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==CDC History with ME/CFS== The CDC has been involved with [[ME/CFS]] research and information since the 1980's. At this point, the disease has been studied as epidemic clusters under a wide number of names, solidifying around Epstein-Barr virus infection.<ref>{{Cite journal | last = Jones | first = J | last2 = Ray | first2 = C | last3 = Minnich | first3 = L | date = 1985 | title = Evidence for active Epstein-Barr virus infection in patients with persistent, unexplained illnesses: elevated anti-early antigen antibodies |url = http://annals.org/aim/article-abstract/699346/evidence-active-epstein-barr-virus-infection-patients-persistent-unexplained-illnesses?doi=10.7326%2f0003-4819-102-1- | journal = Ann Intern Med | volume = 102 | pages = 1-7|doi=10.7326/0003-4819-102-1|via=}}</ref><ref>{{Cite journal | last = Straus | first = Stephen | last2 = Tosato | first2 = Giovanna | last3 = Armstrong | first3 = Gary | date = Jan 1, 1985 | title = Persisting Illness and Fatigue in Adults with Evidence of Epstein-Barr Virus Infection | url = http://annals.org/aim/article-abstract/699347/persisting-illness-fatigue-adults-evidence-epstein-barr-virus-infection?doi=10.7326%2f0003-4819-102-1-7 | journal = Ann Intern Med | volume = | pages = 7-16|via=}}</ref> However the organization recognized [[chronic fatigue syndrome]] (CFS) as a serious illness and began raising medical and public awareness of it in 2006.<ref>{{Cite news |url = https://www.cdc.gov/me-cfs/ | title = Address at CFS awareness campaign launch | last = Gerberding | first = | date = June 7, 2008|work=CDC website|access-date=| archive-url = | archive-date = |url-status = | publisher=Department of Health and Human Services. Centers for Disease Control and Prevention}}</ref> Its role has involved developing definitions, providing information to doctors, patients, and health care teams, and funding and performing research. knkhl The 1988 case defintion of [[Holmes criteria]] was developed to diagnose CFS. It was never widely adopted. The 1994 case defintion of [[Fukuda criteria]] was developed to diagnosed CFS. It is used worldwide in research. The 2005 case definition [[Reeves criteria]] was developed to diagnose CFS. It was never widely adopted. ===Website updates=== *Jul 3, 2017, the CDC's Chronic Fatigue Syndrome page has been changed to [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] (ME/CFS); [[graded exercise therapy]] (GET) and [[cognitive behavioral therapy]] (CBT) recommendations have been removed.<ref>{{Cite web | url = http://www.virology.ws/2017/07/10/trial-by-error-the-cdc-drops-cbtget/ | title = Trial By Error: The CDC Drops CBT/GET | last = Tuller | first = David | date = Jul 10, 2017 | website = [[Virology blog]]|language=en-US| archive-url = | archive-date = |url-status = | access-date=2018-09-07}}</ref><ref>{{Cite web | url = https://www.cdc.gov/me-cfs/index.html | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2018-07-03 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-09-07}}</ref> *Jul 12, 2018, the "Information for Healthcare Providers" tab and its sub-tabs were updated.<ref>{{Cite web | url = https://www.cdc.gov/media/releases/2018/a0712-new-website-me-cfs.html | title = New ME/CFS Web Content for Healthcare Providers {{!}} CDC Online Newsroom {{!}} CDC | date = 2018-07-12 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-09-07}}</ref><ref>{{Cite web | url = https://www.cdc.gov/media/releases/2018/a0712-new-website-me-cfs.html | title = New ME/CFS Web Content for Healthcare Providers {{!}} CDC Online Newsroom {{!}} CDC | date = 2018-07-12 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-09-07}}</ref> *Feb 25, 2019, Dr. [[Elizabeth Unger]], Chief of CDC's Chronic Viral Disease Branch (CVDB), that houses the ME/CFS program, in collaboration between ''Medscape'' and the CDC put out brief video and commentary page with links to the CDC's July 12th, 2018 updates for medical professionals: ''[https://www.medscape.com/viewarticle/908622?src=rss Chronic Fatigue Syndrome: It's Real, and We Can Do Better].''<ref>{{Cite web | title = Chronic Fatigue Syndrome: It's Real, and We Can Do Better |url = https://login.medscape.com/login/sso/getlogin?urlCache=aHR0cHM6Ly93d3cubWVkc2NhcGUuY29tL3ZpZXdhcnRpY2xlLzkwODYyMj9zcmM9cnNz&ac=401 | website = medscape.com|access-date=2019-02-25 | date = Feb 25, 2019 | last = | first = | authorlink = Elizabeth Unger| archive-url = | archive-date = |url-status = | publisher=Medscape and CDC}}</ref> ====Advocacy reaction to the CDC update for healthcare providers==== *Jul 29, 2018, [https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/ CDC Revises its Information on ME]<ref>{{Cite news |url = https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/ | title = CDC Revises Its Information on ME - #MEAction | last = Seltzer | first = Jaime | date = 2018-07-29|work=#MEAction|access-date=2018-09-07| archive-url = | archive-date = |url-status = | language=en-US}}</ref> #[[MEAction]] report on the CDC July 2017 and July 2018 website updates. Recommendations for the CDC's ME/CFS page have been created from patient feedback of the healthcare provider update as well as asking for further patient input. *Jul 30, 2018, Dr [[David Tuller]] wrote an article on the revision of the CDC and stated it was mixed with some good points but some concerns.<ref>{{Cite web | url = http://www.virology.ws/2018/07/30/trial-by-error-the-cdcs-update-for-healthcare-providers/ | title = Trial By Error: The CDCβs Update for Healthcare Providers | last = Tuller | first = David | date = Jul 30, 2018 | website = [[Virology blog]]|language=en-US| archive-url = | archive-date = |url-status = | access-date=2018-09-07}}</ref> *Oct 11, 2018, #MEAction sent recommendations to the CDC to update its ME/CFS website.<ref>{{Cite news |url = https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/ | title = #MEAction Sends Recommendations to CDC to Update its ME Website - #MEAction | last = S| first = Jaime | date = 2018-10-11|work=#MEAction|access-date=2018-10-12| archive-url = | archive-date = |url-status = | language=en-US}}</ref> The #MEAction recommendations include community recommendations in red.<ref>{{Cite web | url = http://www.meaction.net/wp-content/uploads/2018/10/Recommended-Changes-to-the-CDC-Webpages-on-ME-2.pdf | title=Recommended Changes to the CDC Webpages on ME | last = | first = | date = Sep 2018 | website = meaction.net| archive-url = | archive-date = |url-status = | access-date=}}</ref>
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