications[edit | edit source]
The following educational materials for children living with ME and their parents and schools are written by Jane Colby and available through the Tymes Trust:
- The T Rex in the Room
- Paediatric ME, CFS, SEID for Families and their GPs
- False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)
- ME Awareness 2015: Equality and ME
- Explain Your Abilities (co-authored by Naomi Burgess)
- Diet in ME - is it such a big deal? (compiled with advice from Dr Alan Franklin and Elizabeth G Dowsett)
- A Presentation to the All Party Parliamentary Group on ME (co-authored by Joanna Smith)
- A Good Practice Guide to Education for Children with ME for GPs, Schools and Families
- Teacher Information on ME, Some children may be diagnosed as 'CFS'
Posters[edit | edit source]
- Banned from Sleeping Poster
- Why home-based education helps Poster (co-authored by Lord Clement-Jones CBE)
- 25 years of trusting TYMES Poster
Professional guides[edit | edit source]
- Professional Guides ME - The Illness and Common Misconceptions: Abuse, Neglect, Mental Incapacity
- Professional Guides Back to School?
- Professional Guides Pushing the Boundaries in ME/CFS
- Professional Guides The SENCO’s Key Role in Supporting Pupils With CFS/ME
- Professional Guides Physios Urged to Go Cautiously
- Professional Guides Implications for Schools of the Chief Medical Officer’s Working Group Report on CFS/ME
- Professional Guides ME/CFS Guidelines for Educational Psychologists (co-authored by Naomi Burgess)
Talks and Interviews[edit | edit source]
- 2006, Speaker at the 1st Invest in ME International ME Conference on Children and Education: Incidence, clusters and specific problems of youngsters with M.E.[9] DVD available
Online presence[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- ↑ http://www.methenewplague.net/About-Jane.html
- ↑ http://www.tymestrust.org/pdfs/mecfsseidintro.pdf
- ↑ http://www.investinme.eu/IIMEC1.shtml#presenters
- ↑ http://www.tymestrust.org/aboutus.htm
- ↑ Colby. (2007). Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link. Journal of Clinical Pathology 60(2): 125–128. Published online 2006 Sep 11. doi:10.1136/jcp.2006.042606 Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860612/
- ↑ Zoe's Win, Jane Colby - Dome Vision - 1999, ISBN-10: 0953733009, ISBN-13: 978-0953733002
- ↑ Dowsett EG, Colby J.(1997). Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications. Journal of Chronic Fatigue Syndrome,1997 3:29-42. http://dx.doi.org/10.1300/J092v03n02_04
- ↑ ME: the new plague, Jane Colby - First and Best in Education - 1996 ISBN-10: 1860832156, ISBN-13: 978-1860832154
- ↑ http://www.investinme.eu/IIMEC1.shtml#agenda