MEpedia:Contents

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

See a condensed version of this page.

Primers[edit | edit source]

Choose a Primer to learn about the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.


The Disease[edit | edit source]

Infectious agents: Aerobic bacteria, Babesia, Bacterial infection, Bartonella, Borrelia burgdorferi, Brucella, Candida albicans, Chlamydia pneumoniae, Clostridium difficile, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Cyanobacteria, Cytomegalovirus, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Escherichia coli, Fungal infection, Giardia, Herpes simplex virus, Herpesviruses, Human herpesvirus 6, Human herpesvirus 7, Human papillomavirus, Human T-lymphotropic virus, Infection, Influenza A virus subtype H1N1, List of chronic diseases linked to infectious pathogens, Mycoplasma, Parvovirus B19, Pathogen, Persistent infection, Poliovirus, Ross River virus, Severe acute respiratory syndrome coronavirus, Severe acute respiratory syndrome coronavirus 2, Staphylococcus, Staphylococcus aureus, Staphylococcus xilosus, Streptococcus, Varicella zoster virus, Xenotropic murine leukemia virus-related virus, Category:Bacteria, Category:Coronaviruses, Category:Enteroviruses, Category:Fungal infections, Category:Funguses, Category:Herpesviruses, Category:Influenza viruses, Category:Parasites, Category:Viruses


Triggers and risk factors: Arsenic, Bacterial disease onset, Bacterial infection, Blood donation, Borna disease virus, Brucellosis, Candidiasis, Chickenpox, Chlamydia pneumoniae, Chronic ciguatera fish poisoning, Chronic epipharyngitis, COVID-19, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Coxsackievirus, Cytomegalovirus, Ebola virus disease, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Female predominant diseases, Flu-like illness, Fungal infection, Genetics of chronic fatigue syndrome, Giardia, Giardiasis, Gluten, Hepatitis B vaccine, Hepatitis C, Herpes simplex virus, Herpesviruses, HPV vaccine, Human herpesvirus 6, Human herpesvirus 7, Human T-lymphotropic virus, Infection, Infectious disease, Influenza, Influenza A virus subtype H1N1, Influenza B, Ionizing radiation, Meningitis, Menstrual cycle, Mercury, Mold, Mononucleosis, Mycoplasma, Non-cytolytic enterovirus, Nutcracker phenomenon, Organophosphate, Parvovirus B19, Pathogen, Pesticide exposure link to ME/CFS, Picornavirus, Poliovirus, Pregnancy, Q fever, Ross River virus, Severe acute respiratory syndrome, Severe acute respiratory syndrome coronavirus, Severe acute respiratory syndrome coronavirus 2, Sinusitis, Stress, Trauma, Tung oil, Vaccine, Varicella zoster virus, Viral infection, Viral onset hypothesis, Category:Bacterial diseases, Category:Coronaviruses, Category:Enteroviruses, Category:Herpesviruses, Category:Infectious agents, Category:Influenza viruses, Category:Parasites, Category:Parasitic diseases, Category:Picornaviruses, Category:Vaccines, Category:Viral diseases, Category:Viruses


Signs and symptoms: Abdominal pain, Alcohol intolerance, Allodynia, Anaphylaxis, Anorexia (appetite loss), Anxiety, Aphasia, Arrhythmia, Arthralgia, Ataxia, Attention deficit, Auditory sequencing problems, Aural problems, Balance problems, Basilar invagination, Blackouts, Bladder dysfunction, Bloating, Body temperature, Bradycardia, Brain fog, Breathing problems in ME/CFS, Capillary fragility, Cardiovascular problems in ME/CFS, Carpal tunnel syndrome, Cerebral hypoperfusion, Chemical sensitivities, Chest pain, Chronic fatigue, Chronic pain, Chronotropic incompetence, Cocktail party phenomena, Cognitive dysfunction, Cognitive overload, Cold hands and feet, Common symptoms in ME/CFS, Confusion, Constipation, Costochondritis, Cough, Daytime sleepiness, Delayed onset of post-exertional symptoms, Depression, Diarrhea, Difficulty comprehending social cues, Difficulty learning new information, Difficulty processing information, Difficulty thinking, Digestive problems, Distractability, Dizziness, Dry eye syndrome, Dry mouth, Dysbiosis, Dyscalculia, Dysgeusia, Dyslexia, Dysmenorrhea, Dysphagia, Dysphasia, Dyspnea, Ear pain, Emotional dysfunction, Emotional liability, Encephalitis, Endothelial dysfunction, Excessive irritability, Excessive sweating, Executive function problems, Eye pain, Fatigue, Fever, Fingerprint change, Floaters, Flu-like symptoms, Fluctuating illness, Food sensitivities, Formication, Gas, Hair loss, Headache, Heart palpitation, Heart rate variability, Heartburn, Hot flushes, Hyperalgesia, Hyperesthesia, Hypersensitivity, Hypersomnia, Hyperthermia, Hypokalemic periodic paralysis, Hypotension, Impaired depth perception, Inflammation, Insomnia, Interstitial cystitis, Intestinal permeability, Irregular menstrual cycles, Irritable bowel syndrome, Joint hypermobility, Light-headedness, List of abnormal findings in chronic fatigue syndrome and myalgic encephalomyelitis, List of symptoms in ME CFS, Low blood volume, Low motivation, Low-grade fever, Malaise, Marked, rapid physical and/or cognitive fatigability in response to exertion, Medicine sensitivities, Memory problems, Menstrual problems in ME/CFS, Migraine, Mood swings, Multi-tasking problems, Talk:Multiple chemical sensitivity, Muscle atrophy, Muscle fasciculations, Muscle fatigability, Muscle spasm, Muscle strain, Muscular problems, Myalgia, Myoclonus, Nausea, Neck pain, Nerve pain, Neuralgia, Neurally mediated hypotension, Neuroendocrine symptoms, New allergies and intolerances, Night sweat, Nocturia, Non-celiac gluten sensitivity, Nonepileptic seizure, Nonexudative pharyngitis, Numbness, Odor sensitivities, Oral problems, Orientation in space problems, Orthostatic hypotension, Orthostatic intolerance, Pain, Pallor, Panic attack, Paralysis, Paresis, Paresthesia, Parosmia, Pathological inability to produce sufficient energy on demand with prominent symptoms primarily in the neuroimmune regions, Periodic paralysis, Personality change, Photophobia, Planning problems, Post-exertional exhaustion: immediate or delayed, Post-exertional malaise, Post-exertional symptom exacerbation, Postural hypotension, Postural orthostatic tachycardia syndrome, Premenstrual syndrome, Rare and uncommon symptoms, Rash, Receptive language problems, Recovery period is prolonged, usually taking 24 hours or longer, Respiratory depression, Scotomata, Seizure, Short QT interval, Sinusitis, Skin itch, Skin rash, Sleep dysfunction, Slowed thought, Small heart syndrome, Small intestinal bacterial overgrowth, Somnolence, Sore throat, Spatial disorientation, Speech difficulties, Sprain, Subnormal body temperature, Substantial reduction or impairment in the ability to engage in pre-illness levels of occupational, educational, social, or personal activities, Susceptibility to viruses, Swollen lymph nodes, Tachycardia, Telomere shortening, Temporomandibular joint disorder, Tinnitus, Tired all the time, Tremor, Unrefreshing sleep, Urinary frequency, Urinary urgency, Urticaria, Visual dysfunction, Vomiting, Weather sensitivity, Weight change, Weight gain, Weight loss, Word-finding problems

, Auditory sequencing problems, Balance problems, Difficulty comprehending social cues, Dyslexia, Executive function problems, Food intolerance, Hypermobility, Low motivation, Orientation in space problems, Planning problems, Receptive language problems, Slowed thought

