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Courtney Miller
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[[File:Courtney Miller.png|upright|right]] '''Courtney Alexander Miller''', is a member of the Board of Directors and an online writer at [[Simmaron Research]], a non-profit organization based in Incline Village, Nevada, which works to advance translational science in treating neuroimmune diseases like [[CFS/ME]].<ref>http://simmaronresearch.com/staff-board/</ref> ==Advocacy work== While advocating for her husband, [[Robert Miller]], who lives with [[ME/CFS]], she spoke to President Barack Obama at a 2011 town meeting in Reno. Miller asked that the President encourage more scientific research for ME/CFS. The President stated: "I will confess to you that, although I had heard of CFS, I don't have expertise in it.... what I promise I will do when I get back is I will have the [[National Institutes of Health]] explain to me what they're currently doing and start seeing if they can do more on this particular ailment."<ref>https://www.youtube.com/watch?v=U2IFtkXofss&list=FL3eYGvobC9QNaqCArAWToWw</ref> [https://www.youtube.com/watch?v=U2IFtkXofss#t=47m01s See video of Courtney Miller speaking to President Obama] On 26 July 2012, President Obama wrote a follow-up letter to Courtney Miller, reporting that he had "asked Dr. [[Francis Collins | Francis S. Collins]], M.D., Ph.D., the director of [[NIH]] for a status report on what NIH is doing to find a cure for CFS... I have asked [Deputy Chief of Staff for Policy,] Nancy-Ann [DeParle] to stay in touch with Dr. Collins at NIH and Dr. Koh at [[HHS]] about my interests in CFS."<ref>http://phoenixrising.me/wp-content/uploads/President-Obama-Letter-on-CFS.pdf</ref> [http://phoenixrising.me/wp-content/uploads/President-Obama-Letter-on-CFS.pdf Read President Obama's Letter] ==Awards== [[ProHealth]] honored both [[Robert Miller | Robert]] and Courtney Miller with its first ME/CFS Advocates of the Year Award in May 2013, citing their ongoing work to recruit public officials to join them in championing for ME/CFS research. Some of the influential people they've engaged in conversation on behalf of ME/CFS are: President Obama, Vice-President Biden, Director of the [[NIH]] Dr. Frances Collins, Assistant Secretary of Health Howard Koh, [[CDC]] CFS Chief Dr. [[Elizabeth Unger]], and Senate Majority Leader Harry Reid.<ref>http://www.prohealth.com/library/showArticle.cfm?libid=18073&site=articles</ref> ==Ampligen advocacy== In May 2016, the [[Trans-NIH ME/CFS Working Group]] published a Request for Information (RFI) seeking the public’s input on needs, opportunities and strategies for ME/CFS research and research training.<ref>https://www.nih.gov/research-training/medical-research-initiatives/mecfs/nih-requested-comments-me/cfs-research-efforts</ref> Robert and Courtney Miller wrote that the: "NIH should immediately fund a small, well-powered clinical trial to demonstrate efficacy of [[Ampligen]] for treatment of ME/CFS patients or a subset thereof, soliciting applications in 2016 from clinicians experienced in treating patients with Ampligen. The trial should be double-blind, placebo-controlled, demonstrating efficacy and characterizing responders." The RFI was co-signed by several other ME/CFS advocacy groups and included an attachment of "a sampling of 800 email testimonies appealing to the [[FDA]] to approve Ampligen"...[and] a 2015 letter by leading ME/CFS clinicians and experts urging the federal government to move toward approval of Ampligen."<ref>https://www.nih.gov/sites/default/files/research-training/initiatives/mecfs/rfi-responses-patients.pdf</ref> ==Talks and interviews== *2012, [https://www.youtube.com/watch?v=qhvmRe5Gzpw [[ME/CFS Alert]] Episode 33 - Interview with Courtney Miller] ==CFSAC testimony== *Oct 2012, [http://www.hhs.gov/advcomcfs/meetings/presentations/miller_courtney_100312.pdf Written Public Testimony before CFSAC meeting Includes copy of President Barack Obama's letter] ==FDA Advisory Committee Hearing testimony== *Dec 20, 2012, [http://www.healthrising.org/federal-agencies-and-chronic-fatigue-syndrome-mecfs/fda-food-and-drug-association-and-chronic-fatigue-syndrome-mecfs-resource-center/hunger-strike-for-ampligen-news-center/courtney-miller/ Testimony of Courtney Alexander Miller] ==Online presence== *[https://www.youtube.com/watch?v=U2IFtkXofss#t=47m01s Courtney Miller speaking to President Obama at 2011 Reno town meeting about CFS] *[http://simmaronresearch.com/author/courtney-alexander/ Articles by Courtney Miller in Simmaron Research] *[https://twitter.com/CourtneyA999?lang=en Twitter] *[https://www.facebook.com/courtney.alexander.75685 Facebook] ==References== {{Reflist}} [[Category:Advocates or allies]] [[Category:American advocates or allies]]
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