David Tuller
David M. Tuller, DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.[1] Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the San Francisco Chronicle, served as health editor at Salon.com and frequently writes about health for The New York Times.[2]
He's an experienced public health activist with a background as an ACT UP/NY activist which included an arrest at the Wall Street demonstration in 1987.[3]
David Tuller covered the PACE trial results for The New York Times as health editor in February 2011. [4] However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. [5] [6]
Tuller is sympathetic toward the cause of the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patient community. In an article in 2015 he wrote:
"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."[7]
In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,[8] in order to continue investigating and blogging about the PACE trial and and others issues related to ME/CFS. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.[9][10]
In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about ME/CFS and the error-ridden PACE trial.
Education[edit | edit source]
- Doctor of Public Health
- 2005, Masters in Public Health from University of California, Berkeley[11]
Awards[edit | edit source]
- 2016, IACFS/ME Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
- 2016, Tymes Trust Award for Scientific Journalism[12]
Talks and interviews[edit | edit source]
- Apr 16, 2018 - U.S. Journalist raising awareness for Chronic Fatigue interviewed on Perth Tonight with Chris Ilsley]
- Apr 15, 2018 - ME/CFS – Debunking Medical Myths, A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide
- Mar 2018 - Talk with Emerge Australia
- Dec 26, 2017, David Tuller and the (s)PACE cake eaters interviewed by Anil van der Zee
- Oct 14, 2017, TWiV Special: Tear it up with David Tuller, interviewed by Vincent Racaniello
- June 1, 2017, Pre-Conference Dinner Speaker at the 12th Invest in ME International ME Conference on "#TearItUp" on his analysis of the Pace trial[13]
- May 31, 2017 - Virology blog Podcast: TWiV Special: Trial by Error, Continued David Tuller returns to discuss the continuing saga of the UK’s PACE trial for chronic fatigue syndrome, including the accusation that he is engaging in libelous blogging.
- Feb 20, 2017 - Chronic Fatigue: Missing Millions (Carte Blanche DSTV)
- Oct 29, 2016 - Undark Podcast #8: Worse Than the Disease Dr. Tuller discusses Graded Exercise Therapy (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."
- Aug 21, 2016 - Virology blog Podcast: TWiV 403: It’s not easy being vaccine Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.
- Jul 10, 2016 - Virology blog Podcast: TWiV 397: Trial by Error Dr. Tuller speaks at length and in detail about the PACE trial (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and FINE trial, The Lancet, British Medical Journal (BMJ) and PLOS ONE, patients being ill yet deconstructing the PACE Trial, how ME/CFS is a disease being treated inappropriately with Exercise, GET and CBT, touches on the Institute of Medicine report and SEID, Valerie Eliot Smith and Karina Hansen, and more.[14]
- Feb 28, 2016 - Speech on PACE Trial with Q&As in Amsterdam.
- Feb 27, 2016 - Discussed the flaws of the Pace trial with Frank Twisk while in Amsterdam at The Forgotten Plague Conference.
- Feb 6, 2011 - Virology blog podcast: TWiV 119: Science and journalism with David Tuller. Dr. Tuller appeared as a guest on Vincent Racaniello's podcast.