Medical hypotheses: Acquired immune and mitochondrial dysfunction hypothesis, Amygdala hypothesis*, Autoimmune hypothesis, Encephalitis, Autoimmune encephalitis, Cell danger response, Fatty acid hypothesis, Hygiene hypothesis*, Hypercoagulation hypothesis, Immune exhaustion hypothesis*, Infectious disease hypothesis, Ken Lassesen's model, Methylation cycle hypothesis, Microbiome hypothesis, Mold hypothesis*, Nitric oxide hypothesis, Omega 3 fatty acid hypothesis, Patricia Kane protocol, Vagus nerve hypothesis, Viral onset hypothesis, The Danger Model,

Body systems: Adaptive immune system, Adrenal gland, Autoantibody, B cell, Blood, Cardiovascular system, Central nervous system, Central sensitization, Chemokine, Cytokine, Dorsal root ganglion, Electrolyte, Endocrine system, Fibrin, Gastric acid, Gastrointestinal system, Glial cell, Gut-brain axis, Hippocampus, Hypothalamic-pituitary-adrenal axis, Hypothalamic-pituitary-gonadal axis, Immune system, Inflammation, Innate immune system, Interferon, Interleukin 1, Interleukin 1 alpha, Interleukin 1 beta, Interleukin 10, Interleukin 11, Interleukin 12, Interleukin 13, Interleukin 15, Interleukin 16, Interleukin 17, Interleukin 18, Interleukin 2, Interleukin 23, Interleukin 28, Interleukin 29, Interleukin 3, Interleukin 4, Interleukin 5, Interleukin 6, Interleukin 7, Interleukin 7 receptor, Interleukin 8, Interleukin 9, Ion transportation, Leaky brain, Leucocyte, Lymphocyte, Lymphotoxin-alpha, Macrophage, Microbiome, Microgenderome, Microglia, Mucosal immune system, Muscle, Musculoskeletal system, Natural killer cell, Natural killer T cell, Nervous system, Neuroendocrine system, Neurogenesis, Neuroinflammation, Neutrophil, Occipital cortex, Olfactory bulb, Parasympathetic nervous system, Red blood cell, Regulatory T cell, Ribonuclease L, RNA, Skeletal muscle, Spinal cord, Sympathetic nervous system, T cell, T helper cell, Thrombosis, Thymus, Thyroid gland, Tumor necrosis factor alpha, Vagus nerve, Vitamin D receptor, Zonulin, Category:Anatomy, Category:Blood components, Category:Cardiology, Category:Digestive system, Category:Endocrine system, Category:Energy system, Category:Immunology, Category:Neurology, Category:Reproductive system

, Tumor necrosis factors, VEGF, Leaky gut, Antibody, Autoantibody, Chemokine, Glutamate excitotoxicity, IL-2, IL-10,IL-17, Interleukin 18, Leaky brain, Macrophage

Tests: Ancestry DNA, Autopsy in Myalgic Encephalomyelitis, Bell CFIDS disability scale, Body mass index, Brief Fatigue Inventory, CDC 2005 Symptom Inventory for CFS, Diagnostic biomarker, Energy Index Point Score, Erythrocyte sedimentation rate, Euroqol 5D, Fatigue Severity Scale, Genetic testing, Grabb-Oakes measurement, Hospital Anxiety and Depression Scale, Infectious disease testing, Lactulose breath test, List of tests for diagnosis and treatment, Muscle biopsy, NASA 10-minute lean test, National Centre for Neuroimmunology and Emerging Diseases, PROMIS F-SF, Questionnaires and tools to assess ME/CFS symptoms or severity, Short Form 36-Item Health Survey, Six-minute walk test, SpO2, VO2 Max, Whole genome sequencing, Category:Health measures, Category:Laboratory test equipment, Category:Medical tests, Category:Symptom scales

, qEEG/LORETA, Erythrocyte sedimentation rate, MRI, Natural Killer Cell (NKC) Function, infectious diseases

Citizen science: 23andMe, American Gut, Any Treatment, British Gut Project,Mendus, Phoenix Rising, UBiome, Know Your Genetics: Dr. Amy Yasko, WellnessFX, CH3Nutrigenomics; Dr. Amy Yasko, MTHFR.net, Genetic Genie, LiveWello

Biochemistry and cell biology: Acetyl coenzyme A, Acid sensing ion channel 3, ADAM metallopeptidase with thrombospondin type 1 motif 19, Adenosine diphosphate, Adenosine monophosphate deaminase, Adenosine triphosphate, Adrenergic receptor, Alpha 2-adrenergic receptor, Alpha-lipoic acid, AMP-activated protein kinase, Anaerobic and aerobic metabolism, Ankyrin Repeat And Death Domain Containing 1B, Antioxidant, Argonaute RISC catalytic component 2, Armadillo Like Helical Domain Containing 4, ATP-Dependent RNA Helicase DDX51, B vitamin, Beta 2-adrenergic receptor, Beta adrenergic receptor, Beta-oxidation, BLLF3, Brain-derived neurotrophic factor, BRRF1, Calcitonin gene-related peptide, Carbohydrate, Carnitine, CCL2, CCL3, CCL4, CCL7, Cell danger response hypothesis, Cell membrane, Cell signaling, Cellular respiration, Channelopathy, Choline, Citric acid cycle, Cobalamin, Coenzyme Q10, Collagen, Complement C4a, Complexin 2, Connective tissue growth factor, Corticotropin-releasing factor receptor type 2, Creatine, Creatine kinase, CXCL1, CXCL5, CXCL9, Cytochrome P450 2D6, Cytotoxic T-lymphocyte associated protein 4, D-lactic acid, Docosanoid, Elastin, Electrolyte, Endocannabinoid, Epstein-Barr virus induced gene 2, Fibroblast, G protein-coupled bile acid receptor 1, Gene expression, Glucocorticoid, Glucose, Glutathione, Glycolysis, Histamine, Hydroxyproline, Hypothalamic-pituitary-gonadal axis, Immunoglobulin A, Immunoglobulin D, Immunoglobulin E, Immunoglobulin G, Immunoglobulin M, Indole, Interleukin, Interleukin 1, Interleukin 1 alpha, Interleukin 1 beta, Interleukin 10, Interleukin 11, Interleukin 12, Interleukin 13, Interleukin 15, Interleukin 16, Interleukin 17, Interleukin 18, Interleukin 2, Interleukin 23, Interleukin 28, Interleukin 29, Interleukin 3, Interleukin 4, Interleukin 5, Interleukin 6, Interleukin 8, Interleukin 9, Intravenous immunoglobulin, Ion transportation, Kynurenine, Kynurenine pathway, Lipid raft, Lysozyme, M6A, Mast cell, Matrix metalloproteinase, Methyl-CpG binding protein 2, Methylation cycle, Mineral, Mitochondrion, MTHFR, Muscarinic acetylcholine receptor, Myelin, Myelin basic protein, Neopterin, Neuroendocrine system, Neurotransmitter, Nicotinamide adenine dinucleotide, Nitric oxide, NTRK, Nuclear receptor subfamily 3 group C member 1, Organic anion transporting polypeptide 1B1, Oxidative phosphorylation, Oxygen, Peripheral blood mononuclear cell, Peroxisome, Peroxynitrite, Phosphatidylcholine, Phospholipid, Plasma, Procollagen-proline dioxygenase, Proline-rich transmembrane protein 4, Protein tyrosine phosphatase non-receptor type 22, Purinergic P2X 4 receptor, Purinergic P2X 5 receptor, Receptor for advanced glycosylation end-product, Red blood cell, Regulated upon activation, normally T-expressed, and presumably secreted, Resolvin, Serine Protease 56, Single nucleotide polymorphism, Small intestine, Sodium–hydrogen antiporter 1, Stomatocyte, Tetrahydrobiopterin, Transient receptor potential, Transient receptor potential melastatin 2, Transient receptor potential melastatin 3, Transient receptor potential melastatin 7, Transient receptor potential vanilloid receptor 1, Tryptase, Tryptase alpha/beta 1, Tryptophan, Tubulin polymerization promoting protein, Tyrosine, Valyl-tRNA synthetase 2, mitochondrial, Vascular endothelial growth factor, VO2 Max, Wiskott-Aldrich Syndrome Protein Family Member 3, Category:Amino acids, Category:Blood components, Category:Channelopathy, Category:Chemical elements, Category:Coenzymes, Category:Cofactors, Category:Corticosteroids, Category:Cytokines, Category:Eicosanoids, Category:Electrolytes, Category:Enzymes, Category:Glycolipids, Category:Hormones, Category:Indoles, Category:Lipids, Category:Metabolic pathways, Category:Methylation, Category:Minerals, Category:Neurotransmitters and hormones, Category:Organelles, Category:Peptides, Category:Protein receptors, Category:Proteins, Category:Sugars

