Frank Twisk

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Frank N.M. Twisk, MBA, MBI, BEd, BEc, is a Dutch myalgic encephalomyelitis (ME) advocate and writer. Prior to becoming ill with ME in 1996, he was a project manager, business administrator, information scientist, mathematician, higher education teacher, and avid footballer. He encourages those of different talents to work together in the goal for scientific answers to ME and advocates for a clear distinction between ME and chronic fatigue syndrome (CFS).[1]

Twisk is associated with a Dutch non-profit, ME-de-patiënten Foundation, in a voluntary (non-paid) capacity.

Interviews & Talks[edit | edit source]

Published Articles, Commentary and Letters[edit | edit source]

Online Presence[edit | edit source]

References[edit | edit source]

  1. ↑ https://www.youtube.com/watch?v=Xjg8fLP-BpM
  2. ↑ Twisk, Frank NM (August 17, 2015), "ME and my life: past, present and future (video - Dutch w/ English CC)", YouTube, Wetenschap voor Patienten - ME/cvs Vereniging
  3. ↑ Twisk, Frank (2018), "Dutch Health Council advisory report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: Taking the wrong turn", Diagnostics, 8 (2), doi:10.3390/diagnostics8020034
  4. ↑ Frank N.M. Twisk. (2018). Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities. Challenges 2018, 9(1), 19; doi:10.3390/challe9010019
  5. ↑ Twisk F. Graded exercise self-help for chronic fatigue syndrome in GETSET. Lancet. 2018 Mar 24;391(10126):1161.
  6. ↑ Twisk, Frank NM (January 18, 2016), "(correspondence) PACE: CBT and GET are not rehabilitative therapies", The Lancet Psychiatry, doi:10.1016/S2215-0366(15)00554-4
  7. ↑ 7.0 7.1 Twisk, Frank NM; Geraghty, Keith J (July 11, 2015), "Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome" (PDF), Jacobs Journal of Physiology, 2015, 1(2): 007
  8. ↑ Twisk, F. N. (2015). Accurate diagnosis of myalgic encephalomyelitis and chronic fatigue syndrome based upon objective test methods for characteristic symptoms. World Journal of Methodology, 5(2), 68–87. http://doi.org/10.5662/wjm.v5.i2.68
  9. ↑ Twisk, F., (2015). Letter to the Editor. Fatigue: Biomedicine, Health & Behavior, 3 (4), 242-243. doi:10.1080/21641846.2015.1083325
  10. ↑ Twisk, Frank (2015), "Commentary on Jason et al. (2015): towards separate empirical case definitions of Myalgic Encephalomyelitis and chronic fatigue syndrome", Health Psychology and Behavioral Medicine, 3 (1): 109-110, doi:10.1080/21642850.2015.1027705
  11. ↑ Twisk, Frank (2013), "Rebuttal to Ickmans et al. Association between cognitive performance, physical fitness, and physical activity level in women with chronic fatigue syndrome.]" (PDF), Journal of Rehabilitation Research & Development, 50 (9): vii-viii
  12. ↑ Maes, Michael; Twisk, Frank N; Kubera, M; Ringel, K; Leunis, JC; Geffard, M (October 2, 2011), "Increased IgA responses to the LPS of commensal bacteria is associated with inflammation and activation of cell-mediated immunity in chronic fatigue syndrome", J Affect Disord, 2012 Feb, 136(3): 909-17, doi:10.1016/j.jad.2011.09.010, PMID 21967891
  13. ↑ Twisk, Frank; Maes, Michael (2010), "Chronic fatigue syndrome: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model based on inflammatory and oxidative and nitrosative stress pathways" (PDF), BMC Medicine, 8 (35)
  14. ↑ Twisk, Frank NM; Maes, Michael (2008), "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS.", Neuroendocrinology Letters, 30 (3): 284–299, PMID 19855350

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

physiological Concerning living organisms, such as cells or the human body.  Physio logical (as in physio) is not to be confused with psych ological (emotional stress).

cognition Thought processes, including attention, reasoning, and memory.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

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