Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Cusack Protocol
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
The Cusack Protocol is a protocol of various nutritional supplements that can purportedly improve connective tissue integrity and some digestive symptoms in people with [[Ehlers-Danlos Syndrome]].<ref name="plenary2017">{{Cite web | url = https://www.ehlers-danlos.com/wp-content/uploads/2017-Hypermobility-Plenary-Session-Transcript-S.pdf | title=HYPERMOBILITY PLENARY SESSSION and Q&A (Transcript) | last = The Ehlers Danlos Society|first = | authorlink = | date = Sep 8, 2017 | website = Ehlers-danlos.com|archive-url=|archive-date=|access-date=Oct 4, 2020}}</ref> It was created Deborah Cusack, a patient with EDS.<ref name="plenary2017" /> == Components == * [[Polysaccharide]]s: ** Either 100% fractionally distilled [[Aloe vera]] or aloe vera juice capsules ** or [[maitake]] mushroom<ref name="website">{{Cite web | url = http://ouredsjourney.weebly.com/what-works.html | title = What Works? | last = Cusack|first = Deborah| authorlink = | date = | website = EDS & Polysaccharides|archive-url=|archive-date=|access-date=2020-10-04}}</ref> * [[Lactobacillus rhamnosus|Lactobacillus rhamnosus GG]] (L-GG) - a [[probiotic]] (10-15 billion cfu) * [[Pyrroloquinoline Quinone]] (PQQ) * [[L-arginine]] * [[D-Ribose]] * [[Lion's mane]] (hericium erinaceus, a type of [[mushroom]]) * [[Diatomaceous earth]] (food grade DE) - a powdered fossilized [[algae]]) * [[Glucosamine chondroitin]]<ref name="slides2016">{{Cite web | url = https://www.facebook.com/media/set/?set=a.1749260648627557.1073741829.1680359948850961&type=3 | title = Cusack Protocol (slides) | last = Ehlers-Danlos Support Wilmington | first = | authorlink = | date = Mar 10, 2016 | website = facebook.com|archive-url=|archive-date=|access-date=2020-10-04}}</ref> * Hyaluronic Acid * Astragalus Extract == Theory == The Cusack protocol aims to regenerate connective tissue and resolve mast cell disease symptoms. It is a treatment strategy that is expected to be continued in the long term, possibly indefinitely, rather than a cure for [[Ehlers-Danlos syndrome]]s.<ref name="website" /><ref name="slides2016" /> == Evidence == Despite anecdotal reports of improvement, neither the protocol nor its components have ever been studied in EDS.<ref name="plenary2017" /> ==Risks, safety, and side effects == Risks are largely unknown due to lack of clinical trials and an absence of medical practitioners reporting on the effects of patients using the Cusack protocol.<ref name="plenary2017" /> The Cusack protocol includes eight supplements, so side effects may result from any of these or from combinations of them. Deborah Cusack has stated that some side effects will be experienced initially, and may last between one day and several weeks in EDS patients, which she refers to as the "healing curve" or a "healing crisis". Cusack states this includes [[joint stiffness|stiff joints]], [[myalgia|aching muscles]], and that [[fatigue]], [[limb w-grade|mild fever]], [[nausea]] and [[headache]] may also occur.<ref name="slides2016" /> A [[Mast cell activation disorder|mast cell disease]] flare may also occur in patients with mast cell disease, according to Cusack. There is lack of information about the impact of the protocol on people with other illnesses in addition to EDS, or effects on people without EDS.<ref name="slides2016" /> These is a lack of information about the safety and risks of taking these supplements with existing medications or other supplements.<ref name="slides2016" /> == Learn more == *[https://ouredsjourney.weebly.com/what-works.html Our Family's Journey] - Deborah Cusack's website *[https://www.facebook.com/media/set/?set=a.1749260648627557.1073741829.1680359948850961&type=3 Cusack Protocol (slides)] - Ehlers-Danlos Support Wilmington == See also == * [[Aloe vera]] * [[Alternative medicine]] * [[Ehlers-Danlos Syndrome|Ehlers-Danlos syndrome]] * [[Polysaccharide]] == References == {{Reflist}} [[Category:Supplements]] [[Category:Alternative medicine]] [[Category:Potential treatments]] [[Category:Protocols]]
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Templates used on this page:
Template:Cite web
(
edit
)
Template:Main other
(
edit
)
Template:Reflist
(
edit
)
Module:Check for unknown parameters
(
edit
)
Module:Citation/CS1
(
edit
)
Module:Citation/CS1/COinS
(
edit
)
Module:Citation/CS1/Configuration
(
edit
)
Module:Citation/CS1/Date validation
(
edit
)
Module:Citation/CS1/Identifiers
(
edit
)
Module:Citation/CS1/Utilities
(
edit
)
Module:Citation/CS1/Whitelist
(
edit
)
Module:No globals
(
edit
)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs