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'''CureME''' is a British research group at the [[London School of Hygiene and Tropical Medicine]] (LSHTM), undertaking clinical and [[biomedical research]] into [[ME/CFS]]. The team is led by [[Luis Nacul]].<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/ | title = CureMe – Driving research into ME/CFS|language=en|access-date=2020-06-03}}</ref> ==Overview== The group conducts clinical, epidemiological and laboratory research into ME/CFS, and is comprised of a clinical team led by [[Luis Nacul]] and [[Eliana Lacerda]] and a laboratory team led by [[Hazel Dockrell]] and [[Jacqueline Cliff]].<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/about-us/cureme-team/ | title = People – CureMe|language=en|access-date=2020-06-03}}</ref> The group is midway through an eight-year major study into ME/CFS funded by the [[National Institutes of Health]], which is seeking to create results through integrated desk and laboratory research, over an extended timespan and using a large number of participants.<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/our-studies/ | title = Research – CureMe|language=en|access-date=2020-06-03}}</ref> The team is overseen by a Steering Committee that includes researchers, partner charities and patient/carer representatives. ==The UK ME/CFS Biobank== In August 2011, the team founded a biobank for [[Myalgic encephalomyelitis|Myalgic Encephalomyelitis]], hosted by the [[University College London]] Biobank at the [[Royal Free Hospital]].<ref name=":0">{{Cite web | url = https://cureme.lshtm.ac.uk/about-us/history-of-the-biobank/ | title = History of CureME | website = CureMe|language=en|access-date=2019-01-18}}</ref><ref>[https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three]</ref> The [[UK ME/CFS Biobank]] (UKMEB) was initially funded with support from [[ME Research UK]], the [[ME Association]] and [[Action for ME]] as well as private donors.<ref name=":0" /> Ongoing funding has been provided by the [[ME Association]] and the US [[National Institutes of Health]].<ref>[http://blogs.lshtm.ac.uk/news/2013/06/28/uk-mecfs-biobank-project-awarded-1-million-grant/ UK ME/CFS Biobank project awarded £1 million grant]</ref><ref>[http://www.meassociation.org.uk/research2015/current-research2015/ Current Research 2015]</ref> The Biobank holds over 30,000 aliquots of blood from people with ME, MS and healthy controls, with accompanying clinical data.<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/researchers/431-2/ | title = Samples & Data | website = CureMe|language=en|access-date=2019-01-18}}</ref> In 2016 the Biobank's samples were made available to researchers around the world, and any researcher can apply to use samples and/or clinical data, subject to application approval and ethical clearance.<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/researchers/accessing-the-biobank/ | title = Accessing the Biobank – CureMe|language=en|access-date=2020-06-03}}</ref> ==Notable people== As of January 2019, the members of the group include:<ref>{{Cite web | url = https://cureme.lshtm.ac.uk/about-us/cureme-team/ | title = People | website = CureMe|language=en|access-date=2019-01-18}}</ref> *[[Luis Nacul]] - Co-Principal Investigator (Clinical) *[[Eliana Lacerda]] - Assistant Clinical Professor *[[Hazel Dockrell]] - Co-Principal Investigator (Lab) *[[Jacqueline Cliff]] - Assistant Professor & Laboratory Lead *[[Caroline Kingdon]] - Research Fellow & Biobank Coordinator *[[Jack Butterworth]] - Project Manager *Kathleen Mudie - Research Fellow *Dio Giotas - Research Nurse *Shennae O'Boyle - Research Assistant *[[Ji Sook Lee]] - Research Fellow *Liz King - Technical Officer *[[Taane Clark]] - Co-Investigator *[[Nuno Sepulveda]] - Assistant Professor and Statistician ==Notable studies== * 2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care<ref>{{Cite journal | last = Nacul|first = Luis C. | last2 = Lacerda | first2 = Eliana M. | last3 = Pheby | first3 = Derek | last4 = Campion | first4 = Peter | last5 = Molokhia | first5 = Mariam | last6 = Fayyaz | first6 = Shagufta | last7 = Leite | first7 = Jose CDC | last8 = Poland | first8 = Fiona | last9 = Howe | first9 = Amanda | date = 2011-07-28 | title = Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care | url =https://doi.org/10.1186/1741-7015-9-91|journal=BMC Medicine|volume=9|issue=1 | pages = 91|doi=10.1186/1741-7015-9-91|issn=1741-7015|pmc=3170215|pmid=21794183|quote= | authorlink = Luis Nacul | authorlink2 = Eliana Lacerda | author-link3 = Derek Pheby | author-link4 = Peter Campion | author-link5 = Mariam Molokhia|via=}}</ref> * 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis<ref>{{Cite journal | last = de Carvalho Leite | first = Jose C. | last2 = de L Drachler | first2 = Maria | last3 = Killett | first3 = Anne | last4 = Kale | first4 = Swati | last5 = Nacul | first5 = Luis | last6 = McArthur | first6 = Maggie | last7 = Hong | first7 = Chia Swee | last8 = O'Driscoll | first8 = Lucy | last9 = Pheby | first9 = Derek | date = 2011-11-02 | title = Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis |url =https://doi.org/10.1186/1475-9276-10-46|journal=International Journal for Equity in Health|volume=10|issue=1 | pages = 46|doi=10.1186/1475-9276-10-46|issn=1475-9276|pmc=3229491|pmid=22044797|quote= | authorlink = Jose de Carvalho Leite | authorlink2 = Maria de L Drachler | author-link3 = Anne Killett | author-link4 = Swati Kale | author-link5 = Luis Nacul|via=}}</ref> * 2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: a proposed protocol<ref>{{Cite journal | last = Nacul|first = Luis | last2 = O'Donovan | first2 = Dominic G. | last3 = Lacerda | first3 = Eliana M. | last4 = Gveric | first4 = Djordje | last5 = Goldring | first5 = Kirstin | last6 = Hall | first6 = Alison | last7 = Bowman | first7 = Erinna | last8 = Pheby | first8 = Derek | date = 2014-06-18 | title = Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: a proposed protocol | url = https://doi.org/10.1186/1756-0500-7-370|journal=BMC Research Notes|volume=7|issue=1 | pages = 370|doi=10.1186/1756-0500-7-370|issn=1756-0500|pmc=4076507|pmid=24938650|quote= | authorlink = Luis Nacul | authorlink2 = Dominic O'Donovan | author-link3 = Eliana Lacerda | author-link4 = Djordje Gveric | author-link5 = Kristin Goldring|via=}}</ref> * 2017, How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies?<ref>{{Cite journal | last = Nacul|first = Luis | last2 = Lacerda | first2 = Eliana M. | last3 = Kingdon | first3 = Caroline C. | last4 = Curran | first4 = Hayley | last5 = Bowman | first5 = Erinna W. | date = 2017-03-01 | title = How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies? | url = https://www.ncbi.nlm.nih.gov/pubmed/28810428|journal=Journal of Health Psychology | pages = 1359105317695803|doi=10.1177/1359105317695803|issn=1461-7277|pmc=5581258|pmid=28810428|issue=|quote= | authorlink = Luis Nacul | authorlink2 = Eliana Lacerda | author-link3 = Caroline Kingdon | author-link4 = Hayley Curran | author-link5 = Erinna Bowman|via=|volume=}}</ref> * 2017, Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome<ref>{{Cite journal | last = Nacul|first = Luis | last2 = Kingdon | first2 = Caroline C. | last3 = Bowman | first3 = Erinna W. | last4 = Curran | first4 = Hayley | last5 = Lacerda | first5 = Eliana M. | date = 2017 | title=Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome | url =https://www.ncbi.nlm.nih.gov/pubmed/29250461|journal = Fatigue: Biomedicine, Health & Behavior |volume=5|issue=1 | pages = 1–4|doi=10.1080/21641846.2017.1273863|issn=2164-1846|pmc=5730342|pmid=29250461|quote= | authorlink = Luis Nacul | authorlink2 = Caroline Kingdon | author-link3 = Erinna Bowman | author-link4 = Hayley Curran | author-link5 = Eliana Lacerda | via=}}</ref> * 2017, Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS<ref>{{Cite journal | last = Jain | first = Vageesh | last2 = Arunkumar | first2 = Amit | last3 = Kingdon | first3 = Caroline | last4 = Lacerda | first4 = Eliana | last5 = Nacul | first5 = Luis | date = 2017-06-20 | title = Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS | url = https://doi.org/10.1186/s12883-017-0896-0|journal=BMC Neurology|volume=17|issue=1 | pages = 117|doi=10.1186/s12883-017-0896-0|issn=1471-2377|pmc=5477754|pmid=28633629|quote= | authorlink = Vageesh Jain | authorlink2 = Amit Arunkumar | author-link3 = Caroline Kingdon | author-link4 = Eliana Lacerda | author-link5 = Luis Nacul|via=}}</ref> * 2017, The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis<ref>{{Cite journal | last = Nacul|first = Luis | last2 = Curran | first2 = Hayley | last3 = Riley | first3 = Eleanor | last4 = Dockrell | first4 = Hazel | last5 = Clark | first5 = Taane | last6 = Lee | first6 = Ji-Sook | last7 = King | first7 = Elizabeth | last8 = Kingdon | first8 = Caroline | last9 = Cliff | first9 = Jacqueline | date = 2017-02-20 | title = The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis |url =http://openbioresources.metajnl.com/articles/10.5334/ojb.28/|journal=Open Journal of Bioresources|volume=4|issue=1 | pages = 4|doi=10.5334/ojb.28|issn=2056-5542|pmc=5482226|pmid=28649428|quote= | authorlink = Luis Nacul | authorlink2 = Hayley Curran | author-link3 = Eleanor Riley | author-link4 = Hazel Dockrell | author-link5 = Taane Clark|via= | author-link6 = Ji-Sook Lee | author-link8 = Elizabeth King | author-link8 = Caroline Kingdon | author-link9 = Jacqueline Cliff}}</ref> * 2017, The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE<ref>{{Cite journal | last = Scheibenbogen | first = Carmen | last2 = Freitag | first2 = Helma | last3 = Blanco | first3 = Julià | last4 = Capelli | first4 = Enrica | last5 = Lacerda | first5 = Eliana | last6 = Authier | first6 = Jerome | last7 = Meeus | first7 = Mira | last8 = Castro Marrero | first8 = Jesus | last9 = Nora-Krukle | first9 = Zaiga | date = 2017-07-26 | title = The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE | url = https://doi.org/10.1186/s12967-017-1263-z|journal=Journal of Translational Medicine|volume=15|issue=1 | pages = 162|doi=10.1186/s12967-017-1263-z|issn=1479-5876|pmc=5530475|pmid=28747192|quote= | authorlink = Carmen Scheibenbogen | authorlink2 = Helma Freitag | author-link3 = Julià Blanco | author-link4 = Enrica Capelli | author-link5 = Eliana Lacerda | via=}}</ref> * 2017, Using a participatory approach to develop and implement the UK ME/CFS Biobank<ref>{{Cite journal | last = Lacerda | first = Eliana M. | last2 = Kingdon | first2 = Caroline C. | last3 = Bowman | first3 = Erinna W. | last4 = Nacul | first4 = Luis | date = 2018 | title = Using a participatory approach to develop and implement the UK ME/CFS Biobank | url =https://www.ncbi.nlm.nih.gov/pubmed/29938127|journal = Fatigue: Biomedicine, Health & Behavior |volume=6|issue=1 | pages = 1–4|doi=10.1080/21641846.2018.1396021|issn=2164-1846|pmc=|pmid=29938127|quote= | authorlink = Eliana Lacerda | authorlink2 = Caroline Kingdon | author-link3 = Erinna Bowman | author-link4 = Luis Nacul | author-link5 = |via=}}</ref> * 2018, Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls<ref>{{Cite journal | last = Kingdon | first = Caroline C. | last2 = Bowman | first2 = Erinna W. | last3 = Curran | first3 = Hayley | last4 = Nacul | first4 = Luis | last5 = Lacerda | first5 = Eliana M. | date = 2018-12-01 | title = Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls |url =https://doi.org/10.1007/s41669-018-0071-6|journal=PharmacoEconomics - Open|language=en|volume=2|issue=4 | pages = 381–392|doi=10.1007/s41669-018-0071-6|issn=2509-4254|pmc=|pmid=29536371|quote= | authorlink = Caroline Kingdon | authorlink2 = Erinna Bowman | author-link3 = Hayley Curran | author-link4 = Luis Nacul | author-link5 = Eliana Lacerda | via=}}</ref> * 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe-the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review<ref>{{Cite journal | last = Murovska | first = Modra | last2 = Lacerda | first2 = Eliana | last3 = Sekulic | first3 = Slobodan | last4 = Capelli | first4 = Enrica | last5 = Lorusso | first5 = Lorenzo | last6 = Shikova | first6 = Evelina | last7 = Scheibenbogen | first7 = Carmen | last8 = Alegre | first8 = Jose | last9 = Pheby | first9 = Derek | date = 2018-09-01 | title = Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review | url =https://bmjopen.bmj.com/content/8/9/e020817|journal=BMJ Open|language=en|volume=8|issue=9| pages = e020817|doi=10.1136/bmjopen-2017-020817|issn=2044-6055|pmc=|pmid=30181183}}</ref> * 2018, The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref>{{Cite journal | last = Lacerda | first = Eliana | authorlink = Eliana Lacerda | last2 = Mudie | first2 = Kathleen | authorlink2 = | last3 = Butterworth | first3 = Jack D. | author-link3 = | last4 = Kingdon | first4 = Caroline C. | author-link4 = Caroline Kingdon | last5 = O'Boyle | first5 = Shennae | author-link5 = | last6 = Nacul | first6 = Luis | author-link6 = Luis Nacul | date = 2018-12-04 | title = The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | url =https://www.frontiersin.org/articles/10.3389/fneur.2018.01026/full|journal=Frontiers in Neurology|language=English|volume=9|issue=| pages=|doi=10.3389/fneur.2018.01026|issn=1664-2295|pmc=|pmid=30564186|quote=|via=}}</ref> [https://www.frontiersin.org/articles/10.3389/fneur.2018.01026/full (Full text)] * 2019, Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.<ref>{{Cite journal | last = Lacerda | first = Eliana M. | authorlink = Eliana Lacerda | last2 = McDermott | first2 = Clare | authorlink2 = Clare McDermott | last3 = Kingdon | first3 = Caroline C. | author-link3 = Caroline Kingdon | last4 = Butterworth | first4 = Jack | author-link4 = Jack Butterworth | last5 = Cliff | first5 = Jacqueline M. | author-link5 = Jacqueline Cliff | last6 = Nacul | first6 = Luis | author-link6 = Luis Nacul | date = 2019-01-10 | title = Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study | url = https://www.ncbi.nlm.nih.gov/pubmed/30632248|journal=Health Expectations: An International Journal of Public Participation in Health Care and Health Policy|volume=|issue=| pages=|doi=10.1111/hex.12857|issn=1369-7625|pmid=30632248|quote=|via=}}</ref> * 2019, Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)<ref>{{Cite journal | last = Cliff|first = Jacqueline M. | authorlink = Jacqueline Cliff | last2 = King | first2 = Elizabeth C. | authorlink2 = | last3 = Lee | first3 = Ji-Sook | author-link3 = | last4 = Sepúlveda | first4 = Nuno | author-link4 = Nuno Sepúlveda | last5 = Wolf | first5 = Asia-Sophia | author-link5 = | last6 = Kingdon | first6 = Caroline | author-link6 = Caroline Kingdon | last7 = Bowman | first7 = Erinna | author-link8 = Erinna Bowman | last8 = Dockrell | first8 = Hazel M. | author-link8 = Hazel Dockrell | last9 = Nacul | first9 = Luis | author-link9 = Luis Nacul | last10 = Lacerda | first10 = Eliana | author-link10 = Eliana Lacerda | last11 = Riley | first11 = Eleanor | author-link11 = Eleanor Riley | date = 2019-04-16 | title = Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | url = https://www.frontiersin.org/article/10.3389/fimmu.2019.00796/full|journal=Frontiers in Immunology|volume=10|issue=| pages=|doi=10.3389/fimmu.2019.00796|issn=1664-3224|quote=|via=}}</ref> - [https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/full (Full text)] ==Talks and interviews== *[https://www.youtube.com/watch?time_continue=11&v=ZamGjkCFKr4 The UK ME/CFS Biobank introductory video] *[https://www.youtube.com/watch?v=XLPCuEdqIWY BBC Newsbeat documentary 'M.E. and Me', featuring members of the team] *[https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/ Q&A with members of the Science for ME patient forum, December 14th, 2017.] == See also == * [[UK ME/CFS Biobank]] ==Learn more== *[https://cureme.lshtm.ac.uk/ CureME Website] ==References== {{reflist}} [[Category:Research initiatives]] [[Category:British research initiatives]] [[Category:Biobanks & patient registries]]
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