, Endocannabinoid, Glucocorticoid, Nitric oxide, Oxidative phosphorylation, Phenylalanine

Nutrients: B vitamin, Bile salt, Biotin, Calcium, Calicitriol, Carnitine, Choline, Chromium, Cobalamin, Coenzyme Q10, Copper, Creatine, Deadlock quartet, Dr Lapp's supplement recommendations, Electrolyte, Fluoride, Folate, Iodine, Magnesium, Malic acid, Manganese, Mineral, Molybdenum, Myers' Cocktail, Niacin, Pantothenic Acid, Phosphorus, Potassium, Pyridoxal-5'-phosphate, Riboflavin, Selenium, Sodium, Thiamine, Trimethylglycine, Vitamin A, Vitamin C, Vitamin D, Vitamin E, Vitamin K, Zinc, Category:Electrolytes, Category:Minerals, Category:Vitamins


Neurotransmitters and hormones: Acetylcholine, Alpha-Melanocyte-stimulating hormone, Calicitriol, Calcidiol, Cortisol, Dopamine, Endorphin, Estriadol, Epinephrine, Estrogen, Glucocorticoid, Glutamate, Histamine, Hormones, Leptin, Melatonin, Neurotransmitters, Norepinephrine, Oxytocin, Progesterone, Prolactin, Prostaglandins, Serotonin, Testosterone, Vasopressin, Thyroid, MSH, HGH

Blood donation

Disease Names & Definitions[edit | edit source]

No pages meet these criteria.


Research[edit | edit source]

Researchers

Research initiatives

Studies, biobanks, registries, mailing lists

Disclaimer: The following is a range of some of the interventions (including anecdotal) that have been used by patients to try to treat both individual symptoms and the disease as a whole, some of which have been researched and many which have not. The vast majority lack ANY reliable evidence of efficacy. Many carry significant side-effects and risks. This content is provided for information ONLY. MEpedia is not to be used to diagnose or treat any illness. Patients must consult a clinician before embarking on treatment.

Pharmaceuticals[edit | edit source]

Antifungal drugs: Antimycotics, Ashwagandha, Fluconazole, Itraconazole, Metronidazole


Other drug treatments: Chelation, Cyclophosphamide, Prednisone, Trazodone, Tramadol

B-cell depletion: Rituximab

Anti-inflammatories: Aloe vera, Anti-inflammatory diets, Aripiprazole, Ashwagandha, Aspirin, Bromelain, Celecoxib, Colchicine, COX-2 inhibitors, Diclofenac, Dietary Approaches to Stop Hypertension diet, Ecklonia cava, Fatigue reduction diet, Healthy, balanced diet, Ibudilast, Ibuprofen, Iceland moss, Imunovir, Inspiritol, Leaky gut diet, Low dose naltrexone, Maitake mushroom, Maqui berry, Mediterranean diet, Mefenamic acid, Meloxicam, Nabumetone, Naproxen, Nonsteroidal anti-inflammatory drug, Palmitoylethanolamide, Plant-based diet, Polyphenol, Prednisone, Pyrroloquinoline Quinone, Rofecoxib, Shiitake mushroom, Sulfasalazine, Vegan diet, Whole foods plant-based diet, Category:Nonsteroidal anti-inflammatory drugs


Immunomodulators: Ampligen, Arginine, BCG vaccination, Bromelain, Colchicine, Cyclophosphamide, Dr Markov's chronic bacterial intoxication syndrome (CBIS) theory of ME/CFS, Glatiramer acetate, Ibudilast, Iceland moss, Immunoadsorption, Immunoglobulin G, Imunovir, Interferential current therapy, Interferon, Interferon gamma, Intravenous immunoglobulin, Marketing History of Ampligen, Nexavir, Rituximab, Staphylococcus vaccine, Sulfasalazine, Zofin, Category:Immunostimulants


Immunostimulants: BCG vaccination, Histamine, Immunoadsorption, Imunovir, Interferential current therapy, Isoleucine, Leucine, Shiitake mushroom, Vaccine, Category:Vaccines


Antivirals: Aciclovir, Amantadine, Ampligen, Antiviral, Famciclovir, Gancyclovir, Imunovir, Inspiritol, Interferon alpha, Maitake mushroom, Maqui berry, Maraviroc, Marketing History of Ampligen, Molnupiravir, Oseltamivir, Pleconaril, Raltegravir, Ribavirin, Shiitake mushroom, Umifenovir, Valaciclovir, Valganciclovir, Viread, Category:Antiretrovirals


Articles to be categorised: Intravenous immunoglobulin, Staphylococcal vaccine

Herbs, Supplements and Nutraceuticals[edit | edit source]

Supplements: 5-Hydroxytryptophan, Acetyl coenzyme A, Active Hexose Correlated Compound, Adaptogens, Aloe vera, Alternative medicine, Amino acid, Arachidonic acid, Arginine, Ashwagandha, Astragalus membranaceus, AXA1125, B vitamin, Bile salt, Biotin, Bitter fennel, Black tea, Blueberries, Bojungikgi-tang, Boron, Branched chain amino acid, Brewer's yeast, Bromelain, Bromide, Caffeine, Calcium, Calendula, Camomile, Capsaicin, Carnitine, Choline, Citrulline, Cobalamin, Coenzyme Q10, Colostrum, Creatine, Curcumin, Cusack Protocol, Deadlock quartet, Dehydroepiandrosterone, Diamine oxidase, Docosahexaenoic acid, Dr Lapp's supplement recommendations, Echinacea, Ecklonia cava, Eicosapentaenoic acid, Electrolyte, Eleuthero, Epigallocatechin gallate, Essential fatty acid, Evening primrose oil, Fat burner, Feverfew, Fish oil, FlaviNOx, Flavonoid, Folate, Gamma linolenic acid, Garlic, GcMAF, Ginkgo biloba, Ginseng, Glutamate, Glutamine, Glutathione, Gotu kola, Green coffee bean extract, Green tea, Guarana extract, Hawthorn, Huperzine A, Hydrochloric acid, Iceland moss, Iron, Isoleucine, Licorice, List of approved herbal medicines by the EU Committee for Herbal Medicinal Products, Lomatium, Lysine, Magnesium, Maitake mushroom, Malic acid, Manganese, Mangosteen, Maqui berry, Melatonin, Melissa officinalis, Membrane lipid replacement, Methionine, Methylene blue, Methylsulfonylmethane, MitoQ, Mushrooms, Mutaflor, N-acetylcysteine, Niacin, Nicotinamide, Nicotinamide adenine dinucleotide, NT Factor, Nutritional deficiencies in ME/CFS, Olive leaf and olives, Omega 3 fatty acid, Omega 6 fatty acid, Oral rehydration salts, Ornithine, Oxaloacetate, Oxymatrine, Palmitoylethanolamide, Pantothenic Acid, Phenylalanine, Potassium, PrescriptAssist, Probiotic, Pyridoxal-5'-phosphate, Pyrroloquinoline Quinone, Quercetin, Quercus robur, Reishi mushroom, Resveratrol, Rhodiola rosea, Riboflavin, Ribose, SAM-e, Selenium, Serine, Shiitake mushroom, Sophora flavescens, Spermidine, St. John’s Wort, Superoxide dismutase, Sweet fennel, Symbioflor-2, Taurine, Theanine, Thiamine, Threonine, Traditional medicine, Transfer factors, Tulsi, Turmeric, Tyrosine, Uva ursi, Valerian, Valine, Vitamin, Vitamin A, Vitamin C, Vitamin D, Vitamin E, Vitamin K, Vitex trifolia, Whey products, Wild lettuce leaf, Zinc, Category:B vitamins, Category:Electrolytes, Category:Fatty acids, Category:Free fatty acids, Category:Glycophospholipids, Category:Herbs, Category:Medicinal foods, Category:Minerals, Category:Polyunsaturated fatty acids, Category:Traditional Chinese medicine, Category:Vitamins


