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CFS/ME Research Collaborative Conference
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The UK '''CFS/ME Research Collaborative Conference''' (aka CMRC Conference) is a annual conference sponsored by the [[UK CFS/ME Research Collaborative]]. ==1st Annual Conference - 2014== *[https://www.actionforme.org.uk/uploads/pdfs/cmrc-2014-conference-report-final.pdf CFS/ME Research Collaborative Inaugural Conference Report 2014] 64-page overview of all the presentations and workshops ===2014 Speakers=== *Prof [[Stephen Holgate]] - Welcome and ''Taking collaboration forward: next steps'' *Prof [[Robert Dantzer]] - Anne Faulkner Lecture: ''The neuroimmune basis of fatigue'' *Dr [[Neil Harrison]] - ''[[Interferon]]-alpha rapidly changes brain microstructure '' *[[Alice Russell]] - ''[[Interferon]]-alpha induced persistent fatigue'' *Dr [[Lisa Blundell]] - ''Blood [[cytokine]] concentrations in CFS: a systematic review '' *[[Kate Earl]] - ''Resveratrol treatment on TNF-α-induced [[cytokine]] release '' *Dr [[Stuart Watson]] - ''Understanding the pathogenesis of autonomic dysfunction in CFS and its relationship with [[cognitive impairment]]'' *Prof [[Wan-Fai Ng]] - ''Biological fingerprints of fatigue'' *Prof [[Carmine Pariante]] - ''[[Inflammation]] and fatigue: is it different from depression?'' *Dr [[Sue Wilson]] - ''Sleep and CFS/ME'' *Prof [[Anne McArdle]] - ''[[Mitochondria | Mitochondrial function]] and [[cytokine]] production in skeletal muscle of patients with CFS/ME'' *Dr [[Esther Crawley]] - ''The epidemiology of CFS/ME in adolescence'' *Prof [[Peter White]] - ''[[PACE trial |PACE]]: A trial & tribulations'' *Prof [[Andrew Lloyd]] - ''Acute infection & post-infective fatigue as a model for CFS'' *Prof [[Ian Lipkin]] - ''Microbiology & immunology of CFS/ME and other challenging disorders'' *Prof [[Maria Fitzgerald]] - ''Understanding pain mechanism in children and adolescents'' *Prof [[Jon Tobias]] - ''The epidemiology of adolescent CFS and chronic widespread pain'' *Dr [[Roberto Nuevo]] - ''Recovery and persistence from CFS/ME in adolescents'' *Prof [[Hugh Perry]] - ''End of conference summary'' == 2nd Annual Conference - 2015 == The 2015 UK CFS/ME Research Collaborative was held 13-14 Oct 2015. [https://www.actionforme.org.uk/uploads/pdfs/cmrc-conference-report-final-october-2015.pdf Link to the full 44 page conference report.] *[https://www.youtube.com/watch?v=69Jz43kSQX0 UK CFS/M.E. Research Collaborative Science Conference Day 1, Part 1/3] *[https://www.youtube.com/watch?v=PKqkjFLNjn8 UK CFS/M.E. Research Collaborative Science Conference Day 1, Part 2/3] *[https://www.youtube.com/watch?v=s5pH6ohx9lQ UK CFS/M.E. Research Collaborative science conference Day 1 Part 3/3] *[https://www.youtube.com/watch?v=6sTXIgV0tTM UK CFS/M.E. Research Collaborative science conference Day 2 Part 1] *[https://www.youtube.com/watch?v=deJHEulE6v8 UK CFS/M.E. Research Collaborative science conference Day 2 Part 2] *[https://www.youtube.com/watch?v=kYucfBYUejE UK CFS/M.E. Research Collaborative science conference Day 2 Part 3] ==3rd Annual Conference - 2016== The 2016 conference was held at the Novotel Hotel, Newcastle upon Tyne, England on Wednesday 28 and Thursday 29 September 2016. ===2016 Speakers=== *Professor [[Stephen Holgate]] - Welcome and Closing *Professor [[David Ford]], Swansea University - [https://www.youtube.com/watch?v=a04Z2frZft0&t=4671s ''SAIL Database: routinely collected data for research''] *Dr [[Zaher Nahle]], representing [[Solve ME/CFS