Writings about ME/CFS[edit | edit source]
Trial By Error on Virology Blog
- 2018
- May 7, 2018 - Trial By Error: My Visits with Alem Matthees
- May 2, 2018 - Trial By Error: A Q-and-A with Leonard Jason, on Case Definition
- Apr 25, 2018 - Trial By Error: Goodbye, Australia; and Two Updates
- Apr 24, 2018 - Trial By Error: Andrew Lloyd’s Past Endorsement of PACE
- Apr 24, 2018 - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website
- Apr 18, 2018 - Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio
- Apr 16, 2018 - Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”
- Apr 11, 2018 - Trial By Error: My Australian Tour, Continued
- Apr 4, 2018 - Trial By Error: A Terrific Piece about ME/CFS on Australian TV
- Apr 4, 2018 - Trial By Error: A Post About Andrew Lloyd
- Apr 2, 2018 - Trial By Error: My Berkeley-Backed Crowdfunding Campaign
- Apr 2, 2018 - Trial By Error: Our Latest Tango with BMJ Open…
- Mar 28, 2018 - Trial By Error: A Q-and-A with Scottish MP Carol Monaghan
- Mar 27, 2018 - Trial By Error: My Time in Canberra
- Mar 26, 2018 - Trial By Error: Yet Another Go-Round with BMJ Open
- Mar 21, 2018 - Trial By Error: Checking in from Melbourne and Canberra…
- Mar 14, 2018 - Trial By Error: The Australian Situation, and Professor Crawley’s New Position
- Mar 12, 2018 - Trial By Error: The Dutch Review; My Trip; Bristol’s Silence
- Mar 7, 2018 - Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative
- Mar 7, 2018 - Trial By Error: My Exchange With Archives of Disease in Childhood
- Mar 5, 2018 - Trial By Error: News About My Plans
- Feb 26, 2018 - Trial By Error: Our Exchange of Views with BMJ Open
- Feb 19, 2018 - Trial By Error: A Letter to BMJ Open
- Feb 13, 2018 - Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund
- Feb 5, 2018 - Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts
- Jan 30, 2018 - Trial By Error: A Letter to Archives of Disease in Childhood
- Jan 17, 2018 - Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims
- Jan 15, 2018 - Trial By Error: My Six-Month Review
- Jan 3, 2018 - Trial By Error: Cope to BMJ Open: More Details Please
- Jan 2, 2018 - Trial By Error: The School Absence Study, Revisited
(Older blog entries can be found on the Trial By Error page.)
The New York Times
- Mar 18, 2017 - Getting It Wrong on Chronic Fatigue Syndrome (with Julie Rehmeyer) and Letters of response' Letters - The New York Times
- Feb 10, 2015 - Chronic Fatigue Syndrome Gets a New Name
- Nov 24, 2014 - Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)
- Sep 18, 2012 - Chronic Fatigue Syndrome Back to Square 1
- Feb 6, 2012 - Fallout From Fatigue Syndrome Retraction Is Wide
- Dec 26, 2011 - Scholars Retract Another Study Linking Virus to Fatigue Syndrome
- Dec 22, 2011 - Fatigue Syndrome Study Is Retracted by Journal
- Sep 22, 2011 - Viral Theory Is Set Back in Chronic Fatigue Syndrome Study
- Jun 1, 2011 - 2 Studies Examine Syndrome of Fatigue
- Mar 4, 2011 - Defining an Illness Is Fodder for Debate
- Feb 17, 2011 - Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds
- Jan 3, 2011 - Exhausted by Illness, and Doubts
- Aug 24, 2010 - Study Links Chronic Fatigue to Virus Class
- May 30, 2008 - Learning Firsthand About Chronic Fatigue Syndrome
- May 30, 2008 - What to Ask About Chronic Fatigue Syndrome
- Jul 17, 2007 - Chronic Fatigue No Longer Seen as 'Yuppie Flu'
Other print media
- 2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT[15] (Full Text)
- Sep 25, 2017 - Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome? StatNews by David Tuller and Julie Rehmeyer
- Jul 26, 2017 - CDC Removes Reference to Disputed ME/CFS Therapies From Website Undark
- Apr 27, 2017 - Once again, the PACE authors respond to concerns with empty answers Journal of Health Psychology
- Oct 27, 2016 - Worse Than the Disease Undark
- Nov 18, 2015 - Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough" California Magazine
- Jan 27, 2014 - How 'Chronic Fatigue Syndrome' Obscures A Serious Illness Buzzfeed
In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort [16]. He raised it on Crowdrise Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017 and succeeded and actually exceeded his goal within four weeks.
Online presence[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- ↑ http://www.microbe.tv/twiv/twivs-tuller4/
- ↑ University of California, Berkeley - Berkeley Journalism - David Tuller Bio
- ↑ http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html
- ↑ http://www.nytimes.com/2011/02/18/health/research/18fatigue.html
- ↑ http://www.nytimes.com/2011/03/08/health/research/08fatigue.html
- ↑ http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html
- ↑ "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"
- ↑ https://www.crowdrise.com/
- ↑ https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1
- ↑ https://www.facebook.com/thisweekinvirology/posts/1422844667771846
- ↑ https://journalism.berkeley.edu/person/david_tuller/
- ↑ https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater
- ↑ http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml
- ↑ TWiV 397: Trial by Error
- ↑ Wilshire, C; Kindlon, T; Courtney, R; Matthees, A; Tuller, D; Geraghty, K; Levin, B (2018), "Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT", ResearchGate
- ↑ Tuller on PACE Investigation Plans: Not Beholden to anyone