Supplement articles to be created: Vegan/non-whey Protein Powders with Amino Acid Complex, Greens Powders, 5-Hydroxytryptophan, L-arginine, L-citrulline, Magnesium Malate

Supplement sources: Pure Formulas, Be Well By Dr Frank Lipman, Seeking Health, MITOQ, Aloha, ProHealth, Thrive Marketplace, HolisticHeal, Vitacost.com

Herbs: Adaptogens, Aloe vera, Aniseed, Ashwagandha, Astragalus membranaceus, Ayurvedic medicine, Bitter fennel, Black tea, Blueberries, Bojungikgi-tang, Caffeine, Calendula, Camomile, Capsaicin, Curcumin, Echinacea, Eleuthero, Epigallocatechin gallate, Equilibrant, Feverfew, Garlic, Ginger, Ginkgo biloba, Ginseng, Gotu kola, Green coffee bean extract, Green tea, Guarana extract, Hawthorn, Iceland moss, Kampo, Kava, Licorice, List of approved herbal medicines by the EU Committee for Herbal Medicinal Products, Lomatium, Medical marijuana, Melissa officinalis, Noni, Olive leaf and olives, Oregano, Oroxylin A, Oxymatrine, Passiflora, Peppermint oil, Protandim, Quercus robur, Resveratrol, Rhodiola rosea, Schisandra chinensis, Silymarin, Sophora flavescens, St. John’s Wort, Sweet fennel, Tea tree oil, Traditional medicine, Tulsi, Turmeric, Uva ursi, Valerian, Vitex trifolia, Wild lettuce leaf


Immunovir, Medicinal mushrooms

Alternative interventions[edit | edit source]

Diets: GAPS diet, Ketogenic diet, Low FODMAP Diet, Low Histamine Diet, Paleo diet, RPAH Elimination Diet, Specific carbohydrate diet, Vegan diet, Vegetarian diet, Fasting

Foods: Cocoa (Dark chocolate)

Uncategorized interventions: Traditional Chinese medicine, Cold immersion, Fecal matter transplant/Faecal bacteriotherapy, Helminthic therapy, Pacing, Energy envelope, Hyperbaric oxygen, Exercise, Vagus nerve stimulation, Exercise based on 2-day CPET

Category page: Potential treatments

Clinicians[edit | edit source]

Australia: Amy Wallis, Donald Lewis, Greg Emerson, Henry Butt, John Whiting, Jonathan Turtle, Katherine Rowe, Mark Donohoe, Michael Oldmeadow, Peter Smith, Rashmi Cabena, Richard Kwiatek, Richard Schloeffel, Sarah Knight, Sonya Marshall-Gradisnik


Belgium: Annemie Uyttersprot, Boudewijn Van Houdenhove, Elke Van Hoof, Els Tobback, Jo Nijs, Kenny De Meirleir, Michael Maes

, Annemie Uyttersprot (GP)

Canada: A C Peter Powles, Alison Bested, Anil Kumar Jain, Bruce Hoffman, Byron Hyde, Eleanor Stein, Ian Hyams, Jeffrey Sherkey, Morris Duhaime, Pierre Flor-Henry, Pradip Joshi, Ric Arseneau, Category:Clinicians by Canadian province


Chile: Ismael Mena


Denmark: Jesper Mehlsen


Finland: Olli Polo, Ville Valtonen


Germany: Anna Dorothea Hoeck, Carmen Scheibenbogen, Courtney Craig, Uta Behrends, Wilfried Bieger


Ireland: Austin Darragh


Italy: Eligio Pizzigallo, Lorenzo Lorusso, Nicoletta Carlo-Stella, Umberto Tirelli

, Lorenzo Lorusso, Eligio Pizzigallo, Umberto Tirelli

Japan: Kunihisa Miwa, Teruhisa Miike


New Zealand: Peter Grahame Snow, Rosamund Vallings


Norway: Arnold Berstad, Barbara Baumgarten-Austrheim, Dag Sulheim, Harald Nyland, Knut-Arne Wensaas, Live Landmark, Olav Mella, Peter Johnsen, Øystein Fluge


South Africa: Alexia van der Velde, Cecile Jadin, Peter Tarbleton

, Peter Tarbleton

South Korea: Daehyun Jo


Sweden: Björn Bragée, Carl-Gerhard Gottfries, Olli Polo


United Kingdom: Abhijit Chaudhuri, Alan Carson, Alan Stanton, Alastair Miller, Alessandra Borsini, Alicia Deale, Amberly Brigden, Amolak Bansal, Andrew Wright, Anne Gerken, Anne MacIntyre, Anthony Cleare, Anthony Pelosi, Arlene Gallagher, Ashok Gupta, Basant Puri, Ben Goldacre, Carmine Pariante, Carolyn Chew-Graham, Charles Shepherd, Chris Ponting, Christopher Burton, Clare Gerada, Daniel Forton, Derek Pheby, Diane Cox, Dietrich Klinghardt, Donald Acheson, Elena Garralda, Esther Crawley, Farhad Dalal, Francis Creed, Gabrielle Murphy, Gavin Spickett, Graham Foster, Harvey Marcovitch, Hazel O'Dowd, Ilora Finlay, Irving Spurr, James Mowbray, Jean Monro, Jo Daniels, Joan Crawford, Joanne Bond-Kendall, John Richardson, Jonathan Brostoff, Jonathan Tobias, Julia Newton, Leone Ridsdale, Leslie Findley, Lucy Clark, Matthew Hotopf, Maurice Murphy, Max Pemberton, Melvin Ramsay, Michael Prendergast, Mike Beadsworth, Naghmeh Nikkheslat, Natalie Moll, Neil Harrison, Nicola Clague-Baker, Nigel Speight, Nilay Hepgul, Nina Muirhead, Peter Barry, Peter Behan, Phil Hammond, Raymond Perrin, Richard Edwards, Rosemary Underhill, Sarah Myhill, Simon Wessely, Susan Watson, Terry Mitchell, Theo Anbu, Tim Peto, Tony Crouch, Trudie Chalder, Valeria Mondelli, Vinod Patel, William Weir, Zuzanna Zajkowska

, Breakspear Medical, Vinod Patel, Raymond Perrin, Andrew Wright

United States:

  • California:

Amy Yasko, Andreas Kogelnik, Bela Chheda, David Kaufman, Eric Gordon, Erich Ryll, Hector Bonilla, Jane Norris, John Chia, Jon Kaiser, Jose Montoya, Kent Holtorf, Lily Chu, Phillipe Bottello

, Phillipe Bottello, Kent Holtorf, Open Medicine Foundation, Amy Yasko, Holtorf Medical Group

  • Colorado:

Lisa Corbin, Nelson Gantz


  • Connecticut:

Morris Papernik

  • Florida:

Alison Bested, Daniel Dantini, Irma Rey, Jane Fitzpatrick, Maria Vera, Michael Antoni, Nancy Klimas, Roland Staud, Rosemary Underhill

, Daniel Dantini

  • Georgia:

Holtorf Medical Group

  • Hawaii:

Jacob Teitelbaum


  • Illinois:

Katie Brown, Kristine Healy


  • Iowa:

Arthur Hartz


  • Louisiana :

Adrian Casillas


  • Maryland:

Alan Pocinki, Alan Weiss, Jacqueline Rose, Peter Rowe, Rebecca Patterson Collier, Ritchie Shoemaker, Stephen Straus

, Alan Weiss

  • Massachusetts:

Alan Gurwitt, Anthony Komaroff, David Systrom, Jordan Dimitrakoff, Ronald Tompkins


  • Michigan:

A Martin Lerner, Alisa Koch, Daniel Clauw, Edward Conley

  • Minnesota:

Ann Vincent, Elizabeth L. Maloney

  • Mississippi:

Gailen Marshall

  • Missouri:‎

Joseph Brewer

  • Nevada:

Daniel Peterson, Kenny De Meirleir, Robert Fredericks

‎, Robert Fredericks

  • New Jersey:

James Oleske, Malcolm Schwartz, Richard Podell


  • New York:

Benjamin Natelson, Derek Enlander, Gudrun Lange, Jesse Stoff, Julian Stewart, Lawrence Afrin, Maureen Hanson, Patricia Fennell, Peter Manu, Susan Levine


  • North Carolina:

Charles Lapp, Laura Black, Paul Cheney, Vincent Hillman


Adrian Casillas


  • Utah:

Lucinda Bateman, Nathan Holladay


  • Virginia:

Gary Kaplan


  • Washington:

David Buscher, Dedra Buchwald


Management guides: Taming the Gorilla (Action for ME), Notes for Carers (Greg Crowhurst), The Purple Booklet (ME Association), Spoon theory, Dental Leaflet for ME Sufferers (The Grace Charity for M.E.), CFS - A Roadmap for Testing and Treatment, Information for Patients and Hospital Staff Regarding Treatment of Patients with M.E. (The Grace Charity for M.E.)

Psychological Paradigm[edit | edit source]

Psychological paradigm, mind-body approaches and related interventions: FINE trial, PACE trial, Graded Exercise Therapy, Cognitive Behavioral Therapy, Biopsychosocial model, Deconditioning, Mickel therapy, Lightning Process, Reverse therapy, Gupta programme, Psychoneuroimmunology, Meditation, Bodily distress syndrome, Functional somatic syndrome, Psychosomatic illness, Neurasthenia, Medically unexplained symptoms

Psychological paradigm proponents: Alicia Deale, Anna Katharina Schaffner, Anthony Cleare, Anthony David, Anthony Johnson, Anthony Pelosi, Arlene Gallagher, Ben Goldacre, Boudewijn Van Houdenhove, Brian Angus, Brian Walitt, Carolyn Chew-Graham, Chantal Bleeker-Rovers, Clare Gerada, Colin McEvedy, Cuno Uiterwaal, David Wilks, Diane Cox, Edward Shorter, Elise van de Putte, Esther Crawley, Francis Creed, Gabrielle Murphy, Gijs Bleijenberg, Hazel O'Dowd, Hugo Critchley, Isaac Marks, Jan Kimpen, Jeannine Hautvast, Jessica Bavinton, Jim Bolton, Jo Daniels, Jos van der Meer, Julia DeCesare, Kate Kelland, Kimberley Goldsmith, Korine Scheeres, Laura Potts, Leone Ridsdale, Leorey Saligan, Leszek Borysiewicz, Lieke de Jong, Lillebeth Larun, Loudy Priesterbach, Lucy Clark, Maja Stulemeijer, Mansel Aylward, Mary Burgess, Max Pemberton, Michael Sharpe, PACE Trial Management Group, Paul McCrone, Per Fink, Peter Manu, Peter White, Rebecca Walwyn, Richard Edwards, Rod Liddle, Rona Moss-Morris, Royal College of General Practitioners, Sanne Nijhof, Sean Lynch, Sense About Science, Sigrid Hoogveld, Simon Collin, Simon Wessely, Suzanne O'Sullivan, Theo Fiselier, Tim Peto, Tom Feilden, Trudie Chalder, Wessely school, William Beard, William Reeves, Category:PACE trial proponents


Psychological paradigm critics: Alan Gurwitt, Alan Light, Alem Matthees, Alice Hattrick, Alison Bested, Andrew Bretherton, Angela Kennedy, Anil van der Zee, Arthur Reingold, Baroness Scott of Needham Market, Betsy Keller, Brian Hughes, Brian Vastag, Bruce Levin, Carly Maryhew, Caroline Struthers, Carolyn Wilshire, Catherine Hale, Charles Lapp, Charles Shepherd, Christopher Snell, David Bell, David Black, David Kaufman, David Marks, David Tuller, Derek Enlander, Dharam Ablashi, Donald Acheson, Donald Staines, Eleanor Stein, Elisa Oltra, Ellen Goudsmit, Frank Twisk, Frans Visser, Fred Friedberg, Gordon Broderick, Graham McPhee, Hillary Johnson, Ian Gibson, James Baraniuk, James Coyne, James Oleske, James Strazza, Jesper Mehlsen, Joan Crawford, John Chia, John Peters, Jonathan Edwards, Julie Rehmeyer, Katrina Berne, Keith Geraghty, Keith Kahn-Harris, Keith Laws, Kelly Ickmans, Kenneth Friedman, Leonard Jason, Lily Chu, Lisa Barcellos, Lubov Nathanson, Lucinda Bateman, Malcolm Hooper, Marcie Zinn, Mark Vink, Mark Zinn, Mary Ann Fletcher, Maureen Hanson, Michael Maes, Michael VanElzakker, Mike Godwin, Molly Brown, Nancy Klimas, Nicola Clague-Baker, Nigel Speight, Nina Muirhead, Peter Rowe, Philip Lee, Richard Podell, Robert Courtney, Robin Brown, Ronald Davis, Ronald Tompkins, Rosamund Vallings, Rosemary Underhill, Sally Burch, Sam Carter, Sarah Myhill, Sonya Marshall-Gradisnik, Staci Stevens, Steve Topple, Steven Lubet, Susan Levine, Terry Mitchell, Vincent Lombardi, Vincent Racaniello, Warren Tate, William Weir, Zaher Nahle, Category:PACE trial critics


Patient mental health

By country: Diagnosis, treatments, insurance, disability, etc.[edit | edit source]

  • Africa:

Kenya, Nigeria, Sierra Leone, South Africa, Category:Kenya, Category:Nigeria, Category:Outbreaks in Sierra Leone, Category:Outbreaks in the Republic of South Africa, Category:Sierra Leone, Category:South Africa


  • Asia:

China, India, Indonesia, Iran, Israel, Japan, Russia, South Korea, Category:China, Category:Hong Kong, Category:India, Category:Indonesia, Category:Iran, Category:Israel, Category:Japan, Category:Philippines, Category:Russia, Category:South Korea


  • Europe:

Austria, Belarus, Belgium, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Italy, Latvia, Lithuania, Netherlands, Norway, User:Notjusttired, Poland, Portugal, Romania, Russia, Serbia, Slovakia, Slovenia, Spain, Sweden, Switzerland, Ukraine, United Kingdom, Category:Austria, Category:Belarus, Category:Belgium, Category:Bulgaria, Category:Croatia, Category:Czech Republic, Category:Estonia, Category:European research initiatives, Category:Latvia, Category:Lithuania, Category:Netherlands, Category:Russia


  • Oceania:

Australia, New Zealand, Category:Australia, Category:New Zealand


  • North America:

Belize, Canada, Mexico, United States, Category:Belize, Category:Canada, Category:Central America, Category:Cuba, Category:Dominican Republic, Category:Mexico, Category:The Caribbean, Category:United States


  • South America:

Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, French Guiana, Guyana, Paraguay, Peru, Suriname, Uruguay, Venezuela, Category:Argentina, Category:Bolivia, Category:Brazil, Category:Chile, Category:Colombia, Category:Ecuador, Category:Guyana, Category:Paraguay, Category:Peru, Category:Spanish-language articles, Category:Suriname, Category:Uruguay, Category:Venezuela


History[edit | edit source]