Initiative]] - ''All In at the Solve ME/CFS Initiative'' *Dr [[Nadia Howard-Tripp]], NIHR Academic Clinical Fellow in Rheumatology, on behalf of Prof Fai Ng - ''Identifying the biological fingerprints of fatigue'' *Professor [[Julia Newton]], Director of Newcastle Academic Health Partners and Clinical Professor of Ageing and Medicine, Newcastle University - ''Understanding the pathogenesis of autonomic dysfunction in CFS and its relationship with cognitive impairment'' and ''Cardiac iodine-123-meta-iodo-benzylguanidine uptake in CFS associates with autonomic function and fatigue severity'' and ''Reduced cardiac volumes in CFS associated with plasma volume but not length of disease'' *[[Alice Russell]], King’s College London, on behalf of Prof Carmine Pariante - ''Persistent fatigue induced by [[Interferon]]-alpha: a new immunological model for CFS'' *[[Sonya Chowdhury]], Chief Executive, [[Action for ME | Action for M.E.]] - [https://www.youtube.com/watch?v=zUlHorvIY8Y&t=1s Plenary session: ''Mapping global research funding over the last 10 years: a UK CFS/ME Research'' Collaborative-sponsored report] *Dr [[Lindsay Keir]], Senior Portfolio Developer, Wellcome - [https://www.youtube.com/watch?v=zUlHorvIY8Y&t=1s ''Enhancing research funding applications into CFS/ME''] *Dr [[Julius Bourke]], Queen Mary’s University, London - ''The Brain in Pain studies: central sensitisation in CFS/ME and fibromyalgia'' *[[Andreas Finkelmeyer]], University of Newcastle - [https://www.youtube.com/watch?v=CoMUF3FUZUc&t=5s ''Voxel-based morphometry shows reductions in brainstem white matter in CFS/ME''] *Dr [[Andrea Polli]], University of Brussels - [https://www.youtube.com/watch?v=CoMUF3FUZUc&t=1125s ''Immune-pain interaction following exercise in CFS/ME: associations between exercise-induced hyperalgesia, complement system and elastase activation''] *[[Victoria Strassheim]], Newcastle University - [https://www.youtube.com/watch?v=w9gLhNO3LIw&t=1791s ''Involving severe and very severely affected CFS/ME individuals in research: a clinician’s view point''] *Dr [[David Patrick]], University of British Columbia - [https://www.youtube.com/watch?v=SbF-Pl_qp8Y&t=1111s part one] [https://www.youtube.com/watch?v=1RZger48Z_Y part two] ''Researching a Syndrome: Findings from the UBC Complex Chronic Disease Study Group'' *Professor [[George Davey Smith]], University of Bristol - [https://www.youtube.com/watch?v=a04Z2frZft0&t=4671s ''States, traits and diagnosed conditions: implications for the design of population-based studies of human health and disease''] *Professor [[Caroline Relton]], University of Bristol - [https://www.youtube.com/watch?v=a04Z2frZft0&t=4671s ''Epigenetics - what is it and what can it do for ME/CFS?''] *Professor [[Paul Little]], Professor Tom Walley and M.E. patient Opal Webster-Philip - [https://www.youtube.com/watch?v=v2R1ao5cFPo Panel Discussion - ''Exploring the challenges of gaining ME/CFS funding for the range of science required''] *Dr [[Nadia Howard-Tripp]], NIHR Academic Clinical Fellow in Rheumatology - [https://www.youtube.com/watch?v=zkUSaO5d3fY&t=3s ''Fatigue in Primary Sjögrens Syndrome is associated with lower levels of pro-inflammatory cytokines''] *Prof [[Anne McArdle]], University of Liverpool - ''Metabolism of aberrant mitochrondrial factors and cytokine production in skeletal muscle of patients with CFS'' *Dr [[Sue Wilson]], Imperial College London - ''Some preliminary results from the SAFFE study'' *Dr [[Neha Issar-Brown]], Medical Research Council - [https://www.youtube.com/watch?v=zUlHorvIY8Y&t=1s ''Enhancing research funding applications into ME/CFS''] *Dr [[Esther Crawley]], Bristol University - [https://www.youtube.com/watch?v=w9gLhNO3LIw&t=1791s ''Investigating the treatment of Paediatric CFS/ME''] *[[Jessica Van Oosterwijck]], University of Antwerp - [https://www.youtube.com/watch?v=KwCKPnavtSY&t=2s ''The role of autonomic function in exercise-induced endogenous analgesia: a case-control study in ME/CFS and healthy people''] *Professor [[David Jones]], Newcastle University - [https://www.youtube.com/watch?v=zkUSaO5d3fY&t=3s Anne Faulkner Memorial Lecture - ''Fatigue in PBC: Nearing Journeys End on a Long and Winding Road: Lessons for CFS/ME''] *Dr [[Sarah Knight]], Murdoch Children’s Research Institute - "Improving [[quality of care]] in paediatric [[chronic fatigue syndrome]]" *Dr [[Juliet Chenery-Robson]], University of Sunderland - ''The visualisation of CFS/ME’s invisibilities'' *[[Joanna Elson]], Mitochondrial Research Group, Institute of Genetic Medicine, Newcastle University - ''Investigating the possibility of a role for mtDNA variation in CFE/ME'' ===2016 Conference Reports & Video=== The 2016 UK CFS/ME Research Collaborative was held 28-29 September 2016. :[http://solvecfs.org/wp-content/uploads/2017/03/CMRC-conference-report-2016.pdf?utm_content=buffer1e28d REPORT by: STEPHEN HOLGATE - 16 pages] :[https://www.actionforme.org.uk/uploads/pdfs/cmrc-conference-2016-selected-presentations.pdf ABBREVIATED CONFERENCE REPORT - 33 pages] :[https://www.actionforme.org.uk/uploads/pdfs/CMRC-conference-report-2016.pdf FULL CONFERENCE REPORT - 92 pages] *[https://www.youtube.com/watch?v=SbF-Pl_qp8Y UK CMRC Conference 2016 part 1/10] *[https://www.youtube.com/watch?v=1RZger48Z_Y UK CMRC Conference 2016 part 2/10] *[https://www.youtube.com/watch?v=a04Z2frZft0 UK CMRC Conference 2016 part 3/10] *[https://www.youtube.com/watch?v=v2R1ao5cFPo UK CMRC Conference 2016 part 4/10] *[https://www.youtube.com/watch?v=_RWMkDpm8Iw UK CMRC Conference 2016 part 5/10] *[https://www.youtube.com/watch?v=zUlHorvIY8Y UK CMRC Conference 2016 part 6/10] *[https://www.youtube.com/watch?v=CoMUF3FUZUc UK CMRC Conference 2016 part 7/10] *[https://www.youtube.com/watch?v=w9gLhNO3LIw UK CMRC Conference 2016 part 8/10] *[https://www.youtube.com/watch?v=KwCKPnavtSY UK CMRC Conference 2016 part 9/10] *[https://www.youtube.com/watch?v=zkUSaO5d3fY UK CMRC Conference 2016 part 10/10] == Fourth Annual Conference - 2017 == The 2017 conference was held at Future Inns Cabot Circus, Bond St South, Bristol, England on Wednesday 13 and Thursday 14 September 2017. ===2017 Speakers - Day 1=== *Professor [[Stephen Holgate]] - [https://www.youtube.com/watch?v=pgEHPuwiFEw Welcome] *Dr [[Avindra Nath]], [[National Institutes of Health]], USA - [https://www.youtube.com/watch?v=Biv-MkYaBt4 ''Post-infectious CFS/ME study at National Institutes of Health''] *Dr Matt Wall, Imanova, London, UK - [https://www.youtube.com/watch?v=_OjG8Tpiaxs ''Imaging in research''] *Prof Alan Silman, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, UK - [http://www.youtube.com/watch?v=iesjbLq3krY ''Overview of fatigue in arthritis:insights for CFS/ME''] *[[Gina Wall]], Royal Free Hospital Fatigue Service, London, UK - [http://www.youtube.com/watch?v=LmF8xe8LtwA ''Examining Joint Hypermobility Syndrome in a London fatigue clinic''] *Dr [[Peter Rowe]], John Hopkins Children’s Centre for CFS, Baltimore, US - [http://www.youtube.com/watch?v=2bgj5fZOruA ''Orthostatic Intolerance and the lessons from the last two decades''] *Prof Dr [[Frans Visser]], Cardiac