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Anne Örtegren
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{{NeedsImage}} '''Anne Örtegren''' (d. 2018) developed [[Myalgic encephalomyelitis|ME]] in 2001, after a major respiratory [[infection]] from which she never recovered. Anne was a Swedish patient and advocate for [[ME/CFS]], and spent 16 years with [[severe and very severe ME]] before dying by assisted suicide in 2018.<ref name="lobel">http://lobel.nu/anne.html"</ref><ref name="Anne-HR1">{{Cite web | date = Jan 10, 2018|website =[[Health Rising]] | url = https://www.healthrising.org/authors/anne-ortegen/ | title = Farewell: A Last Post from Anne Örtegren}}</ref><ref name="Anne-farewell">{{Cite web |website =[[Invest in ME Research]] | url = https://www.investinme.org/Documents/Anne/Farewell-A%20Last%20Post%20from%20Anne%20%C3%96rtegren.pdf | title=Farewell: A Last Post from Anne | date = 2018}}</ref> ==Advocacy == Anne advocated for improved medical care, especially for those with [[severe and very severe ME]], and criticized what she called the "erroneous [[Biopsychosocial model|psychosocial model]]", stating that it had caused [[Medical neglect and abuse|harm]] to her and others.<ref name="Anne-HR1" /> Anne wanted greater funding for [[biomedical research]] in order to raise the standard of treatment and medical care for ME to a similar level to that of others illnesses.<ref name="Anne-HR1" /> ==Myalgic Encephalomyelitis == Anne suffered from [[myalgic encephalomyelitis]] for 16 years, with the disease becoming increasingly severe, and developing increasing medical complications. She wanted people to know that she did not develop [[depression]] and that mental illness was not a factor in her decision. She went through many medical assessments, which took years, before being approved for assisted suicide.<ref name="Anne-HR1" /> ==Writing == *2013, [https://www.healthrising.org/authors/anne-ortegen/ Articles by Anne Örtegren] - Health Rising ==News articles== ==Memorial lecture == The Anne Örtegren Memorial Lecture is an annual lecture held at the [[Invest in ME Research]] conference in memory of Anne.<ref name="lecture">{{Cite web | url = http://www.investinme.org/AnneOrtegren2019.shtml | title = Anne Örtegren - A Year On | last = | first = | author-link = | date = 2019 | website = [[Invest in ME Research]]| archive-url = | archive-date = |url-status = | access-date=2021-11-18}}</ref> ==PhD student fund== In 2020, [[Invest in ME Research]] announced a funded PhD in memory of Anne, who had been a generous fundraiser for [[Let's Do It for ME]].<ref name="PhD">https://ldifme.org/category/updates/medical-phd-students/</ref> ==Learn more == *[https://www.youtube.com/watch?v=J6Zlz0Tvh_o In Loving Memory of Our Dear Friend Anne Örtegren] - YouTube *[https://www.facebook.com/pg/InMemoryOfAnneOrtegren/ In Loving Memory of Anne Örtegren] - Facebook page *[https://mecfsnyheter.se/ Website] ME/CFS Nyheter (ME/CFS news - in Swedish) ==See also == *[[ME activists and advocates]] *[[Causes of death]] *[[Sweden]] *[[Invest in ME Research]] *[[Suicide]] ==References == {{Reflist}} [[Category:Deceased people with ME, CFS, and/or FMS]] [[Category:People with ME, CFS, and/or FMS]] [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:Swedish advocates or allies]] [[Category:People]] [[Category:Famous people with ME, CFS, and/or FMS]] [[Category:Swedish famous people with ME, CFS, and/or FMS]]
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