Important events timeline

Historical records: Osler's Web, Thirty Years of Disdain

Outbreaks: 1934 Los Angeles atypical polio outbreak, 1936 Fond-du-Lac outbreak, 1937 Erstfeld outbreak, 1937 St. Gallen outbreak, 1939 Degersheim outbreak, 1939 Middlesex outbreak, 1945 Pennsylvania outbreak, 1946-47 Iceland outbreak, 1948-49 Akureyri outbreak, 1949-53 Adelaide outbreak, 1950 Louisville outbreak, 1950 New York State outbreak, 1952 Copenhagen outbreak, 1952 Florida outbreak, 1952 London Middlesex Hospital outbreak, 1953 Coventry outbreak, 1953 Jutland outbreak, 1953 Maryland outbreak, 1954 Berlin outbreak, 1954 Florida outbreak, 1954 Johannesburg outbreak, 1954 Liverpool outbreak, 1954 Seward outbreak, 1955 Dalston outbreak, 1955 Durban outbreak, 1955 Iceland outbreak, 1955 North of England outbreak, 1955 Perth outbreak, 1955 Royal Free Hospital outbreak, 1955 Segbwema outbreak, 1955 Wales outbreak, 1956 Coventry outbreak, 1956 Lancashire outbreak, 1956 Massachusetts outbreak, 1956 Punta Gorda outbreak, 1956 Ridgefield outbreak, 1957 South Australia outbreak, 1958 Athens outbreak, 1958 London SW outbreak, 1959 England outbreak, 1959 London NW outbreak, 1959 Newcastle outbreak, 1961 Basel outbreak, 1961 New York State outbreak, 1964 Franklin outbreak, 1964 London NW outbreak, 1965 Galveston outbreak, 1967 Edinburgh outbreak, 1968 Fraidek outbreak, 1969 New York outbreak, 1970 Lackland outbreak, 1970 London outbreak, 1975 Sacramento outbreak, 1976 Ireland SW outbreak, 1977 Dallas outbreak, 1979 Southampton outbreak, 1980 Helensburgh outbreak, 1980-81 Ayrshire outbreak, 1981 Gunnedah outbreak, 1981 Stirlingshire outbreak, 1984 Chapel Hill outbreak, 1984 Incline Village chronic fatigue syndrome outbreak, 1984 Montreal outbreak, 1984 Tapanui & West Otago Outbreak, 1984 Truckee outbreak, 1985 Lyndonville outbreak, 1985 Yerington outbreak, 1986 Placerville outbreak, 1988 Narrabeen outbreak, 1988 Sonora CA outbreak, 1989 Roseville CA outbreak, 1990 Elk Grove CA outbreak, 1996 Mohave Valley region, Arizona, 2003 Hong Kong outbreak, 2004 Bergen, Norway outbreak, 2019 Coronavirus pandemic outbreak, Epidemic myalgic encephalomyelitis, List of myalgic encephalomyelitis and chronic fatigue syndrome outbreaks, Category:Outbreaks by country, Category:Outbreaks by decade


Deceased people with ME/CFS and/or FMS: Alan W. Lear, Anne Örtegren, Beth Mazur, Blake Edwards, Brynmor John, Chardale Dotson Irvine, Charles Darwin, Craig W. Maupin, Elizabeth Barrett Browning, Emily Collingridge, Florence Nightingale, Frank Carrone, Frida Kahlo, Gary Burgess, Graham McPhee, Henry Percy, 11th Duke of Northumberland, Jodi Bassett, Justin Noble, Laurie Walker, Leila Pahlavi, List of deaths caused by myalgic encephalomyelitis or chronic fatigue syndrome, Lynn Gilderdale, Maeve Boothby-O'Neill, Marcie Zinn, Marie Curie, Martin Lev, Memorial lists, Merryn Crofts, Michael Mayne, Miriam Defensor Santiago, Oliver Coles, Rich Van Konynenburg, Robert Courtney, Roger Cicero, Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Victoria Elsbury-Legg


Major developments/controversies: PACE trial, XMRV

ME and CFS in popular culture

Psychosomatic explanations for disease - History of misdiagnosis of illnesses [[1]]

Patient Advocacy[edit | edit source]

Patient groups

How To Advocate: Community and System Change

Advocacy/Fundraising Initiatives:

Famous people with ME, CFS, and/or FMS: Alan W. Lear, Alice Hattrick, Amy Peterson, Ann Bannon, Anne Örtegren, Blake Edwards, Brenton Brown, Brynmor John, Casey Stoner, Charles Darwin, Cher, Claire Jones, Clare Francis, David Provan, David Puttnam, Elizabeth Barrett Browning, Emma Blackery, Flea, Florence Nightingale, Frank Carrone, Frida Kahlo, Gary Burgess, Glenn Beck, Henry Percy, 11th Duke of Northumberland, Howard Bloom, Jacqueline Ko, Jennie Jacques, John Rutter, Jonathan Ansell, Julie Rehmeyer, Katie Flynn, Keith Jarrett, Lady Gaga, Laura Hillenbrand, Laurie Walker, Leila Pahlavi, List of famous people with ME, CFS, and/or FMS, Marcie Zinn, Margaret of Mar, 31st Countess of Mar, Marie Curie, Martin Lev, Martin Phillips, Martine McCutcheon, Michael Crawford, Michael Mayne, Michelle Akers, Miriam Defensor Santiago, Morgan Fairchild, Neil Codling, Nicola Blackwood, Olaf Bodden, Oriah Mountain Dreamer, Paul Atherton, Peter Marshall, Randy Newman, Rich Carson, Richie Barnett, Rivka Solomon, Roger Cicero, Sabine Moussier, Sarah Storey, Shirley Conran, Stevie Nicks, Stuart Murdoch, Susan Blackmore, Susan Harris, Tom Clarke, Toni Bernhard, Vicky Beeching, Yvette Cooper, Category:Famous people with ME, CFS, and/or FMS by country