Care Foundation, Hoofddorp, Netherlands- [https://www.youtube.com/watch?v=IWRA23D_MUg ''Orthostatic Intolerance''] *Dr [[Linda van Campen]], Stichting Cardiozorg, Amsterdam, Netherlands - [https://www.youtube.com/watch?v=OjYKZZvlJJc '' Cerebral blood flow decline: deconditioning or disease?''] *[[James McCullagh]], University of Oxford, UK - [http://www.youtube.com/watch?v=eunPYIG_ywQ ''Investigating altered metabolism in ME/CFS''] *Prof [[John Gallacher]], University of Oxford, UK - [http://www.youtube.com/watch?v=NTFvJV7FGBE ''Brain health in an age of platform science''] ===2017 Speakers - Day 2=== *Dr [[Julia Newton]], University of Newcastle, UK - [https://www.youtube.com/watch?v=QDzbfiOeoJY ''Collaboration''] *Dr [[Karl Morten]], University of Oxford, UK - [https://www.youtube.com/watch?v=QDzbfiOeoJY ''Investigating mitochondrial function in health and disease''] (Dr Morten's talk starts at 15:00 minute mark) *Dr [[Neil Harrison]], Brighton and Sussex Medical School, UK - [https://www.youtube.com/watch?v=klfw7aEcSfY Using insights from psychoneuroimmunology to better understand ME/CFS Fatigue] *Prof [[Carmine Pariante]], Kings College London, UK - [https://www.youtube.com/watch?v=1hOri9GMsVc ''Persistent Fatigue Induced by Interferon-alpha: A new Immunological Model for Chronic Fatigue Syndrome'', part 1] [https://www.youtube.com/watch?v=oZuBu5sd7ug, part2] *Phil Murray, Patient Advisory Group member - [https://www.youtube.com/watch?v=7xwMXSs75dM Patient Advisory Group: A valuable resource for ME research] ===2017 Conference Reports & Video=== *[https://www.actionforme.org.uk/uploads/2017-CMRC-conference-report-080118.pdf Report of the Fourth Annual Science Conference] == Fifth Annual Conference - 2018 == The 2018 conference was held on 19 and 20 September 2018 in Bristol, UK. === 2018 Speakers - Day 1- 20 September 2018 === * Professor [[Stephen Holgate]] - [https://www.youtube.com/watch?v=AK5UONg0diM&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7 Welcome] * Dr [[Nina Muirhead]], Buckinghamshire Healthcare NHS Trust - ''[https://www.youtube.com/watch?v=19ehJpZ4g9M&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=2 The views of a Doctor with ME on educating Doctors and medical students about ME]'' * Prof Alain Moreau, University of Montreal, Canada - ''[https://www.youtube.com/watch?v=eKbVBcxwt88 Identification of post-exertional dysregulated circulating microRNAs in ME/CFS pathogenesis]'' * Dr [[Eliana Lacerda]], London School of Hygiene & Tropical Medicine - ''[https://www.youtube.com/watch?v=0aTQD-eMfQo&index=6&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7 European collaboration in ME/CFS: The EUROMENE network]'' * Dr [[Mark Jones]], UCB Pharma - ''[https://www.youtube.com/watch?v=VZ421O605j0&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=4 What will it take for the pharmaceutical industry to engage in CFS/ME drug discovery?]'' * [[Rachel Hunter]], University College London - ''[https://www.youtube.com/watch?v=QN1eUCPmFZw&index=7&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7 The economic impact of CFS/ME]'' * [[Rachel French]], County Durham & Darlington NHS Foundation Trust - ''[https://www.youtube.com/watch?v=i9c6fnCXE88&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=8 CFS/ME, IBS and Fibromyalgia: Chance association or common pathway]'' * Prof [[Frances Williams]], Kings College London - ''[https://www.youtube.com/watch?v=407fxoyD-VQ&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=9 Twins and the study of chronic pain genetics]'' * Dr [[Luis Nacul]], London School of Hygiene & Tropical Medicine, [[CureME]] ''- [https://www.youtube.com/watch?v=5FonUVDyc0I&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=5 The UK ME/CFS Biobank: Accelerating global research in ME/CFS]'' * Jo Elson, Newcastle University - Oral Abstract Presentation: ''Investigating the possibility of a role of mtDNA variation in ME/CFS'' * Tiffany Lodge, University of Oxford - Oral Abstract Presentation: ''Alterations of cellular metabolism observed in muscle cells, indicating possible factors present in plasma of patients with ME/CFS capable of modifying cell function'' * Pawel Zalewski, Nicolaus Copernicus University, Poland - ''Effects of whole-body cryotherapy among CFS patients – preliminary results'' * Dr [[Neil Harrison]] - ''[https://www.youtube.com/watch?v=sfEYNNrvY5w&index=12&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7 MRC-funded update: Imaging exercise-induced Post-Exertional Malaise in ME/CFS]'' * Dr [[David Tuller]] - Panel [https://www.youtube.com/watch?v=cFXIxeg7Fg4&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=10 Q&A session] === 2018 Speakers - Day 2 - 20 September 2018 === * Prof [[Chris Ponting]], CMRC Deputy Chair; University of Edinburgh - Welcome * Prof [[Cathie Sudlow]], [[CureME|UK Biobank]], University of Edinburgh - Anne Faulkner Memorial Lecture: ''[https://www.youtube.com/watch?v=7NuXznSU1ks&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=13 Big health data and open science: a powerful combination to generate new understanding of disease]'' * Dr [[Elisa Oltra]], Universidad Católitica de Valencia - ''[https://www.youtube.com/watch?v=henDTEtf8Vw&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=14 Differential microRNA profiles in PBMCs and plasma EVs of severely affected ME/CFS patients]'' * Prof [[Carmine Pariante]], Kings College London - ''[https://www.youtube.com/watch?v=RBUBumL6wuo&index=15&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7 MRC Funded Update: Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of Chronic Fatigue Syndrome]'' * Dr Sue Pemberton, Yorkshire Fatigue Clinic - Workshop 1: ''Activity as treatment – myths and methods'' * Prof [[Chris Ponting]], University of Edinburgh - Workshop 2: Biomedical research priorities * Sue Luscombe, Hampden Health Limited and Dr Michelle Dobrota-Gibbs, Freelance dietician and nutritionist - Workshop 3: ''Nutrition and CFS/ME – The search and research for evidence'' * [[Stephen Simpson]] - ''[https://www.youtube.com/watch?v=CU4IvwZCEXo&list=PLJV2oZMsotONY3AEkA-c3kVFjtVokLBD7&index=11 Working together against the pain, isolation and fatigue of arthritis]'' * [[Jacqueline Cliff|Jackie Cliff]], [[London School of Hygiene and Tropical Medicine]] - ''Cellular immune function in ME/CFS'' * Prof [[Carmine Pariante]], [[Kings College London]] - ''[https://www.youtube.com/watch?v=Hc1k8GngGJA Is inflammation the link between the body and the brain?]'' * [[Cara Tomas]], Newcastle University - ''[https://www.youtube.com/watch?v=cqw0q38eDss Cellular bioenergetics in ME/CFS]'' * Prof [[Chris Ponting]], CMRC Deputy Chair; University of Edinburgh - Conference reflections ===2018 Conference Reports=== *[https://www.actionforme.org.uk/uploads/images/2018/12/CMRC-Conference-2018_2.pdf Report of the Fifth Annual Science Conference] == Sixth Annual Conference - 2020 == The sixth annual conference is scheduled to be held March 10 and 11, 2020 ==References== {{Reflist}} [[Category:Conferences or symposiums]]
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