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Charles Shepherd
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{{NeedsImage}} '''Charles Bernard Shepherd''', MB, BS, is the Honorary Medical Adviser to the [[ME Association]], a patient charity in London, [[United Kingdom]] and the co-author with Dr [[Abhijit Chaudhuri]] of ''ME/CFS/PVFS: An Exploration of Key Clinical Issues'', also known as ''The Purple Book'', a health professional's guidebook published by the [[ME Association]].<ref name=":1">{{Cite web | url = https://www.meassociation.org.uk/shop/books/mecfspvfs-an-exploration-of-the-key-clinical-issues/ | title = The Purple Book β 2019 edition!|language=en-GB|access-date=2019-09-10}}</ref> He was on the Steering Committee of the [[National ME Observatory]], a collaborative research project in the UK.<ref>{{Cite news |url =https://meagenda.wordpress.com/2008/10/29/disclosure-by-afme-of-composition-of-national-me-observatory-steering-and-management-groups/ | title = Disclosure by AfME of composition of National ME Observatory Steering and Management Groups | date = 2008-10-29|work=ME agenda|access-date=2019-09-10|language=en-US}}</ref> His special interest in [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS) stems from having developed the illness in his twenties after a bout of chickenpox.<ref>{{Cite web | url = http://www.talkhealthpartnership.com/online_clinics/experts/dr_charles_shepherd.php | title = Dr Charles Shepherd | website = talkhealthpartnership.com|access-date=2019-09-10}}</ref><ref name=":0">{{Citation | title = ME: The Toxic Tiredness (Part 1) | url = https://www.youtube.com/watch?v=bB6B2BTL2zQ|language=en|access-date=2019-09-10}}</ref> Dr. Shepherd is interviewed in the 2012 BBC Alba ([[Scotland]], UK) documentary [[Toxic Tiredness]] about [[ME/CFS]].<ref name=":0" /> ==London criteria== Dr. Shepherd was one of the co-authors of the 1994<ref>{{Cite book | title = London criteria for M.E., Report from The National Task Force on Chronic Fatigue Syndrome (CFS), Post Viral Fatigue Syndrome (PVFS), Myalgic Encephalomyelitis (ME) | last = Dowsett | first = EG | last2 = Goudsmit | first2 = E | last3 = Macintyre | first3 = A | last4 = Shepherd | first4 = C| publisher = Westcare| year = 1994|isbn=|editor-link = |location= | pages = 96-98|chapter=|quote= | authorlink = Elizabeth Dowsett | author-link2 = Ellen Goudsmit | author-link3 = Annie MacIntyre | author-link4 = Charles Shepherd|editor-last2 = |editor-link2 = }}</ref> and, the updated 2014, [[London criteria]] case definition for [[myalgic encephalomyelitis]] research.<ref>{{Cite web | url = http://www.axfordsabode.org.uk/me/mecrit2014.htm | title = ME/CFS Medical Update (Layman's version) Winter 2001 | website = axfordsabode.org.uk|access-date=2019-09-10}}</ref> ==Shepherd ME/CFS Disability Scale== The [[Shepherd ME/CFS Disability Scale]], a symptom scale created by Dr. Charles Shepherd, was adapted from the Expanded Disability Status Scale (EDSS) used for patients with [[multiple sclerosis]] (MS).<ref name=":2">{{Cite book | title = Living with M.E.: The Chronic/post-viral Fatigue Syndrome | last = Shepherd | first = Charles| publisher = London: Vermilion| year = 1999|isbn=|editor-link = |location=| pages=|chapter=|quote=|editor-last2 = |editor-link2 = }}</ref> ==Books== *1999, ''[[Living with ME]]'', a guidebook for patients.<ref name=":2" /> *2016, [http://www.meassociation.org.uk/shop/books/mecfspvfs-an-exploration-of-the-key-clinical-issues/ ''ME/CFS/PVFS: An Exploration of Key Clinical Issues''], co-authored with Dr [[Abhijit Chaudhuri]], updated edition. Referred to as "MEA's Purple Booklet," the book was originally published in 2001 and periodically updated to be used as a resource for health professionals.<ref name=":1" /> ==Open Letter to ''The Lancet''== Two [[open letter to the Lancet | open letters to the editor of ''The Lancet'']] urged the editor to commission a fully independent review of the [[PACE trial|PACE]] trial, which the journal had published in 2011. In 2016, Dr. Shepherd, along with 41 colleagues in the [[ME/CFS]] field, signed the second letter. *Feb 10, 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to The Lancet, again - Virology blog] ==Response to [[Institute of Medicine report]]== *Feb 11, 2015, [http://www.meassociation.org.uk/2015/02/name-change-committee-report-comments-by-dr-charles-shepherd-medical-adviser-me-association-11-february-2015/ Written comments by Dr Charles Shepherd, Honorary Medical Adviser, ME Association] ==Media coverage about Dr Shepherd== *2003, [http://www.thirdsector.co.uk/bitter-row-engulfs-association/article/621203 Bitter Row engulfs ME Association] * 2003, [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1150994/ Head of ME association is sacked] with [https://www.bmj.com/content/327/7406/88.1 correction], [[The BMJ]] ==Talks, interviews and news articles == *2015, [http://www.telegraph.co.uk/news/health/12033810/Its-time-for-doctors-to-apologise-to-their-ME-patients.html Itβs time for doctors to apologise to their ME patients]<blockquote> Excerpt: " Opening the 2015 research collaborative section of neuropathology, [[Jose Montoya]], professor of medicine at the University of Stanford, said: βI have a wish and a dream that medical and scientific societies will apologise to their ME patients." I agree β the time has come for doctors and scientists to apologise for the very neglectful way in which ME has been researched and treated over the past 60 years. Doctors need to start listening to their patients and there must now be increased investment in biomedical research to gain a better understanding of the disease process and to develop treatments that these patients desperately need." (Telegraph, UK, 7 Dec 2015)<ref>{{Cite news |url =https://www.telegraph.co.uk/news/health/12033810/Its-time-for-doctors-to-apologise-to-their-ME-patients.html | title = Itβs time for doctors to apologise to their ME patients | last = Shepherd | first = Dr Charles | date = 2015-12-07|access-date=2019-09-10|language=en-GB|issn=0307-1235}}</ref></blockquote> *2016, [http://www.bbc.co.uk/programmes/p04175tl Dr. Shepherd and Patient Ginger @1:10] (BBC Radio London - Jo Good, UK, 8 Aug 2016) *May 14, 2018, Interviewed on [[The ME Show]] podcast by [[Gary Burgess]] about his own experience of ME and current medical research.<ref>{{Cite web | url = https://www.buzzsprout.com/172265/700790-episode-two | title = The ME Show with Gary Burgess - Charles Shepherd | last = | first = | authorlink = | date = May 14, 2018 | website = buzzsprout.com| archive-url = | archive-date = |url-status = | access-date=}}</ref> [https://www.buzzsprout.com/172265/700790-episode-two Episode link] *Jan 28, 2019, Interviewed on [[The ME Show]] podcast by [[Gary Burgess]] about the latest developments in ME research.<ref>{{Cite web | url = https://www.buzzsprout.com/172265/930209-episode-one-dr-charles-shepherd | title = The ME Show with Gary Burgess - Dr Charles Shepherd | last = | first = | authorlink = | date = January 28, 2019 | website = buzzsprout.com| archive-url = | archive-date = |url-status = | access-date=}}</ref> - [https://www.buzzsprout.com/172265/930209-episode-one-dr-charles-shepherd Episode link] ==Pace trial critiques== *9 Apr 2017 - [[PACE trial]] claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome β true or false? Itβs time for an independent review of the methodology and results<ref>{{Cite journal | last = Shepherd | first = Charles Bernard | authorlink = Charles Shepherd | date = Aug 2017 | title = PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome β true or false? Itβs time for an independent review of the methodology and results |url =http://journals.sagepub.com/doi/10.1177/1359105317703786 | journal = Journal of Health Psychology|language=en | volume = 22 | issue = 9 | pages = 1187β1191|doi=10.1177/1359105317703786|issn=1359-1053|pmc=|pmid=|access-date=|quote=|via=}}</ref> - [http://journals.sagepub.com/doi/full/10.1177/1359105317703786 (Full Text)] ==Short web seminars by Science to patients / wetenschap voor patienten, English spoken, nederlands ondertiteld== *2014, [https://youtu.be/2M8DFFF8-u8 35. Introduction experience with ME / introductie ervaring met ME - Dr. Charles Shepherd] *2014, [https://youtu.be/EIYwZlFzKCg 36. What is the difference between ME and CFS/ME? / Wat is het verschil tussen ME en CVS/ME? - Dr. Charles Shepherd] *2014, [https://youtu.be/G-KYR-z-mKI 37. How is ME diagnosed? / Hoe wordt ME gediagnosticeed? - Dr. Charles Shepherd] *2014, [https://youtu.be/vN66ZbKxKyQ 38. ME and it's triggers / uUitlokkende factoren en ME - Dr. Charles Shephard] *2014, [https://youtu.be/vN66ZbKxKyQ 39. ME, exercise and the mitochondria / ME, inspanning en de mitochondrien - Dr. Charles Shepherd] *2014, [https://youtu.be/DmyR33LeUPs 40. ME and possible treatments / ME en mogelijke behandelingen - Dr. Charles Shepherd] *2014, [https://youtu.be/WSgUpOTbnXc 41. Promising discoveries and research / veelbelovende behandelingen en onderzoe - Dr. Charles Shepherd] *2014, [https://youtu.be/fqQIexuxYiY 42. State of affairs regarding ME/ Stand van zaken betreffende ME - Dr. Charles Shepherd] ==Online presence == *[https://www.facebook.com/meassociation/ Facebook - ME Association] *[https://www.facebook.com/charles.shepherd.50/ Facebook] * Twitter *[https://meassociation.org.uk/tag/dr-charles-shepherd/ Dr Charles Shepherd on the ME Association website] *[https://www.researchgate.net/scientific-contributions/2040535860-Charles-Shepherd Researchgate.net] ==See also== *[[London criteria]] *[[ME Association]] *[[Shepherd ME/CFS Disability Scale]] *[[UK CFS/ME Collaborative]] ==Learn more== *[https://www.youtube.com/watch?v=bB6B2BTL2zQ Documentary Toxic Tiredness, Part 1] *[https://www.youtube.com/watch?v=li7zQgN-PxQ Documentary Toxic Tiredness, Part 2] ==References== {{reflist}} [[Category:Clinicians]] [[Category:British clinicians]] [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:Authors]] [[Category:Psychological paradigm critics]] [[Category:PACE trial critics]] [[Category:Advocates or allies]]
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