People living with ME, CFS, and/or FMS: Adam Lowe, Adrienne Dellwo, Alan Gurwitt, Alan W. Lear, Alem Matthees, Ali Smith, Alice Hattrick, Amy Peterson, Andrew Bretherton, Andrew Chia, Andrew Williams, Angus Mackay, Anil van der Zee, Ann Bannon, Anne Örtegren, Beth French, Beth Mazur, Blake Edwards, Brenton Brown, Brian Vastag, Brynmor John, Cara Tomas, Carly Maryhew, Carol Head, Casey Stoner, Catherine Hale, Chardale Dotson Irvine, Charles Shepherd, Cher, Chris Willsher, Claire Jones, Claire Wade, Clare Francis, Clark Ellis, Cort Johnson, Courtney Craig, Craig W. Maupin, Dan Neuffer, David Provan, David Puttnam, Dean Brantley Taylor, Deborah Waroff, Donna Pearson, Ean Proctor, Eddy Keuninckx, Elizabeth Barrett Browning, Ellen Piro, Emily Collingridge, Emma Blackery, Emma Shorter, Erica Verrillo, Erik Johnson, Erin B. Fromkes, Flea, Florence Nightingale, Frank Carrone, Frank Twisk, Frida Kahlo, Gabby Klein, Gary Burgess, Geoffrey Hallmann, Giada Da Ros, Giles Meehan, Glenn Beck, Graham McPhee, Guido den Broeder, Hayley Green, Henry Percy, 11th Duke of Northumberland, Hillary Johnson, Howard Bloom, "Joanne", Jacqueline Ko, Jacqueline Rose, Jaime Seltzer, James Strazza, Jamison Hill, Jane Colby, Janelle Wiley, Jeannette Burmeister, Jennie Jacques, Jennie Spotila, Jennifer Brea, Jessica Taylor-Bearman, Jo Moss, Jodi Bassett, John Peters, John Rutter, Jon Kaiser, Judy Basso, Julie Rehmeyer, Justin Noble, Karina Hansen, Katie Flynn, Katrina Berne, Keith Geraghty, Keith Jarrett, Keith Kahn-Harris, Ken Lassesen, Kim Snyder, L.A. Cooper, Lady Gaga, Laura Hillenbrand, Laura Vitale, Laurie Walker, Leonard Jason, Lily Chu, Linda Crowhurst, Lisa Petrison, Lucy Saxon, Lydia Neilson, Lynn Gilderdale, Maeve Boothby-O'Neill, Maija Haavisto, Maik Speedy, Marc Iverson, Marcie Zinn, Margaret of Mar, 31st Countess of Mar, Margaret Williams, Marie Curie, Marion Michell, Marjorie van de Sande, Mark Berry, Mark Guthridge, Mark Vink, Martin Lev, Martin Pall, Martine McCutcheon, Mary Ann Kindel, Mary Gelpi, Mary Schweitzer, Maryann Spurgin, Merryn Crofts, Michael Crawford, Michael Mayne, Michelle Akers, Mindfully Evie, Miriam Defensor Santiago, Morgan Fairchild, Nancy Blake, Nancy Butler, Nancy Kaiser, Naomi Whittingham, Nasim Marie Jafry, Nathalie Wright, Neil Codling, Nicola Blackwood, Nina Muirhead, Olaf Bodden, Oliver Coles, Oriah Mountain Dreamer, Paul Atherton, Peter Kemp, Phil Murray, Randy Newman, Rebecca Artman, Rich Carson, Rich Van Konynenburg, Richie Barnett, Rivka Solomon, Robert Courtney, Robert Miller, Roberta Pelletta, Robin Brown, Roger Cicero, Russell Logan, Ryan Prior, Sally Burch, Sally Jones, Sam Carter, Sarah Storey, Scott Simpson, Shirley Conran, Simon Del Favero, Simon McGrath, Sophia Mirza, Staci Stevens, Steven Lubet, Stevie Nicks, Stuart Murdoch, Susan Blackmore, Susan Harris, Susan Kreutzer, Tanya Harrison, Tanya Marlow, Thomas Hennessy, Jr., Tom Clarke, Tom Kindlon, Toni Bernhard, Valentina Bodina Cohen, Valerie Eliot Smith, Vance Spence, Vanessa Li, Vicky Beeching, Victoria Elsbury-Legg, Wendy Boutilier, Whitney Dafoe, Yvette Cooper, Category:Citizen scientists, Category:Deceased people with ME, CFS, and/or FMS, Category:Famous people with ME, CFS, and/or FMS


Notable advocates: Adam Lowe, Adrian Bailey, Adrienne Dellwo, Alan Gurwitt, Alem Matthees, Alex Chalk, Alexandra Heumber, Amy Carlson, Andrew Bretherton, Andrew Selous, Angela Kennedy, Anil van der Zee, Anne Örtegren, Annette Whittemore, Baroness Scott of Needham Market, Ben Lake, Beth Mazur, Brian Hughes, Carly Maryhew, Carol Head, Carol Monaghan, Caroline Lucas, Caroline Struthers, Casey Stoner, Catherine Hale, Charles Shepherd, Charmian Proskauer, Christine Hunter, Clare Francis, Clark Ellis, Cort Johnson, Courtney Miller, Darren Jones, David Black, David Drew, David Marks, David Puttnam, David Tuller, Deborah Waroff, Don Tannenbaum, Donna Pearson, Ed Burmeister, Eddy Keuninckx, Eileen Holderman, Eleanor Stein, Elisa Perego, Ellen Goudsmit, Ellen Piro, Emily Collingridge, Emma Lewell-Buck, Emma Reinhold, Emma Shorter, Erica Verrillo, Erik Johnson, Faith Newton, Farhad Dalal, Felicity Callard, Frank Twisk, Gabby Klein, Gary Burgess, Geoffrey Hallmann, Gez Medinger, Giada Da Ros, Graham McPhee, Graham Stringer, Greg Crowhurst, Hilda Bastian, Hillary Johnson, Ian Gibson, Jacqueline Ko, Jaime Seltzer, James Strazza, Jamison Hill, Jane Colby, Janelle Wiley, Janet Dafoe, Jason Newfield, Jeannette Burmeister, Jennie Jacques, Jennie Spotila, Jennifer Brea, Jessica Taylor-Bearman, Jim Cunningham, Jim Shannon, Joan Crawford, Jodi Bassett, John Nicols, John Peters, Jon Campling, Judy Basso, Julie Rehmeyer, Jørgen Jelstad, Keith Kahn-Harris, Kelvin Hopkins, Ken Lassesen, Kenneth Friedman, Kerry McCarthy, Kim McCleary, Kim Snyder, Kjersti Krisner, L.A. Cooper, Lena Dunham, Lily Chu, Linda Tannenbaum, Lisa Petrison, List of Chronic Fatigue Syndrome Advisory Committee Members, Llewellyn King, Luciana Berger, Lydia Neilson, Lyle Lieberman, Maik Speedy, Malcolm Hooper, Margaret of Mar, 31st Countess of Mar, Margaret Williams, Marjorie van de Sande, Mark Berry, Mark Guthridge, Mark Vink, Mary Ann Kindel, Mary Dimmock, Mary Gelpi, Mary Glindon, Mary Schweitzer, ME activists and advocates, Megan Arroll, Mike Godwin, Mike Harley, Mindfully Evie, Mindy Kitei, Morgan Fairchild, Nancy Butler, Natalie Lambert, Nathalie MacDermott, Nicky Morgan, Nicola Clague-Baker, Nicole Castillo, Nina Muirhead, Nisreen Alwan, Norman Lamb, Orvalene Prewitt, Paul Garner, Peter Kemp, Phil Murray, Philip Stark, Philippa Whitford, Pia Simpson, Rebecca Artman, Rich Carson, Richard Simpson, Rivka Solomon, Robert Courtney, Robert Miller, Robin Brown, Ryan Prior, Sally Burch, Sam Carter, Sarah Myhill, Scott Ludlam, Scott Simpson, Simon Duffy, Simon McGrath, Sonya Chowdhury, Stephanie Land, Stephen Pound, Steve Topple, Steven Krafchick, Susan Kreutzer, Tanya Harrison, Tanya Marlow, Thomas Hennessy, Jr., Tom Clarke, Tom Kindlon, Tom Whittingham, Valentina Bodina Cohen, Valerie Eliot Smith, Vincent Racaniello, Wendy Boutilier, Yvette Cooper, Category:Advocates or allies by country, Category:CFSAC members, Category:Citizen scientists, Category:Long COVID advocates or allies


Notable Quotes: List of Quotes, Individual Quotes

Illuminated landmarks

Journals, TV, Articles, Books, Film, Interviews, Blogs, Discussion Forums[edit | edit source]

Journals: Diagnostics, Fatigue: Biomedicine, Health & Behavior, Journal of Chronic Fatigue Syndrome, Journal of Nuclear Medicine, PLOS ONE, The BMJ, The Journal of Nuclear Medicine, The Lancet, The Lancet Psychiatry, Category:Journal editors, Category:Journals with all articles using CC licenses, Category:Journals with other licenses, Category:Journals with some articles using CC licenses


TV: Afflicted, Chronic Fatigue: Missing Millions (Carte Blanche DSTV), House, I Remember Me, Inside Out: Six years in bed, List of television segments on ME and CFS, Sick and Tired - BBC, Sick and Tired - Incline Village Outbreak, Susan Harris, The Golden Girls, The Middle, Toxic Tiredness, Unrest


Books (Deutsch): ME - Myalgische Enzephalomyelitis vs. Chronic Fatigue Syndrom - Fakten Hintergründe Forschung


