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==Involvement in [[PACE trial]] controversy == AfME were involved from the beginning by supporting the [[PACE trial]] and its researchers from 2003. Archives are available of their involvement as their website pages of this involvement | last4have been deleted.<ref>{{Cite web | url = http://web.archive.org/web/20030804230351/http://www.afme.org.uk/news/pace-q&a.shtml | title = Action for M.E. News - PACE Research Study Q&A | date = 2003-08-04 | website = web.archive.org | access-date = 2019-08-31}}</ref> The PACE trial would not have been funded or conducted without patient support, which AFME provided.{{Citation needed}} *"Despite the anger in the patient community, the investigators were able to enlist Action for ME, another major advocacy group, to help design the pacing intervention. They called their operationalization of the strategy β[[adaptive pacing therapy]],β or APT."<ref name="Tuller20151021">{{Cite web | url = http://www.virology.ws/2015/10/21/trial-by-error-i/ | title = TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study | last = Tuller | first = David | author-link = David Tuller | date = 2015-10-21 | website = [[Virology blog]]|archive-url=|archive-date= | access-date = 2019-08-31}}</ref> *The [[Oxford criteria]] was used for PACE trial participation. The [[PACE trial]] was designed with input from the charity, Action for ME.<ref>[http://www.wolfson.qmul.ac.uk/current-projects/pace-trial#patients Pace Trial - Centre for Psychiatry - QMUL]</ref><ref>{{Cite web | url = https://www.meassociation.org.uk/2011/02/pace-study-trial-%e2%80%93-medical-research-council-uk-news-report-18-february-2011/ | title = PACE study results β Medical Research Council (UK) news report, 18 February 2011|language=en-GB | access-date = 2019-08-31}}</ref> *"From the outset, Action for M.E. and a number of patients were involved in the design of the trial."<ref>{{Cite web | url = http://www.ayme.org.uk/news/-/asset_publisher/2uYbtahTJKdk/content/april-2011-analysis-of-pace-trial-results | website = ayme.org.uk | access-date = 2019-08-31 | title = Analysis of PACE Trial Results | date = | last = | first = | author-link = |archive-url=|archive-date=}}</ref> *"The major innovations in this application include close collaboration with Action for ME."<ref>[http://www.meactionuk.org.uk/Comment-on-Sir-Peter-Spencer-re-PACE.htm Comment on the statement by Sir Peter Spencer of Action for ME Margaret Williams - 19th April 2011]</ref> Action for ME provided the requisite 'patient support' regularly cited by the PACE trial authors and collaborators since its inception in 2005 and had refused tosupport many patients exposing the flaws in the trial for years or criticise the flaws in the trial. It had ignored these flaws for years despite ME sufferers pointing these out and working for years to expose the trial. AfME'spublic positions on the trial began shifting after patients and other scientists had finally discredited the trial.{{Citation needed}} Dr [[David Tuller]] publicly suggested in a forum on June 18, 2018, that he would also write about AfME when he has time and is able to and stated AfME have made no apology for enabling and abetting PACE and that AfME really should take responsibility for that at this stage.<ref>{{Cite web | url = https://www.s4me.info/threads/action-for-me-have-reworked-our-treatment-and-symptom-management-page-and-updated-our-pages-on-get-and-cbt.4654/ | title = Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT" | date = 2018-06-18 | website = Science for ME|language=en-US | access-date = 2019-08-19}}</ref> AfME then asked to sign Dr Tuller's letter on June 20th of 2018. This apparent change of position was the day before [[Carol Monaghan]] MP's second parliamentary debate. On August 21, 2018, ''The Times'' newspaper ran an article about an [[open letter to the Lancet]] which more than a hundred academics, ten MPs, and patient groups from around the world had signed. On August 29, 2018, Action for ME posted a statement on their new position on the PACE trial and behavioral treatments for M.E.<ref>{{Cite news |url =https://www.thetimes.co.uk/article/call-for-review-of-flawed-me-research-in-lancet-letter-l75rvcprh | title = Call for review of 'flawed' ME research in Lancet letter | last = Whipple | first = Tom | date = 2018-08-21|work=The Times | access-date = 2018-08-29|language=en|issn=0140-0460}}</ref><ref name="PACE-apology" /><ref>{{Cite web | url = https://www.actionforme.org.uk/resources/questions-and-answers/what-was-the-pace-trial/ | title = What was the PACE trial? | last = Action for ME| first = | author-link = Action for ME | date = | website = Action for ME|archive-url=|archive-date= | access-date = 2019-08-30}}</ref> === PACE trial apology === In August 2018, a considerable time after the publication of the full [[PACE trial]] data and months after the publication of the reanalysis of the data, Action for ME's CEO published an apology for their role in the PACE trial and their "de facto" endorsement of [[graded exercise therapy]] and [[cognitive behavioral therapy]]. The apology has since been removed from the website.<ref name="PACE-apology">{{Cite web |archive-url=https://web.archive.org/web/20180829192602/https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/|archive-date=2018-08-29 | title = PACE Trial and Behavioural Treatments for ME | website = Action for ME|url-status=dead | date = Aug 2018 | url = https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/}}</ref> {{Quote box|By having a role on the Steering Committee and Management Group, there was a de facto endorsement of the use of Β£5m of research funding to focus on behavioural treatments. Neither I nor the current Board of Trustees would agree to do this now, as reflected by our current research strategy, the focus of which is collaborative biomedical research. I am sorry that the charity did not advocate for this considerable level of funding to be invested in biomedical research instead. It was never our intention to contribute to any stigma or misunderstanding about the illness and I sincerely apologise to those who feel that, in not speaking out sooner and more strongly, we have caused harm. | title = Action for ME and the PACE Trial|source=[[Sonya Chowdhury]], Action for ME Chief Executive, Aug 2018<ref name="PACE-apology" />}}
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