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Alexandra Heumber
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'''Alexandra Heumber''' is a patient advocate based in Geneva, [[Switzerland]] and a former Executive Director of the [[International Alliance for M.E.|International Alliance for M.E (IAFME)]]. Heumber has long standing experience in public health issues including access to treatment, human rights, research and development, and pharmaceutical policy. She previously worked for Médecins Sans Frontières (known in English as Doctors Without Borders) and is a former Head of Policy for the Drugs for Neglected Diseases initiative.<ref>{{Cite web | url = https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/ | title = International M.E. advocacy: our latest project | last = Action for ME| first = | website = Action for ME | access-date = 2018-12-06}}</ref> Heumber played a leading role in advocacy for the adoption of a resolution on the neglected inflammatory disease Mycetomaby the World Health Assembly (WHA).<ref name=":0">{{Cite web | url = https://www.actionforme.org.uk/uploads/images/2018/05/detailed-briefing-international-advocacy-040518.pdf | website=actionforme.org.uk | access-date = 2018-12-06 | title = Action for M.E. briefing, May 2018 | date = | last = | first = | author-link = |archive-url=|archive-date=|url-status=}}</ref> As Executive Director of [[International Alliance for M.E.|IAFME]], Heumber hoped to raise awareness of ME at the highest political level, stating that "It is an ethical and public health scandal that M.E. has not been addressed more seriously at the highest level, and patients' voices are not being heard."<ref name=":0" /> On October 4th, 2019 Heumber announced on Facebook that she no longer worked for IAFME.<ref>{{Cite web | url = https://www.facebook.com/IAforME/ | title = IAFME - International Alliance for ME | website = facebook.com|language=en | access-date = 2019-10-04}}</ref><ref>{{Cite web | url = https://www.s4me.info/threads/international-alliance-for-me-alexandra-heumber-quits-oct-2019.11588/ | title = International Alliance for ME - Alexandra Heumber quits Oct 2019 | website = Science for ME|language=en-US | access-date = 2019-10-04}}</ref> == Online presence == * [https://twitter.com/alexheumber?lang=en Twitter] * [https://www.linkedin.com/in/alexandra-heumber-perry-9a74a046/?trk=pub-pbmap&originalSubdomain=ch Linkedin] == References == {{Reflist}} [[Category:Advocates or allies]]
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