Books (English): 101 Tips For Coping With M.E., 150 Tips for Everyday Living with ME/CFS, A Beginner's Guide to ME/CFS, A Beginner's Guide to Mold Avoidance, A Companion Volume to Dr. Jay A. Goldstein's Betrayal by the Brain: A Guide for Patients and Their Physicians, A Girl Behind Dark Glasses, A Girl In One Room, A Year Lost and Found, All My Test Results are Normal: A Smart Guide to Testing for Chronic Fatigue Syndrome, America Exhausted: Breakthrough Treatments of Fatigue and Fibromyalgia, America's Biggest Cover-Up, An Introduction to the Lightning Process, Authors of our Own Misfortune? The Problems with Psychogenic Explanations for Physical Illnesses, Back from the Edge, Beating Chronic Fatigue: Your step-by-step guide to complete recovery, Betrayal by the Brain, Body by Science, Can I tell you about ME/Chronic Fatigue Syndrome?, Caring for ME, Caring for the M.E. Patient, CBT: The Cognitive Behavioural Tsunami: Managerialism, Politics and the Corruptions of Science, CFS Unravelled, Chronic Fatigue and its Syndromes, Chronic Fatigue Syndrome (1994 book), Chronic Fatigue Syndrome (1997 book), Chronic Fatigue Syndrome (The Facts), Chronic Fatigue Syndrome M.E.: Symptoms, Diagnosis, Management, Chronic Fatigue Syndrome, ME and Fibromyalgia - The Long Awaited Cure, Chronic Fatigue Syndrome/ME: Support for Family and Friends, Chronic Fatigue Syndrome: A Biological Approach, Chronic Fatigue Syndrome: A Guide to the Homeopathic Treatment of CFS/M.E., Chronic Fatigue Syndrome: A Treatment Guide, Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition, Chronic Fatigue Syndrome: What You Need To Know About CFS/ME, Ciba Foundation Symposium 173 - Chronic Fatigue Syndrome, Classic Pacing for a Better Life with ME, Clinician's Guide To Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities, Diagnosis and Treatment of Chronic Fatigue Syndrome: It's Mitochondria, Not Hypochondria, Encounters with the Invisible, Enteroviral and Toxin Mediated Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Other Organ Pathologies, Exhaustion: A History, Explaining "Unexplained Illnesses", Fighting Fatigue: Managing the Symptoms of CFS/ME, Finding M.E.: An Alternative Guide to Healing M.E./CFS, From ME to You, With Love, Get Well Soon: Adventures in Alternative Healthcare, Haworth Research Series on Malaise, Fatigue, and Debilitation, How To Be Sick, How To Live Well with Chronic Pain and Illness, I'm Not Crazy, I'm Just a Little Unwell: My Journey Through Chronic Fatigue Syndrome, Ill Feelings: stories of unexplained illness, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection, It's All in Your Head: True Stories of Imaginary Illness, Life with ME: Words of Warriors, Lightening the Shadow, Lighting Up a Hidden World, Living with ME, Love and Fatigue in America, M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome, M.E., Chronic Fatigue Syndrome and Fibromyalgia - The Reverse Therapy Approach, M.E., Myself and I, Managing Chronic Fatigue Syndrome and Fibromyalgia: Feel Better, Take Charge, Regain Hope, Managing ME/CFS: A guide for young people, Mayo Clinic Guide to Fibromyalgia: Strategies to Take Back Your Life, ME - The New Plague, Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome, My A-Z of M.E. (Myalgic Encephalomyelitis), My Teenage Son Had Chronic Fatigue Syndrome: A Mother's Tale of ME/CFS, Myalgic Encephalomyelitis and Postviral Fatigue States: The Saga of Royal Free Disease, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: History, Diagnostic Criteria, and Prevalence, One Last Goodbye, Osler's Web, Overcoming Chronic Fatigue, Plague, Post-Viral Fatigue Syndrome (book), Ramsay's Disease - Myalgic Encephalomyelitis (ME) and the Unfortunate Creation of 'CFS', Recovery from CFS: 50 Personal Stories, Reviving the Broken Marionette, Running On Empty: The Complete Guide to Chronic Fatigue Syndrome (CFIDS), Science, Politics, .......and ME: A health scandal in our generation, Severe ME - Featuring: "Justice for Karina Hansen", Severe ME/CFS: A Guide to Living, Severe ME: Notes for Carers, Shattered: A Champion's Fight Against a Mystery Illness, Shattered: Life with M.E., SICK: A Long Short Story About M.E., Stranger and stranger, Stricken, Supinely Sublimely, The Chronic Fatigue Syndrome Epidemic Cover-up: How a Little Newspaper Solved the Biggest Scientific and Political Mystery of Our Time, The Clinical and Scientific Basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, The Deep Places: A Memoir of Illness and Recovery, The Handbook of Chronic Fatigue Syndrome, The LDN Book, The Long Covid Handbook, The Long COVID Survival Guide, The Matzah Ball, The Pocket Guide to Chronic Fatigue Syndrome/ME: Key Facts and Tips for Improved Health, The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole his Son, The Sound of a Wild Snail Eating, The State of Me, The Unpredictable Journey: A Survivor's Success Story, The Why: The Historic ME/CFS Call To Arms, Thirty Years of Disdain, Thorsons Health - M.E.: Chronic Fatigue Syndrome: A Practical Guide, Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand, Tickle ME - Stories Of A Brain Fogged Girl, Understanding M.E. - A Guide For Friends, Family & Carers, What Is M.E.?, What Is M.E.? A Guide For Children, What Is Wrong with ME, When Force Meets Fate: A Mission to Solve an Invisible Illness, Why am I So Exhausted? understanding Chronic Fatigue Syndrome, Why ME, Within These Four Walls, Zoe's Win


Books (Italiano): Stanchi: Vivere con la Sindrome da Fatica Cronica


Books (Nederlands): Heden ik, Nooit Meer Moe


Books (Norsk): Classic Pacing for a Better Life with ME, De Bortgjemte, ME en sykdom i tiden


Books (Suomi): CFS:n ja fibromyalgian hoito


Books (Svenska): Trött är fel ord: Om att leva med den osynliga sjukdomen ME/CFS


Film: Afflicted, Dialogues for a neglected illness, Forgotten Plague, I Remember Me, Invisible Illness - Stories of Chronic Fatigue Syndrome, Living with M.E., M.E. and Me, ME The Hidden Truth, Perversely Dark, Safe, The Last Great Medical Cover Up, Unrest, Voices from the Shadows, What About ME, Wild Horses


Video interviews: Beyond the Data – Chronic Fatigue Syndrome: Advancing Research and Clinical Education, Dialogues for a neglected illness, Science for Patients


Blogs: 25pillsaday, A Dream Deferred, A Journey Through The Fog, A Life Hidden, Aroga Yoga, Blonde Voyage, Cell Fatigue, CFS Central, CFS Patient Advocate, CFS Remission, CFSGraphics, Chronic Fatigue Survivor's Blog, Chronically Hopeful, ChronicallyME, Constant F****** S***, Courtney Craig, Disabled in Tory Britain, Get Well From ME, Health Rising, Holistic Myalgic Encephalomyelitis, Intelligent Medicine, Jamison Writes, JayTay, Just ME, Limited Capability, Living With Chronic Fatigue Syndrome, ME/CFS Ghost, MEadvocacy, My World, Nice guidelines blog, Occupy M.E., Onward Through the Fog, Paolo Maccallini, Phoenix Rising, Quixotic My ME Blog, Rag and Bone Shop of the Heart: E.M. and M.E., Shoutout About ME, Spoonie Radio, Spoonseekerdotcom, Stonebird, The Blue Ribbon Fellowship, The Blue Ribbon Foundation, The MEAction Network, The Self-Taught Author, The World of One Room, Thoughts About M.E., Trial By Error, Utting-Wolff Spouts, Valerie Eliot Smith Blog, Verywell FMS/CFS, Virology blog


Discussion forums: CFS Reddit, Health Rising, MDJunction, ME/CFS Forums, MEAction Reddit, Phoenix Rising, ProHealth, Science for ME


Podcasts: Intelligent Medicine, Spoonie Radio, The ME Show


Articles: List of news articles on ME and CFS, In the Expectation of Recovery

Open Letters[edit | edit source]