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International Alliance for M.E.
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=== 9 November 2016: protesting the Edward Shorter lecture === On 9 November 2016 the ME/CFS International Alliance, a predecessor of IAFME, published a protest letter against the planned lecture of historian [[Edward Shorter]] at the [[National Institutes of Health]].<ref>{{Cite web | url = https://www.actionforme.org.uk/news/me/cfs-international-alliance-protests-shorter-lecture/ | title = ME/CFS International Alliance protests Shorter lecture | last = | first = |website=Action for ME|access-date=2018-12-06 | date = | authorlink = |archive-url=|archive-date=|url-status=}}</ref> The letter listed ME/CFS advocates such as Carol Head and Jennifer Brea as "current members of the International Alliance", even though these persons did not gave formal consent to joining or supporting a new organisation.<ref>{{Cite web | url = https://forums.phoenixrising.me/index.php?threads/new-org-me-cfs-international-alliance.47920/ | title = New Org!: ME/CFS International Alliance | website = Phoenix Rising ME / CFS Forums|language=en|access-date=2018-12-06 | date = | last = | first = | authorlink = |archive-url=|archive-date=|url-status=}}</ref> ME patients were suspicious of the International Alliance as very little information was given about the organisation except for what appeared on the website of Action for ME, the UK charity that was behind the initiative. Nothing was heard about International Alliance until the existence of IAFME was announced one and a half years later.<ref>{{Cite web | url = https://www.s4me.info/threads/iame-international-alliance-for-me-anyone-know-about-them.4108/ | title = IAME -International Alliance For ME - anyone know about them?|website=Science for ME|language=en-US|access-date=2018-12-06 | date = | last = | first = | authorlink = |archive-url=|archive-date=|url-status=}}</ref>
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